★★★★★
20 Minute Walks
I'd suggest " lining it " w/ a plastic produce bag to extend the life and stop any leaking, fill it halfway ( approximately ) then refrigerate.
The Cold Temp will lessen any Blood Vessel inflammation causing contact on Nerve that generates Pain.
I came across this article studying the effects of vitamin B12 and it's effect on Myelin Sheath surrounding damaged nerve and nerve fibers. You name it I've tried it, Lyrica ( nasty side effects ) stopped, Dilantin ( taking it for 41 years Partial Complex Epilepsy therapy ) short half life's recurring sporadic nerve pain, Capzasin, Tricalm , Lidoderm / Lidocaine topical Patches ( poor adhesion ) Calamine, Eucerin skin calming cream, I'm certain I missed others.
Turns out the Vitamin B12 had an obvious effect and that I will know for certain by tomorrow and even more so in 72 hours .
INFLAMMATION causes COMPRESSION / cool compress works for me .
Upper Branch V5 Trigeminal Nerve / Fibers
20 Minute Walks
★★★★☆
Spirulina
★★★★★
A few months ago, I was diagnosed with geniculate neuralgia which is similar to TGN except that a different nerve being impacted. Having seen the amazing results achieved by giving my horse spirulina, I tried it.
It substantially reduced (by ~ 80%) the intense pain and other symptoms. I am taking 10,000mg per day, 5000am and 5000pm though splitting the dose into 3 would probably be better. I take the same spirulina as my horse which is made by Springtimeinc. They test their products and stand behind them if any issues arise.
Try it!! You have nothing to lose and everything to gain!!
Acupuncture, Multiple Remedies
★★★★☆
I have been having acupuncture in my face neck and head and it has made such a difference. My pain was unbelievable, I wanted to cut off my head. I am also taking Vitamin B5 B1 200mg 4 tablets 2 x daily of each. Also Nervagesic (natural) by Mediherb 4 x 2 daily. The B5 is called Pantothenic Acid these all help to calm your nerve's and ease stress while building back nerve covering.
My natural health care professionals told me to de-stress as much as I can, rest and keep taking vitamins including Magnesium in good quantities.
Use heat packs, that is very soothing, stay out of the heat and direct sunlight on your face. If you are suffering with the pain in your teeth, avoid chewing on that side. Eat soft food or soup that needs little or no chewing. Also use a toothpaste for sensitive teeth and brush your teeth up to 5 times a day. This helped ease my pain.
Hope this has helped. I am still suffering but nowhere near as much as I was. Each day the pain seems to lessen. There is hope just hang in there and never stop asking question of people that know what they are talking about. Especially those who have had the same condition.
To answer your question, I understand not wanting to use DMSO close to eyes; but to get best effect I need a carrier. So I often use DMSO in cream form. I just use about a teaspoon amount mixed with colloidal silver. That way there will be no dripping of DMSO into eyes. I'd not use above eyebrows and keep an inch away from eyes.
White Radish, Ginger
★★★★★
Ingredients:
2 cups of water
1 average size of White Radish (White Carrot)
Slices of fresh Ginger (optional)
Steps :
1. Wash the white radish, cut into smaller pieces
2. Add 2 cups of water to ceramic pot, close the lid, put to boil
3. Switch off when liquid content reduced from 2 cupful to 1 cup.
4. Drink the liquid between dinner time 7pm to 8pm only
Note : For those elderly who experience discomfort due to radish being a cooling vegie, ginger slices can then be added in step 2.
My mother has seen major improvement after only few attempt, she can now comfortably chew on almond nuts too which she never did for a long time. We like to give thanks and hope by the sharing of this wonderful recipe, many others could benefit from this horrible experiences.
The antidote I did take to counteract the effect of the these b vitamins etc was taking the supplement SAMe. SAMe is the best supplement to use as a methyl donor and also quickest to rehab with.
I need to address the methylation cycle in order to get the building blocks to a complete cure.
B12
★★★★☆
We have also noticed that here in TX where we live, when the seasons change from hot to cold-- it flares up. Every October is when it changes from hot to cold, and she has problems with it then and then again when it starts to get warm. We are wondering if the barometric pressure has something to do with hers acting up. She has had it for a long time now. She first noticed it after her teeth were pulled and she got dentures.
She recently added fish oil to take also to see how that works with the B12. If we see more improvement with that added to the B12, I will post again. I hope this might help others. It hasn't cured it, but it has helped.
