The comments below reflect the personal experiences and opinions of readers and do not represent medical advice or the views of this website. The information shared has not been evaluated by the FDA and is not intended to diagnose, treat, or prevent any disease or health condition. Always consult a qualified healthcare professional for medical concerns.
Oil Pulling
Posted by Grace (Portland) on 12/16/2015
★★★★★
Sjogren's Syndrome:
Oil pulling helped me. Oil pulling is where you swish an oil ( I use sesame oil or coconut oil) in your mouth for 15 minutes, then spit it out, and brush your teeth. I do it once a day.
Also, my salivary gland was enlarged may be clogged, and putting a tea bag between cheek, and gum for few hours, seems to unclog it.
Coconut Oil
Posted by Anna (Norwood, Pa) on 11/01/2015
★★★★★
Swallow the coconut oil. It is a healthy fat source especially if you are a low fat diet. To combat dryness (eyes, mouth, vagina, skin), I have started drinking Goji juice (one ounce) twice a day. I am going to get Evening Primrose Oil and Borage Oil.
Coconut Oil
Posted by B (new orleans ) on 07/23/2021
She's doing the right thing by spitting it out after holding it in her mouth. It's called oil pulling and it's to get rid of the toxins. Eating coconut oil is fine, but not after it's dirty.
Mineral Water for Fatigue
Posted by Carolyn (Hamilton, On Canada) on 08/25/2016
No one should drink distilled water it has no minerals in it, it is "dead" water and very acidic. I drank it for several years and got very tired, naturopath told me Alkaline water is the best, it has the minerals still in it. Our body needs minerals.
Mineral Water for Fatigue
Posted by Robert Henry (Ten Mile , Tn) on 08/27/2016
HI U Timh,,,,,,,,,,, you a better man than I. You went around the May Pole to tell folks that distilled water has no value. It does not have any value what so ever, except it does not contain any garbage.
Folks are told to drink spring water because it contains lots of minerals. Distilled water has none. Distilled water has an affinity for calcium so it will remove that from your bones. Drink it long enough and you will end up with osteoporosis.
Won't say what I want to tell the advocates of distilled water except they have never studied chemistry.
========ORH===========
Multiple Remedies
Posted by Steenie (Florida) on 09/03/2013
★★★★☆
One time, I did put my Sjogren's into "remission" for 6 years, actually... I started going back to the things which got me "into the mess" to begin w/...
First of all, mine came from having a toxemia as a child as well as a genetic predisposition... I had been food combining and vegan for years but I didn't find help until I got OFF the Prednisone eye drops I'd been doing for years for my Uveitis (I guess, I should tell others to work caution and check w/ a Naturpoath, uveitis is a serious condion, as well)... I actually tapered off of them as well as (diluted w/ distilled water and more over a period of a month), I had found the ultimately, Eyebright in the eye (would recommend, now, checking Weleda or a homeopath as the way I did it caused infection), but infection or not, the body was then able to heal... Also, around that time, I did a liver cleanse using only milk thistle tea with a juice fast over a period of time. I would also recommend that anyone with Sjogren's take out any nightshades from their diet or regime, sincerely, my uveitis would flare and I also didn't realize that tomatoes were a culprit, I knew I reacted to all other nightshades... I know that I have been successful w/ potatoes, but don't remember doing them around the time I got rid of it.
I got in a less clean environment and the Uveitis crept in some and began use in the eye of the Pred drops again (should've stuck w/ the eyebright, really)... But, thought I was "normal"... Many eye surgeries later, more Pred and not keeping up w/ the natural diet, doing more man made things (it's hard, you need the right nutrients when you have both these conditions, if vegan, you really need to supplement w/ a quality D3 and B12 supplement as well as having a great source of calcium)... and the Sjogren's came back... I'm going to try my former regimine and see how it goes, if that doesn't work, I'm moving where the air is cleaner. Hope this helps someone else! :)
Melatonin
Posted by Art (California) on 03/11/2024 2326 posts
★★★★★
In primary Sjogren's Syndrome (pSS), two of the most common symptoms are dry eyes and dry mouth. pSS damages the salivary glands (SGs), leading to dry mouth and melatonin helps protect the salivary glands from this damage, as discussed in this new March 2024 study :
https://pubmed.ncbi.nlm.nih.gov/38460474/
Here is a relevant quote from the study :
Melatonin had the potential to mitigate inflammation, oxidative stress, and apoptosis in SGs of pSS by inhibiting the IL-6/STAT3 pathway through receptor-dependent mechanisms. This intervention effectively prevented glandular damage and preserved functional integrity.
Art
Dietary Changes
Posted by Rachel (Lewes DE) on 04/17/2023
★★★★★
I am 55, white, female. I had whooping cough which left me with Sjorgrens which was largely asymptomatic until it wasn't. Two years after diagnosis I had extreme fatigue, weird rashes and pimply type things on my scalp, very red eyes. I tried anything and everything including the Auto Immune Protocol. It's no joke and it's a big commitment but after a few months it made a huge difference and I was able to start exercising and commuting by bike. AIP has a lot of supplements and it is worth getting one of the main books about them for that. Headlines: No gluten, dairy, alcohol, nightshades, sugar. Only grass fed meat. If you eat meat you eat nose to tail - so liver, skin, marrow. Lots of probiotics in diet. I sometimes cheat (cheese) these days but I have mostly kept it up for four years. I had a flare up while getting over Covid but mostly I have been healthy and highly functional. I think the AIP was a part of it, but I also tried low dose naltraxone, transcendental meditation (wow that helps with everything) Iyengar yoga (alignment and twists benefits internal organs). I also work on a kneeling chair or cross legged on the floor. Who knows which of the things really help - one person once told me they all do. I wish you all well on your quest to manage this condition and live in harmony with the body that you have.
