Natural Trigeminal Neuralgia Treatment

Iodine

Posted by P (Bothell, Wa) on 11/28/2011

Dear Stella:

Do you continue still with the iodine? What led you to discover this? (in other words, is it doctor prescribed?) Are you able to skip a day or more not doing the iodine and does the pain still stay away? How long have you been supplementing with the iodine? I have heard of this treatment for other ailments but never for TN, but obviously naturopathic treatments are just starting to become more public with the internet.

I am not sure if there are any side effects to iodine overdose or not. I will definitely ask my doctor about this. I am glad that you found something to help you.

Methyl-B12 orally or injections have been known to help with Trigeminal Neuralgia for a long time. Naturopathic doctors and some traditional MDs know about this treatment which does not have any side effects of overdose. The good thing about B vitamins is that your body excretes any excess it doesn't use.

Thanks for your tip about the iodine.

B12

Posted by Pat (Bothell, Wa) on 11/24/2011

P.S. To those who suffer from Trigeminal Neuralgia:

I wanted to give you the exact website url to the Biogetica. com Trigeminal Neuralgia products;

http://www.biogetica.com/cure-trigeminal-neuralgia.php?gclid=CKyLzLOI5J8CFRwUawodBCDyHQ#

I also want to let you know that with this product I bought, it worked. Traditional Medicine balks at it because it doesn't contain really any measurable pharmeutical agent; that is the main reason it is so safe. But it does work; on the principal of physics-the original agents were diluted enought times in purified water, to keep the original vibrations of the agents. Now just the "water pill" works by itself. they have been arguing about this company for ages on the website. I am hear to tell you that Traditiional Medicine only offers us terrible dangerous drugs that lose their effectiveness after a period of time. This Natural way offers you real help without the danger. I am a living witness to this; I would just like to be doing more than just masking my symptoms--so I am trying the Methyl B12 road.

B12

Posted by Christina (Sammamish Washington) on 02/09/2014

I am interested in learning more about your expedience with Biogetica for TN. Did any of the products cause side effects? Etc. Thank you

B12

Posted by Pat (Bothell, Wa) on 11/24/2011

Happy thanksgiving, Connie. Happy Thanksgiving Deidre who has given us this opportunity to frankly advise and report to each other about what can help this most horribly painful condition.

I am back on a Homeopathic remedy which does seem to help in about 3-5 days. I am also on 2 injections per week, until I get tests to see why I can't hold or absorb the B vitamins like most people.

I need to find a way to take sublinigual Methyl B12 and the B complex vitamins orally, instead of the expensive injections. I am very terribly afraid of needles and don't seem to be able to do it myself. Even giving it to myself, it would cost about $100 a month from a safe and reputable place I trust. It only costs about $20 for 2 months for the oral Methyl B12.

The doctor can't figure out why this form of B12 )dibenzocide)hurts my nerves more and wonders if it is something else in the product. But 2 different products with the same version of Active B12 hurt my nerves, so I am staying off it.

To report: my nerves are better, much better today. Only feel a little symptoms, nothing worse. When I stop feeling any symptoms, I will get off the homeoathic remedy (which has almost saved my life this past year-but doesn't really heal the problem-just masks the symptoms)

SO I need to find a sublingual B-complex that doesn't have PABA in it. I am allergice to PABA and find alot of people are as well. IT can almost put me in anaphylactic shock, so I have to not buy the same B complex you use. My doctor says to try to get a sublingual form of B complex-yeah, good luck without the PABA.

Any way, also, my doctor says it should be safe to augment my injections with 4000-5000 mcg of the Methyl B orally a day, and a B complex, when I don't get the injections that day. It can't hurt you since your body gets rid of any extra B12 it doesn't need.

I would advise people to try the Methyl B12 who have any nerve, brain, problem to help them, cause it is pretty safe.

It lease I haven't had a full=blown attack since I used the homeopathic remedies. My last full-blown attack was when I was diagnosed with TN almost 2 years ago, (in Feb)A day I will never forget.

Hope this info helps others. If anyone wants to buy homeopathic remedies that help with the pain safely, until you can figure out what med plan works for you best, then others can log into: biogetica.com. Try the $55 kit-it should last about 2-3 months--it is safe and it really takes the pain away.

Have a wonderful holiday,

B12

Posted by Bess (Calgary, Alberta, Canada) on 11/25/2011

Hi Pat - You were looking for other ways to take B12 instead of sublingual or injections. There is a B12 spray from mercola.com.

http://products.mercola.com/vitamin-b12-spray/

Also, if you do an Internet search for DMSO B12, some people have mixed the two and applied to the skin. You will need to read up on DMSO before trying this. Earth Clinic has the following page:

https://www.earthclinic.com/supplements/DMSO.html

Good luck Pat! Bess

B12

Posted by Pat (Bothell, Wa) on 11/21/2011

Dear Veerle:

You mentioned you have been taking B12 for Trigeminal Neuralgia. What kind of B12? Is it sublingual and is it methylcobalamin and what is the amount? do you take it orally or thru injections? It sounds good if it can help you back to being pain free in 2 weeks.

I need to buy some of this to have it on hand to take myself. I am also thinking of chiropractic care with the neck, since I have heard that this helps too.

Thanks, P-

B12

Posted by Lou (Tyler, Tx) on 12/16/2011

I think I have a malabsorption problem too. Have you read about Mastic Gum? It come from Chios, Greece. It has been known to cure a lot of digestive problems, which can be the source of many ailments. I took it a few weeks ago and now I am so "regular. " IBS symptoms gone!