For a long time, I was mystified why I was getting a migraine headache. I have really been bearing down hard in understanding the cause for the past 4 years. I tried many migraine remedies. There have been many myths about migraines especially blood flow which compounded the problems. Researches have found migraines emanate from the brain stem somewhere. Not inside the brain.
The tried the standard remedies b2, B6, b5, magnesium, bromelain, butterbur, q10, ginger root, feverfew to no avail. I found magnesium and b2 worked to some degree but not enough so I even experimented with the coenzyme B vitamins and methylation cycle problems which were dead ends also. I still had not much control over my migraines.
It wasn't until I went to a chiropractor that I started to peel away at the cause. I found the chiropractor treatments worked some but I still had problems. Doing the treatments helped me understand that tightened muscles aggravated the condition which made sense why magnesium helps many people.
I also noticed the pain receding over the right eye to the side of my head with chiropractor treatment. I thought it may be an indication that I may have trigeminal neuralgia although I didn't have the shocks.
Over time the pain would recede to the C2 area of the spinal column. That was the proof I needed to diagnose occipital neuralgia. From there I was able to dig deeper. There had been some opinions that occipital neuralgia could be caused by herpes virus so I started focusing on the neuralgia aspect.
A few years back I pondered the possibility that it could be herpes caused so took some lysine for a couple days but that didn't put a
dent in the pain so assumed it was not the cause. I investigated herpes further and came back to lysine which I gave up on earlier. Also I added vitamin C. I found that the lysine helped a lot more. Without the chiropractor treatments and magnesium at same time also, it would have been hard to untangle everything.
I finally realized my migraines were caused by occipital neuralgia which in turn is caused by herpes zoster. also it was the root cause of the chronic meningitis I have had on ocassions.
I have had low level chronic shingles my entire life but they don't break out in skin eruptions like most people but just a little tingling on my the skin.
I ignored it most of my life since I was overloaded with a zillion other worse things. I did take a homeopathic formula for shingle 15 years ago that helped a lot with tingling but never touched the migraine.
I have had ME/CFIDS essentially my entire life. I am 60 years old. The virus is very aggressive in me. The heart of ME/CFIDS is that it is at it's root an encephalopathy disease so had difficulty untangling it from that.
I have gone to another chiropractor before this and he wasn't really able to help me but he wasn't as equipped as the other chiropractor who used a proadjuster. I have come to realize why my trapezium muscles tighten hence I can easily relax them myself on my own.
The point to this story is that I had to peel away at the problem to understand what the underlying cause of my migraine and eventually neuralgia was. The other point is that a chronic migraine could be caused by an underlying infection.
By the way, I have been using a Terminator 2 Zapper.
Acupuncture, Multiple Remedies
General Feedback
Trigeminal Neuralgia issue...
In studying TN, the problem you are having and ask about are very likely an extension of the TN.
Anita, if you read any of my recent posts I talk a lot about my theory that virus is behind a lot of mystery diseases.
I use colloidal silver mixed fifty/fifty with DMSO (google "youtube Dr. Jacob DMSO 60 minutes). If I had TN (like Bells Palsy) I take a white cloth and apply the mix to the affected area. I might use a greater amount of the water based CS, because the DMSO can sting. The idea of such a series of applications is that CS (and DMSO...an anti inflammatory too) can kill virus. Thus, IF the TN is viral based, then perhaps it could be arrested by apps of poultices with such a mix.
That's my theory on TN. That is what I'd do if I had TN.
Alkaline Diet, Peppermint Oil
Re TN and using DMSO and colloidal silver...
You ask how long should the treatments be used? Well, I mention a number that I'd use to see if the formula would bring relief. You are certainly perceptive in your understanding of DMSO. DMSO has been a "friend" for twenty years. It is anti inflammatory so by itself (as you mention) it could give some relief and also DMSO is an anti viral or so I've read. But I use it with CS, knowing that CS definitely kills viral infections. So IF TN is viral based, then (like Bells Palsy) in theory the TN could be helped with a DMSO/CS poultice.
I'd apply three times a week for a few months...or until the symptoms are gone. AND, I would drink the CS (without the DMSO) .... two tablespoons three times a day for a few months to make sure the virus is killed in the system. Take the CS orally on empty stomach.