Coconut Oil
Posted by Angela (Englewood, Kansas ) on 07/31/2022
★★★★★
Coconut Oil for Sjogren's Syndrome
I agree with the post from 2015 about using coconut oil. I brush my teeth with toothpaste maybe once a week, all other times I just brush with water to clean them well. Then I brush them with coconut oil, and leave it on them. I've noticed a better tooth condition, more moisture in mouth, and healthier looking gums.
Liver Flushes
Posted by Robert Henry (Ten Mile, Tn) on 10/14/2016
HI U JANET,,,,,,,,, ERICA's method is not original with the Andreus Moritz video. This procedure we got from Dr Hulda Clark's book many years ago. She says the procedure has been done for thousands of years. We do this yearly and now only get what is called gravel. What the video adds is to drink many glasses of apple juice a day for a week.
This protocol will also work for kidney stones, but the apple juice is far more important .
Let me tell you a story that just happened to a church friend of ours. She had a very large kidney stone and used the standard allopathic procedure of busting up the stone. The fragments went all through out her body and they were full of toxins. She was on life support and unconscious for about 4 days. The decision was to remove the life support and see what God had in store for her. She had turned totally black, but awoke a day or so later. Her left arm had to be removed and her left foot. Our little country church prayed long and hard for her during this time. She is at peace to lose her arm and foot.
We visited her a few days ago and could not believe her attitude. She was totally positive and thanking God for sparing her. The doctors said she was a miracle . I told her that she would have more stones if she did not supplement with magnesium and if this occurred again, then to do Dr Hulda Clarks procedure instead of what she just went through.
I also posted on this thread about coffee enema's that will flush toxins from your liver. We also do this procedure. As all know my admission to posters is to read and study until they are worn out and then do more. Knowledge is what will solve your health problems. Pity..... that most want a quick fix, which will not happen.
OUT OF SPIT. =======ORH======
Mineral Water for Fatigue
Posted by Yvone (Auckland, New Zealand) on 10/25/2018
As I follow Ayurvedic principles I am aware that any bottled water, be it in glass or plastic is dead water. Very easily fixed. Buy blue bottles, dark blue or cyan blue, from the Warehouse. $2 each. Buy some corks. DO NOT USE METAL CAPS. Fill your bottle with tap or filtered water and leave outside for a few hours. It does not have to be in direct sunlight, just where the rays reach. This restructures the water. Very simple to do and the water tastes completely different. Normally I cannot tolerate water, but have no problem drinking 6-8 glasses of restructured water a day. AND BEST OF ALL IT DOES NOT COST A FORTUNE. Add one cupful to your kettle, cooking water, any other water. I splash it on my dry eyes as well while holding a mouthful of water. Very helpful. I use it in my espresso machine. Coffee tastes completely different. I know, I know, but I only drink one cappucino a day. I brought back from Germany mineral salts called Meinebase and add a cupful to the footspa. These salts regulate the pH balance of my body and much better than bicarb of soda. This help a lot. It will take one year but I will rebalance my immune system and wave goodbye to Sjogrens. Best of luck everyone, hope this helps.
Borage Oil
Posted by Ally (Simsbury Ct) on 11/21/2014
Oh my gosh, Mary. I got dry mouth in the worst way. I am basically 47 and entering perimenopause. It has been the most miserable experience... Something we all take for granted but when your mouth is dry, it affects everything and causes such anxiety. I have always been more of a dry person anyway tho my eyes only slightly-mostly my allergy-laden nose. But little did I know the difference the borage oil seems to make for me. I'm taking in conjunction with flax and fish oils I'm hoping it is for real and keeping my fingers crossed! Thanks for your post. Hope it will help other people suffering too.
Fish Oil
Posted by Suza (Sydney, NSW, Australia) on 04/20/2009
★★★★☆
I have Sjogrens syndrome, a mild version, but what has really helped me is taking a lot of EPA & vitamin E fishoil as well as Nodic Cod liver oil, I can feel the difference when I don't take it, as my symptoms worsen.
I also feel that getting a neck massage helps my symptoms, I have a feeling that the neck seems to be linked to the sjogrens somehow , I have always had a sore neck too, but have been doing stretches that help. anyway give the fish oil pills a go- I take 12 a day + 3 nordic cod liver oil pills. I have been doing that for years and it seems to keep it under control.
