The comments below reflect the personal experiences and opinions of readers and do not represent medical advice or the views of this website. The information shared has not been evaluated by the FDA and is not intended to diagnose, treat, or prevent any disease or health condition. Always consult a qualified healthcare professional for medical concerns.
Peppermint Gum
Posted by Michele (Oak Hills, FL) on 12/07/2006
★★★★★
For the Trigeminal Neuralgia heading, I wanted to mention that I've had ATN (constant pain in T2 and T3) for nearly three years due to an incompetent dentist. Prior to diagnosis, I was trying all kinds of things to stop the pain. I discovered just about any kind of peppermint gum (preferably the kind with a hard shell initially) will stop or greatly reduce the pain within a minute or two. As long as I can taste the peppermint flavor as I'm chewing, the pain is reduced. As the flavor goes away, the pain comes back. Now that I've been diagnosed and am on medications, I still chew gum in the afternoons when the pills decide they're not going to work anymore! This is very helpful when I'm driving somewhere and would prefer not to cry. Oh, peppermint flavored mouthwash does the trick, too. Do some major swishing for at least two minutes, and afterwards, your mouth will feel a lot better.
B12, Omega 3, Facial Tissue Stimulation
Posted by Martha (Baltimore, Maryland) on 10/18/2008
I was wondering what kind of exerciese you did, how much b12 and fish oil did you take. I have TN and looking for alternative treatment. Docs not put me on meds and after reading about them I really don't want to go there.
B12, Omega 3, Facial Tissue Stimulation
Posted by Patty (Brockton, Ma) on 06/14/2011
★★★★★
b12 is important so is Krill but what I found that got rid of TN "face pain" after 40 years was Cervical Chiropractor. thank God I tried the Chiropractor!!
B12, Omega 3, Facial Tissue Stimulation
Posted by Sam (Cape Town) on 09/30/2017
Comment by Dave on 12/26/2014 - I totally agree with you that TN probably has a viral connection similar to Shingles. I wish some research would be done into this. My mother has had TN for 15 yrs and when I had Shingles a year ago, the commonalities were so obvious. It is an area that needs investigation.
What has helped my mother is Complex Vit. B injections weekly. If she misses a week, TN is back with a vengeance. Vit. B is water soluble and it not stored in the body. The other very helpful thing is natural GABA - NOT Gabapentin which is a pharmaceutical version that can be addictive and has other downsides. Be sure to get an unadulterated form of this naturally occurring Amino Acid, which works in the brain to calm down 'spikes' be they physical (as in pain) or mental (as in stress)
Ear Infection as Possible Cause
Posted by Reno (Memphis, Tn) on 01/26/2017
PS to Ear Infection as Possible Cause:
This is one of the best homeopathic home remedies ever:
If you have or suspect an ear infection and can't get antibiotic drops for any reason, take a small cup of fresh warm urine, turn the affected ear sideways or lie down with the affected ear up, fill the ear with urine and pop a cotton ball gently into the ear. Try to keep the ear upright for at least an hour and keep the cotton in overnight if possible, changing the urine daily until infection is cured.
Relief will be felt soon and this really works almost or as well as antibiotics...
And, the remedy is free and you don't have to worry about running out!
Also great for use on blisters and sunburn (application method known)
medical ingredient (contains Uric Acid)
Ear Infection as Possible Cause
Posted by Reno (Memphis Tn) on 01/27/2017
P.S. this remedy also may facilitate the healing of pimples, pustules, and between the toes fungus or any external fungus. For pimples and pustules gently wash the area with water and a little body wash or gentle hand soap, rinse and pat and air dry well. Soak a cloth with urine and press it down on the affected area making sure the affected area is wet. Leave on at least an hour. Apply as often as possible until area is clear. Do not use cologne or perfume on area, and if on face turn your back to the shower when you shampoo and let the used shampoo run down your back when you rinse then scrub back with a back brush. Many pimple problems are caused by hair and scalp oil remaining on the face after shampoo. (I wish I had known that when I was 15 or 16)...
For between the toe fungus soak toes in urine for 1 hour a couple times a day if possible until fungus goes away...
Ear Infection as Possible Cause
Posted by Reno (Memphis, Tn) on 02/08/2017
Hello again fellow TN sufferers,
Here is another TN "Trigger" in case you have it. If you get chronic blocked up nasal passages and sinus blockage, especially at night while lying down or sleeping you must put a stop to this before it happens. I have found that nasal and sinus blockage evidently puts pressure on a nerve that causes TN. Also I have found (and I am not advertising) a nasal spray that works very well called Nasonex that is a prescription spray especially formulated for nasal and sinus problems. I use it in the morning and at bedtime, and another non-prescription spray during the day (Fred's nasal spray works very well, is not very expensive, lasts for months, and may work without the Nasonex). Whether it helps or not, try not to sleep on the affected side of the face as it will put pressure on the facial nerves...
Acupuncture
Posted by Michaela (The Czech Republic) on 04/03/2016
Hi there, thank you for your comment, my father is visiting the acupuncurist since November 2015 till now and it help him not much. Please what is exactly the Five point acupuncture you mentioned in your comment?