Homeopathy
★★★★★
DMSO
You may want to look into high dose thiamine in the TTFD form. See Elliot Overton's article
B12
Vitamin B Depleted by Flax Seed Connection
B12, Omega 3, Facial Tissue Stimulation
★★★★★
In cooperation with 2 friends of my parents, a doctor and a physical therapist, we did a lot of research and ended up with a combined treatment of stimulating and strengthening my facial and neck tissue and high doses of B12 vitamins and omega3.
In addition I started on an extensive, but non straining exercise program to regain my overall health wich had suffered from years of severe pain that often prevented me from doing anything for days or sometimes weeks on end. I also dropped the regular medication since the side effects were so severe they were a problem in itself. Although my recovery was not speedy, I started to notice improvement after about 3 weeks. The pain was still a prominent factor in my life, but was less and less out of control. After about 2 months, I had a virtualy painless period that lasted for about 2 weeks and a half. This may not seem like much, but to me that was the first real painless period in 2 years. The pain came back, but from then on periods were shorter and the pain didn't peak as often. After about 6 months, I had gotten to a point where I could start picking up my life again. severe pain periods only occured about once a month or less and only lasted 2 to 3 days. Verry mild background pain was still present though. I continued the treatment and am now virtualy pain free, not needing the facial stimulation treatment and on far a lower dose of B12 and omega3. If I do feel pain comming up again, it is never as severe and it is enough to up my daily dose of B12 for about 2 weeks to be completely free of symptoms.
★★★★★
Ear Infection as Possible Cause
Would like to mention another condition to watch for,
DUST MITES. Make sure your living areas are as clean and free of dust as possible. Dust mite excrement is HIGHLY allergenic. Dust mites are especially prevalent around pillows, bedclothes, couches etc. because dust mites (microscopic insects) eat human skin that is constantly flaking off our bodies. Since pillows, matresses, couches etc. expel air from inside when lain or sat on, dust mites and excrement (gross huh?) are blown right into your nose and mouth to breathe. Since your nose, mouth and ears are the gateway to your brain and nerves, dust mite excrement can cause Urticaria (hives) and other disorders that can cause you serious problems that many people don't realize (i.e. mysterious pain that appears suddenly and then goes away to appear again later such as hives and TN). I carry Prednisone in case of hive attack which can blow up my face and scalp like a balloon. So don't dismiss this as cause of a cluster headache.
One more thing also, when you feel your TN coming on, if you are able, remember what you did, breathed and ate for the last hour before the seizure started and write it down including using and breathing chemicals, being in dusty areas and vacuuming, especially, and what you ate or drank during that hour, or some action that you have performed before that may cause the attack. You may discover something very interesting.
PS ALWAYS wear a dust mask or wet bandana over your nose and mouth when vacuuming as the machine expels exhaust air into the area and still may contain microscopic matter.
So Dear Fellow TN sufferers,
I am going now to insert my antibiotic ear drops (not cream, won't go down where it needs to go that the doctor may not be able to see), flush my nose and use nasal spray and take a Paracetamol. I let TN slip up on me again but doing this I haven't had an attack lately....
Cold Laser
I began many of the strategies suggested by many of you on this site: Biogetica, increased magnesium, diet, Vit B, bolstered my immune system, prayer, meditation. I think these strategies were all helpful as I believe in a holistic approach and I am grateful, for that reason for this website.
Now it is I have some important input to add. There has been mention of cold laser therapy, and especially for those of you suffering from a form of TN referred to as Post Herpetic Neuralgia there may be good news. I have researched Cold laser therapy which is also referred to as, Low level laser and found that although there is some dispute as to the efficacy of cold laser there is growing agreement as to its benefit in pain reduction with specifically nerve pain. The Trigeminal Nerve is the chief sensory nerve of the face which is why it causes so much havoc many of you report but the good news is that it is relatively superficial- which is to say easy to get at. It does not hurt, it has a slight warming sensation. The probe does not touch your face but rather is held 1/4 to 1/2 inch off the skin. It cannot harm you. With a class 4 laser you wear protective eyewear.