Fish Oil
Posted by Nancy (Los Angeles, CA) on 05/22/2021
★★★★★
Gwen, Thank you for sharing your experience and protocol... so helpful! As some others suggested, I ordered the sea buckthorn oil, but while waiting for it to arrive, I tried just upping my consumption of cod liver oil (I had been taking 1g/day)... lo and behold, the day after I upped it to 3g/day, my eyes were no longer dry and my mouth had improved by about 50%. And today, 2 days later, my salivary glands are 98% back in action! (Weirdly, I had a dream last night that I couldn't stop drooling. ; P)
I still plan to try the sea buckthorn oil, mainly to see if I get any of the skin benefits, but it's good to know how powerful something as simple as cod liver oil can be (good for vit D, too, which I'm borderline low in). Cheers!
Sea Buckthorn Oil
Posted by Shabana (TX) on 03/09/2021
★★★★★
Sea Buckthorn oil:
In clinical study on Sjogren's and Sea Buckthorn, twenty-three female patients with typical symptoms of dryness, pain and itching in the genital tract mucosa took Sea Buckthorn oil for three months. Conditions of the genital mucosa were evaluated using a visual analogue scale method before and after each treatment period. It was found that the use of Sea Buckthorn oil resulted in a higher rate of improvement in all symptoms of the twenty-three patients. In another study, researchers recruited 100 adults with symptoms of dry eye syndrome.
For three months, participants took two grams of sea buckthorn oil or a placebo each day. By the study's end, those who'd taken sea buckthorn oil showed a reduction in several dry eye symptoms (including redness and burning). These results suggest that Sea Buckthorn Oil may present a promising alternative for improving the condition of the mucosa of Sjogren's Syndrome patients.
Oil Pulling
Posted by Kristen (Pa) on 07/23/2016
Please do NOT swallow any oil that you've had in your mouth. It will be filled with bacteria, you want to spit it out, and rinse your mouth out. Just to clarify. Also, I tried oil pulling and it was very effective but my crown came loose, just fyi.
Coconut Oil
Posted by Kalola (Ottawa Canada) on 04/28/2022
★★★★★
I agree- Coconut oil pulling for up to 30 minutes, then spit out in garbage- it clogs drains! Take a 1/4 to 1/2 tsp to swallow, several times a day to moisturize the mouth.
Multiple Remedies
Posted by Erica (Benton, Ky) on 09/13/2015
I have cured my sjogrens after doing a series of liver flushes (Andrea Moritz style). In 2008 I was diagnosed with sjogrens and a month ago I asked for the tests to be retaken. All results came back negative. Dr said he "can't medically explain it".
I hope this finds you well and brings you hope. sjogrens IS CURABLE! ( I have no other dietary restrictions or supplements )
See my post under Liver Flushes.
Mineral Water for Fatigue
Posted by Jayashrii (Nelson, New Zealand) on 09/22/2015
★★★★★
Great news. I bought a distiller & put my water through that. Fatigue has vastly improved but I hadn't connected the two. Thank you.
Mineral Water for Fatigue
Posted by Timh (Ky) on 08/27/2016 2048 posts
Distilled Water is simply purified water and yes, no benefits for consumption. It is recommended to add a sprinkle of powdered or a few drops of Ionic Major & Trace Minerals to correct this problem. Maybe not as good an option but a sprinkle of Sea Salt or Himalayan Pink Salk would suffice.
For yrs I carbon filtered my tap water and found it insufficient as my metabolism seemed affected by fluoride. And sure enough this was the case because I started Ozonating 1 gal filtered water for 15-30 secs and my energy, as well as my kitties, went up.
I get my minerals elsewhere but I do add a few drops of Iodine to a gal of drinking water.
Dietary Changes
Posted by Charlie (Wyoming) on 09/11/2017
Soy however, is not good to eat for long periods of time. Little is better. Check it out on the web.
Fish Oil
Posted by Prioris (Fl, US) on 09/29/2014
You missed one of the most important oils for dryness problems. Look into Palmatoleic Acid or Omega 7. Primeval has 50% in their brand.
Fish Oil
Posted by Nancy (Los Angeles) on 05/25/2021
Just an update... I tried the sea buckthorn oil and, maybe it was a coincidence, but my tongue swelled pretty suddenly (not hugely, just enough to be painful pressing against my teeth) and my lips went all tingly. It was weird and scary, so I don't plan to take any more sea buckthorn oil. Which is a bummer because I thought it might really help. Anyway, just wanted to put that out there in case anyone else had a similar experience. Again, it could be coincidence... if the swelling and tingling isn't gone in a few days, then I'll look for other culprits (like Sjogren's itself), but for now, it seems sea buckthorn oil is not my friend. (This was the Seabuck Wonders brand, btw... the one with both seed and fruit oils.)
Also, I discovered that the fish oil is not something to take high doses of (i.e., 3 tsp/day) for any significant duration either... unless you're able to regularly test your levels of omega-3 vs. 6, AA vs. DHA, etc.. Apparently, when omega-3 levels get too high relative to omega-6, they can cause many of the problems I'm trying to eliminate. I feel like I need to get a whole battery of test$ to see where I am before I take one more supplement. This is becoming one long game of whack-a-mole. I'm going back to basics for now, only supplementing things that (a) I know, based on lab tests, that I'm deficient in, or (b) that I know have no undesirable effects when used in excess of necessary amounts. Good luck everyone... I know the answer is out there! (It just probably looks different for each of us.)
Liver Flushes
Posted by Hina (Houston Taxes ) on 12/02/2015
How you did liver flush? Can you tell me the method I am having miserable life because of Sjogren's and rheumatoid arthritis. Please help me. May God bless you.