Thank you very much for your answer in advance.
Michaela, Czech Rep.
Acupuncture
Posted by Lilli Ann (San Francisco, California) on 04/17/2017
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2797593/
Above is a link to pubmed article that lists all the acupuncture points used over 14 almost daily sessions of acupuncture (versus the 2 or 3x/week that is mentioned in the article.) This protocol, along with daily megadoses of sublingual b12 (10K mcg/day methylcobalamine), high quality Omega 3 supplements, high quality curcumin (purchased in the acupuncturists office), and a daily cup of whole fat cottage cheese (sulfur?) with a teaspoon of organic almond oil, and a lot of clean, filtered water (mostly drank water only) cured my trigeminal neuralgia in 2.5 weeks! The pain has not returned at all. I have been pain free now for 4.5 months. I found the Vitamin B12 (methylcobalamine, not the other kind), cottage cheese, Omega3 suggestions on this forum!
I also made sure to not eat any foods that are considered "inflammatory".
Of course, talk with your doctor about this protocol. I would also highly suggest the book by Dr. Terry Wahls, a medical doctor who "cured" her multiple sclerosis with diet. I noticed that I did eat a lot of the things on her list.
Good Luck!
Antioxidants, NMDA Antagonist, Diet
Posted by Prioris (Fl) on 03/16/2016
Just some more detail: I take 1500 mg of taurine in the morning then wait 20 minutes and take 1 magtein capsule. I do the same before going to bed.
I take them 20 minutes apart in case they may compete with each other. I am not entirely sure but I want to be safe and make sure the taurine gets absorbed.
I do not take PharmaGABA or L-Theanine because I think it seems to neutralize the protective effect of the taurine.
I found this quote some where which may validate my logic - "They found that the GABA antagonist abolished the protective effects of taurine, confirming that the taurine protection was due to its activation of GABA receptors."
Antioxidants, NMDA Antagonist, Diet
Posted by Prioris (Fl) on 05/07/2017
I have found lithium orotate is a powerful brain nutrient. It did what taurine and magtein did but with many other benefits like neurotransmitter balancing. I took 120 mg which is equivalent to 4.6mg of elemental lithium. You experiment with dosage. There is a website called Lithium doctor which has most details on taking lithium. It also allowed me to take methylb12 and methylfolate without anxiety and jitters.
20 Minute Walks
Posted by Selina Bishop (Canada) on 01/04/2017
John, you may find that spreading the Lyrica out over the course of the day will give you more consistent relief. I was on 75 mg twice a day, and by spreading the same amount to 50 mg three times a day (same total dosage), I now last better at night.
I am also seeing a physiotherapist who is trained in myofascial release. This has also help greatly.
B12
Posted by Steve (Nevada) on 10/16/2015
Has she had Vit D3 levels checked. Lots of people with chronic pain issues are usually low in D3. 10,000 IU/day is a good start. Many hospitals will prescribe 50,000IU of D3 when levels are low. If they are low D3 can helpful on so many levels.
L-lysine
Posted by Ang (Pensacola, FL) on 05/16/2024
★★★★★
Thank you so very much for posting your experience with TN and taking L-lysine. I've been suffering for a week with horrible, debilitating TN pain in my right cheek and into my mandible under my wisdom tooth. After I read your post, I realized I was having a lot of symptoms that I get with cold sores but without any actual cold sores present. I already had a bottle of L-lysine on hand in case I get a cold sore so I immediately took some and within an hour, I kid you not, ALL my symptoms are starting to dissipate rapidly. All good blessings to you, tysm!
B12
Posted by Anon (Usa) on 07/22/2015
Sandy, so very happy for your wonderful discovery to help your daughter. Thank you for finding a solution and sharing on Earthclinic.
Wishing you and your family all the best!
B12
Posted by Om (Hope, Bc Canada) on 07/23/2015
Dear Sandy, I would like as well join in congratulating you on your effort and success in helping your daughter. I have previously read that other people contracted this disease through dental root canals and one man could not take it any longer...
So it makes me very happy. Namaste, Om
B12
Posted by Sara (Texas) on 10/15/2015
My mother has trigeminal neuralgia also. The things that have helped her most are: B-12 (METHYLCOBALAMIN) form, it is absorbed better. Do not use the cyclcobalamin form, as it is not absorbed well. 5000 mg tablet is what she uses. Also recently, trying fish oil with the B-12. No Caffeine, No sugar, No alcohol. No foods that have a stimulating effect, such as mushrooms.
We have noticed over several years now, that her pain flares up when the seasons change from hot to the cold. We wonder if barometric pressure may also affect it. Every October here in Texas where we live, when the weather begins to change from hot to cold, she starts having the pain and then it flares up again when season goes from cold to hot.
Interferon
Posted by LP (New York) on 06/07/2022
I am following this 2015 recipe for Interferon for Trigeminal Neuralgia. Are the three cottage cheese meals with Almond Oil or Walnut Oil the only meals that I should be eating during the day? Are these three interferon meals the only meals you should be eating during this time? Or can you eat other things?