So, here is what I did. Using a protocol I heard about as a baseline that treats an hour a day, 5 days a week for three weeks (total 15 hours), I found a nearby Chiropractor who was willing to treat me with a Class 4 Cold laser following the nerve pathways of V1 and V2 . ( I printed out a schematic of the Trigeminal and took it in.) His laser machine runs 8 minute programs for neuropathy and we did two 8 minute treatments at one session and later added a third 8 minute session for a total of 24 minutes for a session. I went twice a week for 2 months and then tapered off. It has been 6 months now and I have had a total of 8 hours of treatment and I am pain free. If I do have a few 'hits' I go get a treatment. Yes, I still take 600mg of gabapentin but have been able to dose down and hope to reduce more after the cold weather has subsided. I experience weeks as opposed to days without as much as a twinge. I just went to the dentist for the first time in two years for a cleaning without a problem. I can brush, floss, eat, talk and move my upper lip and have not had a major 1-3 hour pain episode for 6 months since beginning the laser treatments. I probably began to feel the more lasting results at the 5-6 hour mark. If I had lived closer I might have gone more often.
According to the current FDA standards, an FDA cleared cold laser addresses 4 main issues: Chronic or Acute Pain control, Inflammation reduction, Increased blood flow and Accelerates healing.
So, if it is you want to give Cold laser a try here are my recommendations based on personal experience:
Locate a Chiropractor, Physical medicine clinic, Dentist etc. who offers Class 4 Cold laser treatments. Some may already have a protocol for TN. Many of you are aware of the M Beach clinic as well- (although I bit pricey)
Plan on having several treatments as I found it is not a magic-wand-one time only fix but rather has an accumulative effect and so several treatments are necessary.
Negotiate a price since you will need several treatments.
Stay hydrated.
Maintain all the things you have been doing. Supplements, homeopathics, hot packs, patches-- whatever you do that provides comfort.
Keep a journal to chart your progress.
Lastly, a resource for those who want to learn more about lasers is: COLDLASERS.ORG The site will educate you about lasers for pain management and how they affect the healing process. Especially for those of you who have had a viral assault or inflammatory process. I wish all of you who are experiencing this painful condition progress and blessings on your healing journey.
To your healing, Lindajb
When your bite changes it can compress the trigeminal nerve. Neuromuscular dentists balance your bite and relieve that pressure.
Acupuncture, Multiple Remedies
Acupuncture, Multiple Remedies
Coconut Oil, Fish Oil, Magnesium, Cell Salts
Alkaline Diet, Peppermint Oil
The paper gives a theory as to causation althought not a remedy. My suggestion is as follows which will kill viruses of all kinds.
A person who is seeing cases of mono, ear infections, sinus infections, cluster headaches, migraines and Bells Palsy might see this type of TN infection also. I gave my own personal experience in the Earth Clinic Bells Palsy thread. I futher hypothesize that hormonal issues may be a triger to the viral activation which might explain why females are more often effectd than males.
A possible attack on the TN virus is to use a topical application of fifty drops of colloidal silver and add ten drops of DMSO to make it penetrate through the skin into the nerve. Apply as a poltice with a white paper towel and let it sit for fifteen minutes. Press against the paper towel to be sure the liquid absorbs into the skin. Be sure to use a white paper towel and do not have any other substances on your fingers. (The DMSO is a carrier, solvent and penetrant. ) Do this procedure at least six times over a two day period. In theory, the silver will kill the virus. Same procedure for Bells Palsey. Shingles too. God bless.
I have had this pain for 2 years and had teeth pulled. A month ago I quit chewing foods like crackers, meat, etc. as it would start the pain. I would wake up pain free until I had something I really had to chew.So I went to soft foods and it helped a lot.
The DMSO is a God send. Some people are afraid of DMSO, but I began using it back in 1981 and have used it often over the years for other problems and it has always cured them. My blood tests to this day are normal.
Recently I added the B-12 and B-1 mentioned here, and I will continue with it especially since I am almost a vegetarian now, only eating fish and need those vitamins.
As for using peppermint oil, yes, it works, but touching your face with it causes pain, and so when the affects wear off you are in worse pain. Same with Tabasco Sauce or Cayenne. I believe, in spite of what my doctor said, that you should not agitate it by touching or chewing hard foods. This is only my own opinion. The DMSO being in a roll bottle doesn't hurt for some reason. Also I go to the Farm Supply to buy it because theirs is stronger, and they will tell you that it is animal grade and not for humans, but hey, they use it on Thoroughbreds and they don't want their animals harmed. Again, this is my own opinion, but I could never get DMSO from other sources to work for me on anything. And like I said, I have been using it for 40 years.
Alkaline Diet, Peppermint Oil
In answer to question on how often to use...depends on how long condition has gone on and how severe the outbreak.