Fish Oil
Posted by Prioris (Fl, US) on 09/29/2014
Omega 7 is relatively new so appreciate hearing your feed back. It helps understanding its limitations. What dosage did you try per day and I assume you took it with fats for absorption.
Here is something on Sjogren's Syndrome.
http://www.seabuckthorn.com/Omega-7 Sea Buckthorn HANDOUT.pdf
They used 3 grams of Sea Buckthorn Oil
It seems to help some people with that syndrome
Fish Oil
Posted by Sandy A. (Albuquerque NM, USA) on 01/20/2021
Please have further testing done. My sister was told she had too much iron in her blood but when her husband insisted on more testing, they found she had cirrhosis of the liver. It was nearly too late and she almost died.
Fish Oil
Posted by Brandy (Alberta ) on 07/18/2018
I did the same thing too. And ended up with fluid around my heart, not being able to breathe and had to have two blood transfusions. A healthy mix of both natural and science is behind more of an intelligent choice.
Collagen and Keratin Capsules
Posted by Deb (Sherrard, Il) on 06/27/2011
how many mg do you take and how may tablets is that. how long did it take before you had results? I was diganoised with sjogren's syndrome and would like to try a natural approach before using meds.
Collagen and Keratin Capsules
Posted by Jacquie (Wellington, New Zealand) on 08/07/2012
Hi Janine, I'm a 46 year old Wellingtonian with exactly the same symptons as yourself. I also take Collagen for my neck problems and have the dry eye and mouth issue which causes bad breath and drives me crazy!! Could you tell me what collagen keratin capsules you take and if its still working for you 4 years later??
Castor Oil
Posted by Frances (Cabarlah, Qld.) on 05/08/2018
Holly, I was diagnosed with RA over 50 years ago and am not disfigured but have had all the joint pains, etc. Only recently whilst at hospital for another problem I was told I didn't have RA but Sjogren's disease. This would explain the dry eyes, nose, mouth, vagina, etc.
Liver Flushes
Posted by Joycealaina (Oceanside, Ca. ) on 07/27/2016
I am from Northern California where we are quite serious about using everything natural. So was I when autoimmune diseases began...unfortunately they got out of control and I had excruciating pain. I did not get it under control...a doctor did when I moved to southern California. Pain pills I hadn't taken helped...if they work...take them. I was also put on methotrexate...and it worked for a while. All I know is the medicines helped in my darkest hours, days, years when I suffered so trying to do it myself.
Now that I am better, not cured, but much better...I can look for natural ways of healing.
With dry mouth my throat gets so crackled I cannot be understood...I chew gum. It gets my juices going again rather quickly.
A few thoughts from one use has the gamitte and keeps on trying....but doesn't refuse medical assistance.
Liver Flushes
Posted by Janet (Madison, Wi) on 10/12/2016
Erica, this is amazing! Thank you for sharing. I have had sjogren's symptoms for several years I now realize, gradually getting worse. Recent skin problems including rashes, cracks, and spontaneous hives, now around my eyes, have no explanation, and no apparent medical treatment besides steroids. I also have Hashimoto's hypothyroidism for which I take T4 and T3 supplements, and have eliminated most gluten with much improvement in TPO & anti-thyroid antibodies. Izabella Wentz' book Hashimoto's Thyroiditis, Finding and Treating the Root Cause has inspired me to believe that I can eventually be my healthy self and body again. I'll be having new antibody tests for Sjogren's soon. Do you know which tests you had? I am now planning to do the liver and gall bladder flush recommended by Andreas Moritz, I have ordered his book. Your story is energizing and full of promise. It was a year ago, how are you feeling now? Any other suggestions you may have are welcome. Thank you again ...
Dietary Changes
Posted by Edith (Texas) on 05/04/2016
So, I've been drinking soy milk for about 2 years and first it was mouth, so dry that my mouth would stick together, and then about 8 months later my eyes are doing the same same thing?
Fish Oil
Posted by Brooke (CO) on 04/18/2022
Have you tried Manuka honey? My lips get so dry, they crack and bleed and swell and nothing topically helped until I tried the honey. It is a miracle and helped the dryness go away in two days they looked almost normal again. It's 100% stronger than regular raw honey, made from bees in New Zealand from the tea tree. Look online and see all the benefits. Find some at your local health food store.
Multiple Remedies
Posted by Eileen (Pa) on 12/08/2016
Nightshade is also a toxic weed (has small lavender flowers) that grows on fence lines throughout many states and in cities. It will even kill cattle (except cattle are smart enough that they won't go near it unless there is no other food source). Nightshade is so toxic that it can be absorbed through the skin. When I moved to Columbus, OH, I pulled this climbing weed along my chainlink fence and acquired an "unidentifiable" conjuntivitis that also caused my pupils to fully dialate. Even OSU medical hospital didn't know what caused my conjunctivitis. I read everything and discovered the truth about all plants in the nightshade family.
In Italy, nightshade tea was given to young girls to cause "Bella Donna" or large pupils that were considered a beauty attribute. In addition to the general toxicity of nightshade, enlarged pupils can lead to the destruction of vision. I had to wear sunglasses inside to protect my eyes. I believe that my encounter with the nightshade may have triggered my Sjogren's primary (I had the lip biopsy) and perhaps triggered all of my mixed connective tissue disease and many autoimmune diseases, including my MS (because my first signs of MS began a couple of years after my encounter with nightshade).