For instance, if I wanted to have celery and peanut butter as a snack will that mess up the outcome?
Please advise.
Thank you,
Loretta
Acupuncture, Multiple Remedies
Posted by Garlen (Shreveport, LA) on 02/28/2015
I am only two weeks into this and am still at TN1 stage ... last night I lost my ability to speak (two minutes or so) pain was excruciating and scary. Will read up on alternative treatments ... I was disappointed to find out that my ever-reliable Endoderm patches ... made it worse ... maybe wrong placement ... thank you for your information ...
Acupuncture, Multiple Remedies
Posted by Felecia (Raeford, Nc) on 03/05/2015
I have been diagnosed with TN for almost a year now. I am on tegretal and baclaven. The pain has become so bad that it is now interferring with eating. I an not cutting up my foods in very tiny pieces so I can more or less swallow without chewing. I am trying to stick to the soft foods as well, but sometimes even swallowing sets it off. Brushing my teeth often sends me through the roof. I cannot even kiss my husband anymore with triggering the pain. I have used the hot compresses with some relief. I read your comments on the vitamins and minerals. I think I will share them with my primary care physician. I am not on any type of pain meds (narcotics) as of yet.
Acupuncture, Multiple Remedies
Posted by Nanowriter (Hotspot, Texas) on 06/28/2015
Hi Mary, try antiviral remedies for your neuralgia. Our Dave has used colloidal silver against this condition, I think. Some other possible remedies are lemon balm, lysine, vitamin C, garlic, ginger, turmeric, etc. Good luck and please let us know what works!
Acupuncture, Multiple Remedies
Posted by Steve (Nevada) on 07/27/2015
If you can find a practitioner in your area who offers cold laser therapy treatments it may be very helpful for trigeminal neuralgia.
Steve
Acupuncture, Multiple Remedies
Posted by Pris (California) on 08/06/2015
Diagnosed with trigeminal neuralgia 9 years ago. After 3 years of pain I opted for the Gamma Knife radiation. I was pain free for 6 years. Pain is coming back again so I am requesting to have procedure done again.
Acupuncture, Multiple Remedies
Posted by Elena (Philippines) on 02/16/2016
I've had this pain since 2010, but I was just diagnosed last 2014 because of financial problem. Gamma Knife was already introduced here in Philippines. But it was so expensive. It is more painful to know that I can't afford myself to be cured.
Acupuncture, Multiple Remedies
Posted by Sharon (Oregon) on 08/19/2015
August 2,2015 I fell from the top of a step ladder and smashed the corner of my eye and cheek bone on the corner of a dresser. Cut to the bone. The nerve pain is so strange. When I press on my brow my teeth hurt. The pins and needles, burning and stabbing pain is very distracting. I though I had fractured my face but CT scan said no. Now that I know it's trigeminal nerve damage I at least don't think my teeth are fractured. What do you think of Biogetica's Freedom Kit with OM13 TNeuralgease Formula? I found it here whilst educating myself on this pain. I'm sure my concussion is some of it. But the nerve pain is something else. Really feel for all of you here that are experiencing this. ugh...
Acupuncture, Multiple Remedies
Posted by Dave (Fountain Inn, South Carolina) on 11/07/2015
Sharon...I have been condensing the condition is virus based for years. If me I would try topical applications of Colloidal Silver with DMSO ...50/50. Every other day for two weeks. If I'm proved I'd continue for two months and begin consuming two tablespoons daily. For a year.
Acupuncture, Multiple Remedies
Posted by Joe (Bay Shore Ny) on 01/30/2016
If anyone replies to my address please put reference to PHN otherwise I won't open E-Mail. I am the 2nd. person listed above from top .
I am currently dealing w/ Ulcer and did my usual reading, treatment , diet , exercise etc. that may help , as it turns out I've been here before regarding Vitamin B12 .
My PHN developed 6/2013 and still continues, as it continues I'm noting the pain is less frequent and severe , I've tried most any med along with sleeping w/ a cold compress placed on head . I fashioned a water / ice bag to fit the contour of area placed . I lined it w/ a plastic bag to avoid any leakage , apparently minerals found in water supply ate through the first bag causing me to wake from the H2o Dripping , that doesn't occur w/ lining of bag .
After reading about Ulcer Remedies / Help there was a mention of Vitamin B12 , the Methylcobalamin type , there is another B12 , the Cyancobalamin type , that converts into Methylocbalamin , I first took a pill ( Methy type ) last night 1000mg upon waking this morning , the V5 Upper Branch Trigeminal Nerve Pain was less than the most recent past ( THANK GOD! ) here it is 14 hrs. later the Nerve Pain is still " in check " .
I can only surmise the Cold Compress I put on head nightly lessens most any inflammation of any affected blood vessel close to skin.
Acupuncture, Multiple Remedies
Posted by The Clyde (Ohio) on 07/12/2016
I read your letter. My thoughts were the same, suicide. It is stated in the bible thy shall not kill thy self. My thoughts were the same, I could not figure out how to keep my soul from burning in hell. Brother/sister, all I can tell you is welcome to hell on earth. Now let's team up and kick the thoughts of suicide, and hells together. I am at 14 months of 24/7hours of pain everything from face, top of head down to c-6 vertabea. This tries to help macaroni salad with spinach & soften the broccoli with steam mix in big bowel eating calms the pains. fruit salads with red grapes watermelon cantaloupe pineapple and salted light.