Normally, I'd try to use one poultice every other day for a week...then if some success, once a week for a month. If benefiting, I'd do it once a week thereafter for six months. I contend the condition is an infection and infections can go into hiding (virus especially so...read about them online), living in limbo inside our cells. So the continuous use of the CS/DMSO cream poultice must be regular and immediate at any sign of a new outbreak.
DMSO
DMSO
Upper Cervical Chiropractics
★★★★★
I was trying the oral B12 B complex (the active forms) but after awhile, the shocks started coming back quite alot. I am back on injections for now, which seem to help completely. But I have also found that going to a upper cervical chiropractor may help many people with TN. It helped me immediately.
The upper cervical chiropractors are highly skilled in the spine and neck regions. A slight adjustment (hardly noticeable) puts your neck straight and then the spine follows. This allows the nerves to work properly and must have moved my nerves off the wrong portion on the skull where the Trigeminal Nerve lies. All I know is that it stopped the shocks. I have to be careful what I do to my neck now, and I follow the doctor's advice. I will still take the B vitamins, but because of a malapsorption problem, my body just doesn't assimilate it as well as it could. It maybe a year before my body heals from the gluten I have been giving it. I am very gluten intolerant and that can cause your body to have problems storing and activating nutrients.
Look up NUCCA, which stands for National Upper Cervical Chiropractors Assocation and see if you can find a referral list for one in your home area. Then don't wait, but go. It is the best decision I ever made. There is no painful period afterwards, either, as you hear there is from osteopathics. Just relief... Some people may take more than one adjustment for total relief... but I think it works great for this affliction.
B12
Even though our posts are anecdotal, we can learn so very much from this. So again, Thank You Deirdre for creating this marvelous forum!
B12
B12
Alkaline Diet, Peppermint Oil
Please take a look at what I suggest. I did cure myself of shingles by using this method.
The idea is that something prompted the infection... maybe dental work or a serious sinus infection. And you'd have a clue as to this possible source if you can go back in time before the onset of your symptoms and if you recall a few months/six months or so prior to symptoms, if you had some dental work or a serious infection. That's a clue that indeed the problem might be a virus.
Diet
Multiple Remedies
General Feedback
It looks like no one has replied to you, and since you're in dire straits I'll try to give you some information which unfortunately is not from first-hand experience until hopefully someone else replies.
First , to your question, here's a good medical description of true TN:
Physical damage to the nerve caused by dental or surgical procedures, injury to the face or infections.
Here's the trigeminal (aka semilunar) ganglia, splitting to each side:
http://img.medscape.com/pi/emed/ckb/neurosurgery/247017-1505614-248933-1879073.jpg
More images of same:
http://www.bing.com/images/search?q=TRIGEMINAL NERVE&go=&form=QBLH&scope=images&filt=all
I assume you are in too much pain to try things like oil-pulling, or even swishing some colloidal silver around orally?
It is very likely that you have nerve trauma, not an infection, and that the pain should decrease slowly as the nerves heal and rejoin. To that end, and I realize you may not be able to eat much if at all, you want to speed up the nerves healing with a few nutrients:
Can you afford, or do you even have access to, a naturo who can give you Vitamin B12 injections by needle? This is used by people with nerve problems, like MS patients and people with TN. If not available or too expensive, can you get a bottle of B12 sublingual 1000 ug or even 5000 ug tablets?
Do you have a basic lecithin supplement handy, in any form like granules, capsules, or bulk container? It has a small percent of sphingolipids in it, which are important in forming the nerve myelin (outer insulation sheath).
The above 2 will require NO chewing action, very important.
Hopefully it needs only time and nutrition to heal, since any oral surgeon doing additional work cannot guarantee that you won't be worse off than when you went in.
It would be good if someone with first-hand knowledge could reply to you while you're healing.
General Feedback
★★★★★
He also has a website if you google Dr. Allen Sprinkle in Arlington, TX. He's a very kind man and if you e-mail or call for him he's usually very quick in responding.
Don't be discouraged that he's not in your area. He may be able to refer you to someone closer as there are other practitioners of the Omura Protocol around the country. I pray for you that you are well on your way to healing and like I said I am glad to answer any e-mails or questions you may have.
General Feedback
In my case the surgery to my jawbone activated this virus and it travelled internally (I didn't have any external shingle sores) deep into my jawbone and ear. The pain was beyond anything I had ever experienced. Again, I am more than willing to answer any questions and I hope for anyone suffering with this disease that you find relief here. God Bless :)
General Feedback
Supplements
★★★★★
★★★★★
★★★★★