Don't every touch or consume a plant or its fruit without knowing what side effects are associated with it.
Borage Oil
Posted by Margaret (Utah) on 02/07/2015
Ally, how is that regimen helping?
Borage Oil
Posted by Jen (Green Bay, Wi) on 02/26/2018
Does it matter what kind of tea bag? Do you put it in dry or steep it first?
Fish Oil
Posted by Art (California) on 05/26/2021 2326 posts
Nancy,
If you haven't already, you might look into vitamin D and an absorbable form of zinc such as zinc picolinate or zinc gluconate.
Art
Liver Flushes
Posted by Robert Henry (Ten Mile, Tn.) on 12/03/2015
HI U HINA, , , , , , , ,
For your liver flush, google coffee enema and follow the directions.
Wish you well. =====ORH======
Liver Flushes
Posted by Christian (Mt. Juliet, Tn) on 01/08/2016
Hello. I am very encouraged by your post re: liver flushes and Sjogrens. Did you only do the flushes in 2008 and not again until 2015? How did you determine how many to do? Thank you for your help!
Liver Flushes
Posted by Amy (Sarasota, Florida) on 07/27/2016
Hello and thank you for your post on this site. Can you tell me something more about the liver flush that helped you please. Did you use a clinic or buy a formula? I would appreciate the details. Perhaps it can be a help. Has this been a permanent help to you? I am having a great deal of difficulty and need a solution. Many thanks. Amy
Coconut Oil
Posted by Kristina (Rio Vista, CA) on 12/14/2021
Please advise as to how to use Evening Primrose Oil & Borage oil. Thanks
Multiple Remedies
Posted by Mario (Dallas, Texas) on 01/12/2017
For dry eyes, I am using Castor oil under the eye lashes before bed for years, very good results
Mineral Water for Fatigue
Posted by Mary (Los Angeles) on 03/11/2015
Where do I buy this mineral water? Got a brand name? I have a very sick child that needs this. Thank you.
Mineral Water for Fatigue
Posted by Ben (Kansas) on 08/26/2016
Distilled water is the cleanest and best testing water there is. If you are worried about minerals just add a few drops of trace minerals to it.
Mineral Water for Fatigue
Posted by Diane (California) on 04/22/2017
I'm sorry this took so long. I had no way to know people were asking a question. Yes, I am still getting the mineral water delivered in 2.5 gallon glass bottles. I buy Mountain Valley Spring water. Whole Foods also has a brand of Italian Still Mineral water that is also in glass and much cheaper, and that was the first one I used so I know it's just as good as Mountain Valley in alkalinizing my body. Been on it for over 2 years now and it's been such a Godsend.
Dietary Changes
Posted by Danielle (Oceanside, Ca) on 08/07/2015
I was hoping for a more detailed description of diet changes. I am trying to help my mom with this.
Dietary Changes
Posted by Rachel (Delaware ) on 08/10/2022
Hi Danielle -
Anyone reading up on Sjorgren's might want to consider the AIP diet - especially if their symptoms are overwhelming. If you're not ready for that much change, I was surprised not to see (and I could have missed it) the old wives' tale of giving up Nightshades. (Potato, tomato, peppers, eggplant). I was diagnosed with Sjorgrens after I had whooping cough in 2016. I sort of ignored it because the treatments were annoying and the symptoms were manageable. But by November 2018 I realised I was in fact overwhelmed with symptoms and that something had to change. I followed the AIP diet and started taking supplements - probiotics, fish oil - just everything. I got my hair tested and found that I had a chronic shortage of molydenum and started taking supplements. I got as much sugar out of my life that I could. I learned to meditate. I gave up alcohol for six months and then only went back to an occasional glass of wine.
Sjogren's Syndrome
Posted by Diamond (Ma., US) on 11/22/2014
★★★★★
Black Cohosh for Sjogren's
I have used a natural remedy for over twenty years-called black cohosh, it has been a God send for all these years. As for dry eyes, it's just the greatest, it also supports the whole system. Black Cohosh can be bought in almost any drug store and some of the leading stores. I thought I would add an extra alternative for many others to use. Good Luck...
Fish Oil
Posted by Gwen (Cleveland, Oh) on 09/29/2014
For Prioris...thank you for your comment. I actually started taking Omega 7 Palmitoleic Acid 4'ish weeks ago, as recommended by my local health food store. I experienced no improvement -- no dry eye, dry mouth, sore lung and heart palpitation relief at all. We're all built differently, so while fish oil, flaxseed oil and borage oil worked perfectly for me, maybe Omega 7 might benefit others.
Fish Oil
Posted by Candy (Clarkston, Wa) on 10/26/2015
We found these natural supplements very helpful. You can find them on E-bay or Google where to get them. 1) CoQ10 (get the Ubiquinol form). 100 mg 2-3 times per day. Helps with dryness and heart palpatations. 2) Xylimelts (little mints that help your body create saliva). Put one on the roof of your mouth at bedtime. Flat side on the roof of your mouth and let dissolve. 3)Sugar-Free lemon drops. Helps moisten your mouth. 4) Krill Oil (it's not stinky like fish oil and does the same thing). Whatever amount you take divide the dose to 4 times per day.