Acupuncture, Multiple Remedies
Posted by Mages (Malaysia) on 07/13/2016
I lost a loved one who suffered from trigeminal neuralgia disorder for 6 years.
The neurologist prescribed all the medications listed and it did not work. At the beginning stage the pain was bearable but just recently in 2016 the pain was so severe an uncontrollable.
He had not alliterative choice but to seek for a surgery which was his last desire. With fear he did his surgery hoping to come home and go on with his life as a normal guy.
After operation he was in the ICU for 8 days not recovering. in a coma. His hands started turning blue.
He passed on 5/7/2016 not recovering, At times I wonder should he have not gone through surgery.
But he was in so much pain.. He took a gamble in life. I am so devasasted
Acupuncture, Multiple Remedies
Posted by Patz (Tennessee) on 07/18/2016
Mages, I am so sorry for the loss of your loved one. I just want you to know that you have helped me and probably many others by telling your story. I was already against the medicine and also the surgery. I have heard mostly bad about both of them. It also helped me to know that his pain wasn't so bad in the beginning.
I was diagnosed sometime in the past year. I didn't believe it at first b/c my pain wasn't as bad as people described and also b/c it had come on gradually. I also have a horrible balance problem which has never been corelated with TN. Then I began to believe it when my pain worsened quite a bit and was brought on by drinking cold milk too fast. My pain was also much worse last night when trying to sleep. After sleeping a few hours I awoke to throbbing pain all over my head which felt like my brain had swelled. I am still not sure I don't have a tumor even though the neurologist says I don't after an MRI. I didn't have the contrast dye and wonder if they can tell for sure.
Your post lets me know to vigorously search for the right answer and to not spend time on anything else. I am looking into methyl-b12 and trying to learn all about that possibility of healing.
Again, I am so sorry for your loss and I see that it has only been two months. Thank you.
Acupuncture, Multiple Remedies
Posted by Robin (Montreal, Canada) on 10/21/2016
I hope you tried acupuncture. I am sure you have excellent practitioners in the Philippines.
Thankfully, I have a mild case that seems to go away with Advil, an anti-inflammatory but it could get worse so I want to get ready! I am taking vitamin Bs which are good for the nervous system (nerves in the body). And I am also taking B12 under my tongue which I hope will help, too.
Good luck to you.
Robin in Montreal
Vitamin D
Posted by Bee (Vancouver, Bc) on 07/14/2015
Hi Jes,
I'm so sorry I never saw your message before. I am the original poster of this thread and I can say that 1 year later, I am still living free of trigeminal neuralgia and all MS symptoms. If I lower my dose or forget to take my vitamin D for a few weeks I can feel minor symptoms returning (like pins and needles etc) but all I do is simply up my dose a little again and all is well. I can't imagine what my life would have been if I hadn't found this. Research vitamin D! It's a cheap cure and it that is why it is not promoted by Big Pharma. They'd rather you take their meds for the rest of your life. This cure will work for anyone with neuro symptoms, MS or trigeminal neuralgia due to demylination. If anyone has any questions feel free to email me - bee_mcc (at) hotmail (dot) com.
-Bee
General Feedback
Posted by Anita (Fayetteville, Arkansas) on 06/10/2014
Trigeminal Pain: I get the icy cheeks, pain in head... But does anyone get the very sore head - scalp where I can't even find a good spot to sleep because of the soreness on my scalp? Is this TN also?
General Feedback
Posted by Kathy (Macomb, Il) on 11/29/2015
It could be. I have found that sleeping with head elevated keeps flare ups down. The blood vessels in head are blood engorged and increases pressure on nerves, causing them to fire off. Try it
The coconut oil and cell salts are so far reducing flares.
Trigeminal Neuralgia Diet
Posted by Frank (Birmingham, Mi) on 02/11/2014
I am a patient advocate with the Trigeminal Neuralgia Association. I would like to bring attention to a recently discovered diet for stopping TN pain. Patients in 10 countries became pain free by dramatically reducing the saturated fat in their diet. Dr. Narayan Verma at the 2012 Annual Meeting of the American Academy of Neurology, presented the results of a 14-year study establishing the efficacy of this therapy. Dr. Verma is a professor of neurology at a medical college, in private practice, listed in Who's Who, and authored 70 peer-reviewed papers. Failed percutaneous procedures, radiation, or the MVD surgery do not necessarily reduce the diet's effectiveness. It takes less than a month to know if the diet is effective. For a 10-page report with diet instructions, the amount of saturated fat in 140 foods, and recipes, email a Post Office mailing address to (
[email protected]). The report is free to any country. The American Heart Association recommends this diet.
Binaural Beats
Posted by Tj (Indiana) on 11/08/2013
★★★★☆
I've been dealing with TN for over a year now. During a recent episode, I downloaded a free binaural beats app to my phone that included a pain killer/healing track. It has been incredibly helpful in easing the pain enough that I can function. I don't know whether it really works or if it is a placebo effect, but as long as it lessens the pain I'm willing to keep using it.
Coconut Oil, Fish Oil, Magnesium, Cell Salts
Posted by Pain In Seattle (Washington) on 07/26/2013
★★★★☆
Hi. Bless you Donna for sharing with us the information about Cell Salts and how they helped you.
I am only 2 wks into the Upper Cervical chiropractor and about 10 days using the cell salts. For some days I have no shocks, for other days, I have 2-3 tiny shocks a day. Big improvement over the agony of episodes that wanted me to end it all sometimes.
Most of the time I go to the upper cervical chiropractor, I don't even need adjustments--unless I have been exposed to something that causes a subluxation of my "atlas" bone in the neck. I can see how I will be symptom free almost every day, very soon.
I strongly recommend the cell salts and the upper cervical chiropractor. It takes an average of 3 months for most people to respond with a 90% symptom free time, with the upper cervical chiropractor, so needing some help with pain (in my case) is advisory. The cell salts help greatly with this.
I also wanted to add something about the LaserMed center in south Carolina. It works with healing the Trigeminal Nerve and has something to do with the DNA in the nerve. I have closely followed the research of doctors all over the world, coming to Florida to do research on TN and they are also thinking it has something to do with the DNA in the nerve; why do some people have such pain and others do not? They believe they will have a cure in less than 8 years.
BUT until then, Upper Cervical Chiropractor has shown to be an overwhelming success with people who have TN. (90% of the time. ) But you do have to go and get checked every 3 -6 months after you are symptom free to make sure no new subluxations that can fray those nerves, occur.
Coconut Oil, Fish Oil, Magnesium, Cell Salts
Posted by Donna From Alaska (Europe) on 05/27/2014
Hello Marie, I am so sorry to hear you have been diagnosed with TN. This site has helped me a lot and I am in touch with some who have tried my 'formula', which I have basically developed from reading different forums and trial and error. I have been pain free for 16 months since going to the laser center in South Carolina, and though I definitely feel it has played a role in my cure, I am not advertising for it. Some have not been helped. But what I strongly recommend is some serious B12 therapy now, shots if you vacant get them and sublingual B12 5000-10000 mcg of methylcobalamin. You really can't overdose on it. Also coconut oil, fish oil, omega oils....you need good fats. Also a lot of magnesium...I take 1000 mg daily of magnesium with SRT. And it totally believe in cell salts, also known as homeopathic cell salts....KaliPhos, FerPhos, MagPhos and CalcPhos. A health food store or naturopath can help you find them. A mixture of four of each in a bottle of water and sipped throughout the day. If you would like to write me my email address is
[email protected]
Coconut Oil, Fish Oil, Magnesium, Cell Salts
Posted by Prioris (Fl) on 03/22/2015
Have you considered that your neuralgia could be caused by an infection like herpes zoster that infects the nerves ?
I have occipital neuralgia and that is what is causing my neuralgia. This isn't something a doctor can actually prove either. I don't experience shingles outbreak on my skin either. Just tingling. I have a highly active immune system.
Colliodal Silver, DMSO
Posted by Tailend (Chennai, India) on 01/01/2013
Myself, aged 76 suffering from TN read an item about treating with colloidal silver and DMSO. Is it possible to get detailed procedure about this from illustrator. God bless.
Alkaline Diet, Peppermint Oil
Posted by Jana (Australia) on 07/16/2014
Provided that its primary cause is a single, active DNA sequence in the persistent but non-integrated genome of latent herpes simplex virus type 1 commonly observed in a few infected A-delta nerve fibers in the cheek, the above protocol using COLLOIDAL SILVER (topically and orally) would work. Since we are dealing with virus, I also strongly advise to use orgone zapper (known from Dr. Hulda Clark's studies). I have been using zapper on myself and many of my patients for over 15 years with gigantic amazing results.
Alkaline Diet, Peppermint Oil
Posted by Rosali (Mumbai, India) on 05/07/2012
Peppermint oil gives you instant relief but you will have to address the cause of trigeminal neuralgia for complete relief. Here the problem lies in the nerves. One will have to decrease their sensitivity and also help them in strengthening and calming. One can try Biogetica essentials kit with HMYLN myelin sheath sarcode formula to relax the nerves and to improve their motility.
Alkaline Diet, Peppermint Oil
Posted by Swati (Netherlands) on 04/20/2015
Hi My husband suffers from Trigiminal neuralgia. Could u let me the above mentioned supplements where can I order them.and are they helpful in Trigeminal Neuralgia. Plz do mention if it has any side effects. Thanking u in adavnce, Swati
Homeopathy
Posted by P From Tacoma (Tacoma, Wa) on 04/10/2012
Dear T. Smalls, I have been on the Biogetica.com herbs for about 2 weeks. Pain has gotten worse with pain meds --up to over 1200 mg of Trileptal and sometimes still get really bad pain attacks. Small shocks during the day. How long do I have to wait until the Biogetica.com homeopathic pellets work? How long did it take for yours to work? do the herbs they have help it?