Multiple Remedies
Posted by Steenie (Florida) on 06/21/2015
Eyebright is an herb that can be bought bulk or in tea bags, I buy it bulk and am back to using the tea in my eyes (don't recommend for some time after eye surgery) and it helps w/ my uveitis triggered by Sjogren's, specifically the posterior kind, it took this to relieve my body of the burden of the corticosteroids (it's anti inflammatory, the eyebright, nothing else I'd tried did this).
Nightshades are highly advised against w/ all arthritis/autoimmune diseases and you can test by removing and then adding them back in to see the difference (huge difference for me, even once Sjogren's was better, I still couldn't do nightshades): tomatoes, peppers, eggplant, potatoes (don't bother me as much, the others I can't eat at all), and a number of herbs. In fact, eyebright is, funny that I can't take it internally but I'm able to tolerate it w/o uveitis in my eyes.
In order to clean my liver and then the Sjogren's was knocked out which leads me to believe that medicine, in and of itself can prevent the healing of the Sjogren's as well as the uveitis (depends on the cause of the uveitis, but best to go as natural as possible).
Castor Oil
Posted by Stephanie (Pittsburgh, PA) on 09/06/2022
Thank you. I'm starting year 4 of this and doctors do nothing to help me. Now I have a rash on my neck for 2 years in addition to the pain and swelling. It is now on both sides of my neck. Gonna try this since the medical field does nothing except watch me suffer and act like they can't see the swollen glands.
Fish Oil
Posted by Kathleen (Orange County, ca) on 12/20/2022
Are you still taking cod liver oil. How do u take it? Teaspoon, etc? There are many remedies but confusing because no one discusses how they take it, how much, etc. I want to try the least expensive easy option. Please advise
Castor Oil
Posted by Mary (Utica NY) on 08/09/2023
★★★★★
That won't work… the oil will be absorbed into the fabric. If you're in serious pain, and your eyes could be damaged…. You will do this for sure. It's the lessor of the two evils.
Sjogren's Disease and FUT2
Posted by Bill J. (United States) on 06/05/2019
I'm grateful for these posts where people can look at possible solutions. The Auto-Immune disorders don't have to be a Life Sentence! I am being tested for Sjogren's. I have minimal dry eye, dry mouth only at night, but I am a mouth breather due to congested nose.
The thing that made me consider all the moisture issues is that I almost have never sweated except for peri-menopause that was severe sweating most of day/night and lasted for about 5-7 years ending in 2004. Could some people just not be "Sweaters" or are "Low Secreters" due to a single FUT 2 defect and don't have Sjogren's? One with 2 defects would be a total "Non-Secreter" and have serious lack of mucous if the gene expressed. Could they be connected? Or FUT2 may be the cause for someone without Sjogrens who still has moisture issues. Regarding Detoxing. If one can't open up the channels of the Lymphatic System, it seems dangerous to attempt detox. Maybe Liver or Colon Cleanses might be safe, but some other Detoxing seems risky.
Any thoughts? Is there a connection of Mercury to lack of sweating? If it gets released and doesn't exit, it can really wreck havoc.
Sjogren's Disease and FUT2
Posted by Peggy (Saskatchewan) on 02/16/2020
Rebounding helps the lymphatic system to work properly.
Liver Flushes
Posted by Jan (Bahrain) on 10/20/2016
Can you kindly provide your liver flush programme as there are different ones online? I'd hugely appreciate it since no one else says anything worked for this syndrome.
Liver Flushes
Posted by Steve (Nv) on 10/23/2016
Google Hulda Clark liver flush and you will find tons of good info there.
Liver Flushes
Posted by Christine (Az) on 03/13/2017
Hi ~ good to hear you made yourself better. What kind of things did you do to make your self better? Flushes, foods, water, vitamins?
Thank YOu
Liver Flushes
Posted by Christine (Az) on 03/13/2017
HI Ericka ~ So great to hear your better now!
Will you please share your experience on the LIVER CLEANSE .... what kind of preparation before the actual cleanse and what to expect during the process.
Thank YOU!
Liver Flushes
Posted by Ruhi (Qatar ) on 04/04/2017
How can I do liver flushes. I have RA and sjogren.
Liver Flushes
Posted by Luly Salazar (Denver City Tx) on 05/10/2017
How do you do your liver flushes?
Liver Flushes
Posted by Steve (Nv) on 05/10/2017
I use the Hulda Clark liver flush recipe but instead of epsom salts I use magnesium citrate powder as it's easier on the kidneys.
Liver Flushes
Posted by Vanessa (Az) on 05/25/2018
Will the liver flush help with lupus and Sjogren syndrome?
Multiple Remedies
Posted by Karen (Sydney) on 08/01/2015
You can buy distilled drinking water online and magnesium and bicarb water online ...Look on ebay too or google for a supplier near your area...Only use distilled drinking water..You can buy an inexpensive distiller on ebay and make your own...Both these waters will change your life and repair most ailments.