Homeopathy
Posted by T.smalls (New Haven, Ct) on 02/20/2012
Hello, I owe it to God and everyone who suffers from TN to share my story. I started suffering from TN in a very mild was about two years ago. I would notice a small zap periodically when I brushed my teeth. Three dentist all said there was nothing wrong with my teeth and because it would go away quickly, I didn't look further into the pain. However, 1 year later as I was going through a nasty seperation and divorce, the electric shocking pain became a whole lot worst radiating from my L jaw to my ear. It went from jabs to 3-4 minutes of high voltage shock. I would shake for 30-40 minutes after an episode. I finally went to the ER and was given gatapatin, and perks to no relief. I then saw a Neurologist who put me on a high dose of Tegratol, to little relief, and many side effect (mood swings, depression, loss of memory) I then had surgery to sever the nerve ending which was bumping an artery. The pain went away.... For 2 months and came back 100 times worst. I woke up screaming in the middle of the night as my face was being electricuted from within. I was then places on a high dose of Trileptal, to little relief. Then I became pregnant and my Neurologist basically said I can't do anything for you stop the Trileptal due to the pregnancy...
This is when I found Biogetica through an angel on an Online TN support group site. I immediately ordered the TN relief kit and have now been pain free for 2 months straight and counting. I am so thankful for Biogetica. These homeopathic herbs work wonders. I would suggest you look into it and give it a try.
DMSO
Posted by Jasonmchicago (Chicago, Il ) on 02/05/2012
Has anyone tried the DMSO nasal spray for Trigeminal Neuralgia. I assume this is diluted... If so by how much and by what? distilled water? EC, if you know what the original author meant, pls let us know. Thanks so much.
DMSO
Posted by Dave (Fountain Inn, Sc) on 11/06/2014
Hello Brooksie,
On Trigeminal issue; if the cause is a virus, I have used DMSO with colloidal silver (50, 50) mix and applied with a white cloth to affected area. DMSO would carry the silver to nerves to kill the specialized virus (think shingles...a specialty virus or polio...a specialty virus). DMSO alone will not kill that virus.
B12
Posted by Stella (Havelock, Ontario, Canada) on 11/27/2011 4 posts
Hello: I have Trigeminal Neuralgia and this particular nerve that goes through my left cheek, is somehow affected by the Sinus just above it. I have found that Lugol's Liquid Iodine (5%) starting with one drop per day, and adding an additional drop each week, took care of all the pain by the fourth week. Not to mention many other benefits.
Bonnie in Canada
B12
Posted by Pat (Bothell, Wa) on 11/21/2011
Dear Connie:
I do not know what words I can say to let you know how much I appreciate your help. My doctor will not be in til Wednesday, and I have been having quite a few short shocks today and worried that they will get worse. I will have to wait for an injection and am not sure if I can keep affording them. They wind up being about $200 a month, so for the short term it is ok, but long term it is hard.
So I went to our natural supplement store. I did not buy what you take, since I am new at this and thought it would be hard to divide and break them apart. (the 5000 mcg) But I did get B12 Methylcobalamin, 1000 mcg that you place under the tongue and it melts pretty fast. I have taken 2 of these and will probably not take more for today.
I also got a peppermint flavored Coenzymate B complex with only B6 with 10 mg only a pill. It also contained folic acid at 400 mcg and also vitamin B12 from dibencozide (co-enzymated) and some other Bs such as ribloflavin, niacin, thiamine. I think I have enough Bs for the day and will see how I feel tomorrow morning.
I have acquired 4 auto-immune diseases since I contracted drug induced lupus a few years ago. So the no-gluten diet is helping to free me from these symptoms, but obviously not the TN. I got the lupus from an allergic reaction to Osteo-Biflex. Can you imagine that? Yes, I also have knee arthritis but have found some naturopathic remedies to heal this as well. I am a work in progress, but have learned alot about health and supplements on my road to a life with less pain. You have helped immeasurably, because lets face it, what is worse than Trigeminal Neuralgia?
Sometimes the B vitamins don't get absorbed as well because of low stomach acid. So supplementing carefully with hydrochloric acid and pepsin can help --and can aid in your body carrying the Bs to places it needs to be. Sometimes citric acid and vinegar is an alternative to the hydrochloric acid route as well.
My doctor feels that one shouldn't have to supplement the rest of their life for Trigem Neuralgia, but with Trigeminal Neuralgia, well, let's face it, vitamin Bs ain't a bad thing such as the drugs that disable your other organs. And you can know that your myelin sheath is healing in the process, which is a good feeling in itself.
I hope these oral Bs help me. I was really needing some help today and I am so thankful to God that I found this website, with someone as knowledgeable as you. Are you a Naturopath or something?
God bless you,
Pat
B12
Posted by Pat (Bothell, Wa) on 11/20/2011
Hi Connie:
The trigeminal Neuralgia has been coming back since my injections dropped from 2 a week to 1 a week. Trying now to determine if I have a malabsorption problem (I am on a gluten-free diet now-only 2 weeks) and also going to be tested for metals. ) I guess the no. of injections I have had have put most people in remission, except me.
I also found that vitamins that have high amounts of the B12 ((adenosylcobalamin), another active form, seemed to cause me more pain just yesterday. (I couldn't figure out why my pain was so much worse yesterday, until I checked out the B12 ingredients and reread your online info) So I am stopping this now.
If I start the sublingual B12, I will probably need close to as much as you do. (is that about 4000 mcg? daily-what are the mgs dose equivalence?) I wanted to ask you for the brand name of the Subliminal Methyl B12 and the B complex you take. Is the B complex subliminal? Also how long have you been taking these?
Do you have malabsorption issues too? Have you tried a gluten-free diet? Been tested for metals? Or have you tried Milk Thistle, which enhances the body's liver to absorb nutrients? Have you ever tried Homeopathic remedies for the control of symptoms? I have also heard that Ashwagandha (east indian herb for stress) greatly benefits people with this nerve disease. I know it helps me a little. It is an actual ingredient in the formula, Trigical, which I think is from Denmark and marketed that it stops the pain of Trigeminal Neuralgia.
Where did you come across the knowledge to try subliminal B12? Hope some of my comments can help you too. Is there a way we can get each others email privately?
It is good news knowing that there is hope to heal these nerves. Most traditional doctors can't agree on the cause of this most painful horrible condition. Most MRIs don't really show it and only rule out a possibility of it being a brain tumor. Who wants to go for brain surgery with so many risks and little, if any, long term relief?
Looking forward to your comments. They have given us all hope.
P
B12
Posted by Susan (Seattle, Wa) on 06/26/2013
Please Wes, tell me how long did the pain free or remission of severe pain last from the laser treatments? Your entry is in Feb 2012. We hear nothing of you since. We need to know. How long have you had TN too?
B12
Posted by Connie (Slc, Ut) on 11/15/2011
Hi Pat ; It's great that you've found relief from TN, as it is one of the most shocking of pains... Now, you've reached another hurdle, the question of whether to maintain nerve health with supplements. It's true that too much of one can disturb the balance of the others. I can only guess what you personally may need, but I'll try to help you with a method of finding this. If you have had no other signs of B12 deficiency, particularly ones such as balance problems, numbness with tingling, vision disturbance, incontinence, etc. , then you may need less than other people (such as me).
If the cause of the TN was a mechanical injury, such as dentistry, then you may be fine by continuing good dietary practices alone. If there has been chronic exposure to heavy metals, such as mercury, or to noxious gases, there may be more of a need for regular supplementation. If there is a malabsorption problem, that so many of us may have, then regular supplementation can even be a lifesaver. Although many people can take large amounts of the B's and have no problems; they excrete the excess, I have to take them in a more measured way. I take a smaller amount with each meal. I'll divide a cap of , say a B-25, and take 1/2 of that with a meal. Some of the B's, such as B1 and B6 can be helpful to nerves in the right amounts, but irritating with high amounts. I have a high need for B12, so I take extra, 5000 mcgs. of sublingual methylcobalamin every day, or I begin to suffer nerve damage. Even though there are people that need much more than I, it looks like many more people need much less than this to maintain nerve health. Some people thrive with 1000 mcgs daily, and many may find that they need B12 two or three times weekly or less. I suggest that you watch for the return of symptoms, even the slightest twinge may indicate a need for more regular supplementation.
Alkaline Diet, Peppermint Oil
Posted by Ginny (El Paso, Tx) on 11/03/2011
★★★★★
I just began getting the symptoms of TN, and began googling my symptons like crazy. I am so thankful to have come across this site. Since I knew peppermint oil helped with headaches, I decided to rub the oil all over the areas that hurt, and it does relieve the pain! I use Dr. Young Living oils or if you want to pay less you can order them from Mountain Rose Oils. (Try and get their highest grade)
I am so thankful to have come across this site, as I am totally against taking drugs. I am going to order the supplements mentioned here. I am thankful to have done the alkaline diet previously for Chronic Fatigue. But fell somewhat off the wagon for the past 6 years. I want to stop this in its track, before it gets worse, so I am back to eating greens, greens, greens, breakfast, lunch and dinner. The good part is, I will finally lose those stubborn 10 lbs I had put on. The book that helped me cure my CF was THE PH MIRACLE. Dr. Robert Young (different from the OIL Dr Young) teaches all disease comes from an overacid diet. I am hoping I have the same success with this TN that I had with CF. I can't imagine what the pain that some of you experience as mine is still mild, with electric feeling shocks thru mostly the left side. It started with a very sharp shooting pain 4 days ago, and immediately I started alkaline and noticed the pain subsided. But I still have the electrical shock thingies. (I had nerve damage on that side from surgery in 2000, but only now is it starting to act up)! Wish I had never had that face lift, LOL.
Alkaline Diet, Peppermint Oil
Posted by Aileen (Miami Beach, FL) on 06/23/2014
As I read your comment, I think of myself. I came down with Trigeminal Neuralgia 1yr and 4 months ago. I can understand why it has also the reputation of being called the suicide disease. After 4 Drs. and 2 teeth being pulled, I was told about 2 Drs at a university down here in Florida that have been studying this condition for 30 yrs or so. Unfortunately they lean more toward the pharmaceutical industries. So I am now on oxycarbapentine and carbamazepine. 2 seizure medicines.