Multiple Remedies
Posted by Kag (San Francisco) on 01/10/2017
For dry eyes, an ophthalmologist can insert eye duct plugs to prevent tears from draining, and it's painless. You can also get an RX for Lacriserts. They retail for about $300/month, but is covered under insurance. I cut the little things in half so I get twice as many and since I rarely need the full ones. They are tiny, little foil-wrap clear sticks that expand in your lower lid to produce tears for HOURS! Thought I was going to have to give up snow skiing, cycling, motorcycle/scooter riding, scuba diving until doc told me about these! These will CHANGE YOUR LIFE! Still trying to deal with the dry mouth, though. Physical therapy has taken away my joint pain, so I'm almost cured!
Mineral Water for Fatigue
Posted by Karen (Sydney) on 11/22/2015
You should use distilled water for your son....Go on you tube and post distilled water and you will get all the information you need...I've never felt better in my life since drinking it and I was pretty sick and run down...All the best to you and your son...I believe you can buy distilled water from the supermarkets etc where you are.
Mineral Water for Fatigue
Posted by Honey (Columbia, Sc) on 03/31/2016 3 posts
Are you still drinking the mineral water you have delivered?
Mineral Water for Fatigue
Posted by Diane (Ca) on 11/07/2016
I"m sorry it took me so long to find the questions on the mineral water. I'm able to get mine delivered in glass 2.5 gallon containers which I put in a water crock. The brand I buy is Mountain Valley Spring -- from a spring in Arkansas. But I found that any good mineral water does the same, and they have some in Trader Joe's now. And Whole Foods has some.
Mineral Water for Fatigue
Posted by Janet L. (Dublin ) on 03/28/2018
Thank you for the information.
Dietary Changes
Posted by Mohan Kumar Nair (Navi, Mumbai) on 08/31/2015
Can you please suggest us the treatment for this, as my wife diagnoses with this and under depression, your kind advise on better treatment and dietary are appreciable.
Dietary Changes
Posted by Uncertain (LA) on 01/16/2022
How are you doing? Are you still Sjogrens free?
Fish Oil
Posted by Pj (Tennessee) on 04/26/2015
Is the fish oil, etc.. still helping your Sjogren's symptoms? I've been taking fish oil, evening primrose oil, alternating vitamin E and Flaxseed Oil, Ginger and tumeric for 4 weeks now. Some improvement but still significant dry mouth, mucus in throat and dry eyes (but eyes not as bad). How long did it take before you reversed the Sjogren's? Also been on a gluten free diet for 3 weeks still no reversal. Impatient I suspect. Desperate people do desperate things and there is so much out there about Diet, Immune System, etc.. Paleo is so restrictive and I'm losing too much weight as it is already. Just wanted an update on how your Sjogren's dryness symptoms were responding to your supplement regiment .
Fish Oil
Posted by Rsw (Uniontown, Oh) on 04/26/2015
Hi PJ,
I was recently diagnosed with Sjogren's Syndrome, but because of the dry eyes and mouth from previous Sicca diagnosis, had been taking many of the same oils you mention. I don't think they were helping me. Then, as I was looking at some of Ted's comments (which I can't seem to find right now), he said the body can't handle all these oils, and even fish oil should be taken about twice a week only. He only uses coconut oil. I have stopped using the oils but remain confused by all this. Does anyone have a better understanding from Ted of what oils may not be good to take, which may be all of them except coconut oil? I think he advises Borax for Sjogren's. I also have high iron and had hoped the oil would stop my blood from sticking together. (Had Hep A, can't donate blood, and doc will only authorize phlebotomy if iron exceeds 100) Thanks everyone.
Fish Oil
Posted by Judy (Maryland) on 05/24/2016
I was wondering why you can't donate blood and how you know your blood is sticking together??
Fish Oil
Posted by Rsw (Oh) on 05/24/2016
Hi Judy,
I got severe Hep A in the 80's, most likely from eating contaminated food at a restaurant. Which one, I don't know for sure because it took about six weeks to show up. I will never be able to donate blood or organs because of this. High iron can lead to sticky blood and also damage organs, so if it gets too high, my doctor writes a prescription for a phlebotomy and I can give blood at a donation center, and it is is disposed. Some doctors think high iron is implicated in heart attacks so I try to watch my levels.
Fish Oil
Posted by Joyce (Oceanside, Ca. ) on 07/27/2016
A temporary ‘assist' with dry mouth....believe it or not....chew gum!
I also have Sjogren's and am happy to read the relief which can cure it. Cod liver oil is horrid...rather than pills, are any other oils helpful? It gags me...but I could increase my take of Olive Oil...any comments? I also use coconut oil, but would have a tough time taking it as a spoonful. I get especially dry after a pain pill.
Fish Oil
Posted by Dorothy (Mass) on 10/28/2016
I am finding all of this interesting. Just found out I have Sjogren's. Had my cataracts out in Fed 2016 and my eyes are so dry. Told my eye doctor and he tested for Sjogren's was positive. Its not to bad my mouth gets dry at nite. My eyes forget it. I am useing Restates.twice a day. It helps a little. But! I am going to dry all of these things. I am 75 young healthy can't believe this is happen. I also have a thyroid condition. Goiter. On pills and off. Thank's.
Fish Oil
Posted by Angela (Englewood, Kansas ) on 07/31/2022
The dry eyes, I use Systane. My eye Dr recommended it and it's amazing. Great for lubrication, not aggressive like those script eye drops.