It has made a differance in my life. I can now live normal. I too was unable to eat, talk, laugh stand up quickly, sit down quickly, exercise. I was on baby food and had lost 15 pounds. (Not good for me). Plus these damn drugs have given me an ulcer. My life had come to a complete stop the nite it hit me. I had to quit my job as a restaurant Mgr.
I love all natural and holistic remedies and cures. I would like to start them but don't know what to do first. Am scared to get of the drugs because the pain was so excruciating. ( And I must say I have a wonderful husband that did all he could do for me at the time even tho he was without understanding the problem That was a huge help. ). Looking for the natural way. Please help.
Alkaline Diet, Peppermint Oil
Posted by Suseeq (Sydney, Australia) on 10/09/2015
Dear liz, my husband had the op about about 8 years ago and it has been a godsend. Yes, he lost the hearing in one ear and sometimes gets tingles down his face but overall a small price to pay as he was in so much pain that he couldn't even stand to wash his hair. Yes, it has been worth it.
Alkaline Diet, Peppermint Oil
Posted by Ines (San Juan, Puerto Rico) on 08/21/2016
I agree with you regarding the virus theory; hence MMS can also be a excellent option. Do you agree?
Alkaline Diet, Peppermint Oil
Posted by Marnie (Madera, Ca) on 01/08/2018
Have you looked into colloidal silver and lysine supplementation?
Diet
Posted by Mw (Atlanta, Ga) on 09/04/2011
I was diagnosed with trigeminal neuralgia twenty years ago, with hours and hours of pain with each attack. I was treated successfully with carbamazipam although after read up on the side effects I became concerned about possible liver damage from taking the top dosage daily, since I did a lot of partyng in my younger days. Since the medication is an early one for epilepsy, I lurked on some sites re that disease, and found a growing number of people talking about the k factor diet for epileptic children ( a precisely measured high fat diet ) and even more people talking about "modified Atkins" for adults. Fortunately the Atkins type diet worked for me. As long as I maintain a high level of fat in my diet and very little carbs, and avoid my worse triggers, I have no pain at all. If I am exposed to a trigger, if I move fast enough any pain subsides in minutes. If anyone wants more information, contact me at liberty82645(at)yahoo.com. To go from being close to suicide to almost pain-free is a true miracle.
B12
Posted by Connie (Slc, Ut) on 06/02/2011
Hi Anna; Since I posted in both the TN and B-12 sections here, I feel I should write. When I search Earth Clinic for info, I check ailments sections, but I also use the search box because there is so much of an overlap with conditions and treatments here. I duly respect the Editors here, and I feel a little sheepish because I have not made filing easy for them. I also want to elaborate more about B-12 for you that you may best benefit from its use.
There are several ways and types of B-12 to try, and I haven't tried them all, but I'll suggest what has worked best for me. I haven't tried injectons. Some people require them even weekly. Cyanocobalamin is most often used, but it must be converted to active forms by the liver. Methylcobalamin is an active form of B-12 that is most often recommended for neuralgia. I take sublingual Methylcobalamin now daily. I divide a 5000 mcg. Lozenge into 4 parts and take a wedge 3 or 4 times daily. Even though B-12 is supposed to be stored in the liver and tissues for use by the body, mine doesn't do this. B-12 is also easily destroyed by gases and pollutants. This method doesn't make scientific sense, but it works for me. I did try another form of B-12, dibencozide, (adenosylcobalamin), another active form, but it increased the pain in my nerves, especially the mouth. I do recommend also taking a B-complex with sublingual Methyl-B-12, but try a smaller dosage to see if it is agreeable. Some of the B's can irritate nerves if the amount is too high. I don't have any more than 25-50 mgs. of B-6, for instance, as I've experienced nerve pain from it. I tried the "P5P" form of B-6 and also had pain. This may not apply to other people, but I caution people with any sort of nerve pain.
B12
Posted by Liz (Arizona) on 10/08/2015
Hi Connie - Thank you for the update. I am new to Earth Clinic and am glad I found this site. It's encouraging to see that some natural remedies have helped people find relief from TN pain.
I was diagnosed with TN in 2000. I was prescribed Tegretrol and have been taking it since then. I read somewhere on Google years ago about B12 injections but didn't have enough information it. So I chose not to try it. I did try the sub-lingual B12 which didn't seem to help, but I probably didn't take enough.
I have so many questions that I hope someone will be able to address.
- How long did you take it before you started relief from pain?
- Do you recommend a certain brand?
- How many mcg should I start out with?
- Does anyone know of a Naturopathic doctor in the Phoenix, Glendale Arizona area?
- Has anyone heard of tried Rosemary Tea and Ashwagandha Oil to help relieve TN pain?
I have suffered with this horrible disease for 15 years, but I continue to have hope and pray that the Lord will lead me to my pathway of healing. I pray for everyone who has been diagnosed TN that you would discover your pathway of healing too.