Fish Oil
Posted by Karen (New Jersey) on 11/06/2017
Hi,
I've got auto immune disorders--Sjogren's, RA, Hypothyroidism. My current problem is extreme skin dryness/burning pain with cracks/splits in my skin above my mouth. I'm looking for a Rheumatologist in the NY/NJ area.
This condition is both painful and unsightly.
Anyone else have this condition? I've tried so many moisturizers, oils, they help a little. I watch my diet-organic, free range, no dairy, supplements and lots of water.
Any other suggestions? Much appreciated
Fish Oil
Posted by Angela (Englewood, Kansas) on 07/31/2022
Post says they had blood transfusions and fluid around heart. What were the blood transfusions used in response too? How did they see fluid around the heart?
Multiple Remedies
Posted by Donna (Ontario, Canada) on 12/11/2014
What is eyebright? I haven't been diagnosed yet, but I'm pretty sure I have Sjogren's Syndrome. I'm a Dental Hygienist, an I see patients with SS often enough, and dreaded that it would ever happen to me. I'm going on my second week straight of this agonizing dry eye and mouth issue. I'm going out of my mind. Still awaiting RA blood tests. I'm finding that chewing icecubes helps me stay hydrated but doesn't deplete the saliva from my mouth like water. What is night shade foods? I've doubled up on my omega 3's. This all started the night (of the day) that I started my liver cleanse that she put me on with other things( paricide, curcumin, probiotics, b12 with folic acid) I also had acupuncture done as well that day to increase my fertility, and I fell like all of that triggered this reaction. I'm desperate to get rid of it.
Collagen and Keratin Capsules
Posted by Denise (Mishawaka, In) on 10/19/2012
I'm seeing a rheumatologist on Novemeber 5th and believe I could have sjogrens syndrome. I have the dry mouth symptoms exactly as you have stated and want to try a natural approach. I was wondering the same thing on how much you use and if it's daily? Please let us know how to take these so I can prevent taking prescription meds. Thanks :)
Ted's Remedies
Posted by Shaon (Independence, La, Usa) on 09/14/2012
I was reading about David who has Sjogrens I too have Sjogren. I was diagnosed with Sjogren's Syndrome in 2010 but I'm sure I've had it since 2005. The doctors have run test but no one diagnosed it until I when in the hospital in 2010. The heart doctor said I had a sticking value which we found out was cause from the sjogren, I've lost teeth because of the dry mouth, I can't go in the sun because it hurts my eyes, I've lost my taste, my ears hurt and now theres joint problems.
But that's not why I really need help I have allergies from nuts to purfumes. In 1999 I had a reaction to tea-tree oil residue left in the bath tub I was taken to the hospital where they but umna boots on me that only made matters worse and I carry the scars to proof it. There is this one spot on my left leg that never heals, I have had it for 13 years it was never any big than a quarter until 2010 when it decide to get bigger after beening hit.
Then at the end of 2011 I hit the other leg on a box and a new hole formed, the doctors at wound care have tried about ten differance medicine on me but nothing has worked. They have put the medication on than wrap my legs but the wrap cause pain and itching. Now I itch all the time and the itching is driving me up the wall, when any thing touches my lower legs I see stars that's how bad they hurt and I don't mean where the sores are I mean any where on my lower legs and then these water like blisters form and new holes start. Most of the time the smaller ones are just skin deep and heal but some are a little deeper and take there time healing but not the bigger ones there just will not heal. I've tried epsom salt baths and bag balm at home but nothing works and I have constant drainage from the minute my feet hit the floor. I hope you can help me, please
Ted's Remedies
Posted by Anne (Newport Beach, Ca) on 10/15/2012
Shaon, ask your doctors about packing the wounds with manuka honey.
Ted's Remedies
Posted by Candyk (Rural, Ohio) on 06/04/2013
Sharon from NY - I also have sjorgrens and I use the alkalizing lemon/bakingsoda everyday. It has helped me tremendously. I also take a vit. B complex. I eat coconut and and use coconut oil since I have other auto disease too. But I have stayed off all the RX drugs and I think its due to this regimen. NOTE: I drink 8 to 10 glasses of water/day.
Ted's Remedies
Posted by Gingermeggs (Sydney) on 08/03/2013
Sharon, I had the fluid cysts on my first knuckles. That's what led me to the dr to find out I had sjogrens. One would open up every few weeks and drain. For years. Seems to have healed after taking nattokinase and serrapeptase for a few months. Only 2 of each, now back to one. Kinda hard on the stomach.
Ted's Remedies
Posted by Ritu (Columbus, Oh) on 06/01/2014
Hi! This message is for Candyk from Rural, Ohio.
My mother (age 67 yrs) has severe Sjogrens Syndrome.
I read about your remedy of baking soda and lemon.
Could you please elaborate on the quantity of each and in how much water? Also if the water should be warm or at room temperature? How many times a day you take this?
How helpful it has been.
I will really appreciate your response as I am desperate for help.
Thanks a ton! Ritu from Columbus, Ohio.
Ted's Remedies
Posted by Su (London, UK) on 11/09/2014
Hi Ritu
Plz let me know how much of baking soda lemon juice and water one has to use.