B12

Posted by Sheila C (Brunswick, Ga) on 12/31/2011

Can someone tell me how you figure out if you have a malabsorption problem. My condition sounds somewhat different than some of the posts I have read here. I am in pain everyday. I'm not sure how you really confirm the diagnoisis? I am going downhill fast. I am trying to get into mayo, they gave me an appointment 2 months from now. I am barely functioning. I also had numerous dental procedures. I have horrible ringing in my ears.

Of course the neurologist I have seen has put me on multiple anti-seizure meds, none of them work well, but when I stop, I have one major attack after the other. I am so worried about losing my job after 23 years. This is terrifying! I went from being perfectly healthy to having so many ailments, I have no idea which ones are related. I would honestly welcome surgery at this point. How do you figure out how much of the B12 you should take? Is there anyone that has actually tried the laser med center?

B12

Posted by Debbie (Melbourne, Australia ) on 12/31/2011

Sheila, you can get a hair mineral analysis done. That should tell you whether you are lacking in minerals.

Do you drink much diet soda or sugar free foods? Artificial sweetners? Chewing gum. Processed foods? Energy drinks?

Ringing in ears is a major symptom of aspartame poisoning. There are other major problems associated with aspartame consumption. I am just throwing it out there for your consideration and to rule that out if you do not consume those.

B12

Posted by Pat (Seattle, Washington) on 11/15/2011

I have been getting the injections and the last 2 have seemed to irritate my nerves a little. they did help with the Trigeminal Neuralgia and I wonder and am so thankful that I came across Connie's entry about B6-be careful that this can irritate the nerves if overdosed.

I am off all shots and meds now and feeling pretty good so far. Time will tell. I don't know if the injections of B12 and the B complex vitamins put people in remission or not. I have had 19 injections so far and probably only needed 17. After the last 2, is when I felt some nerve irritation. I am concerned about it being a slight overdose.

People can go indefinitely without any other meds or shots for Trigeminal Neuralgia or in the case of a few, just need a maintenance dose-only 1/3 of the cases need a maintenance dose of once a week, after 2-8 months from stopping the injections. 2/3 need nothing more indefinately, I am not sure what part I will be.

I go to my Naturopath later to talk about this. I wonder about the subliminal B12 and B6 and if you are supposed to take them everyday forever?

Pat

Alkaline Diet, Peppermint Oil

Posted by Sue (Minneapolis, Mn) on 07/11/2012

If you were able to rub oil on your face I assume your pain was minimal. I could not touch my face much less talk, brush my teeth or eat when inflicted.

Alkaline Diet, Peppermint Oil

Posted by Marianne (Livermore, Ca) on 12/19/2012

Where exactly do you apply this poultice??

Alkaline Diet, Peppermint Oil

Posted by Dave (Fountain Inn, Sc) on 06/23/2014

Hello, Aileen, Re your Trigeminal Neuralgia. If you go to a thread under Earth Clinic: Ailments and then "Trigeminal Neuralgia" the very first post is my theory and possible help to solving the TN nightmare. Please take a look at it. It is a viral theory of what is going on ... same as shingles and Bells Palsy.

Alkaline Diet, Peppermint Oil

Posted by Suseeq (Sydney, Australia) on 06/23/2014

Dear Aileen I understand what you are going through, my husband suffered with this for years. He thought it was a tooth problem at first but the dentist diagnosed it, it was so good to at last have a name to this awful condition . It was so bad he asked me to help him end his life . he couldn't even wash his hair because water touching his face would set off an attack but what helped was acupuncture plus like you said seizure medication. He finally had the operation and has been pretty good since. so maybe that's the way for you to go to, there is light at the end of tunnel.So good luck I wish you the best

Alkaline Diet, Peppermint Oil

Posted by Liz (Arizona) on 10/08/2015

Hi Suseeq - Not sure if you still come to this site but I am curious to know how your husband is doing since the surgery. I've read that most people have the surgery (MVP..I think that's what it's called.) and it only made it worse and in addition resulted in loss of hearing, eyesight or numbness. If your husband didn't have this procedure done, would you mind telling me what it was? Thank you

Alkaline Diet, Peppermint Oil

Posted by Liz (Arizona) on 10/09/2015

Hi Suseeq - Thank you so much for replying! So glad to hear your husband is doing well. You're right that a little tingling and loss of hearing is a small price to pay. What type of surgery did he have? Gamma Knife? I am going to be seeing a new neurologist next week and want to discuss all possible options.

Did your husband try any alternative methods like B12 injections? I am considering that before going the more invasive approach.

Thanks for any insight you can offer.

Liz

Alkaline Diet, Peppermint Oil

Posted by Suseeq (Sydney, Australia) on 10/09/2015

Dear Liz,

I am not sure what the surgery was called, but it separated the nerves with a sponge between, well that's how it was explained to us. He also had acupuncture, it helped for a short time. Good luck. I hope everything works out for you. Let us know how it goes.

Alkaline Diet, Peppermint Oil

Posted by Alan Hudson (Homestead, Fl.) on 10/09/2015

Hey there SuseeQ...I have recently experienced complete and (so far) lasting relief from trigeminal neuralgia!

After trying many of the suggestions of the EC community...36 hours into that seemingly endless pain...I read a post on another site where a guy tried this...for the Madness of the pain...and it stopped BOTH in 30 minutes...never to return! Now folks, I have avoided doctors and pharmaceuticals for 40+ years and come to EC first to manage my health.

BUT, I took un-prescribed medication for an off-label use, on un-substantiated advise because DEATH seemed like a reasonable alternative. Forgive me..it WORKED!! I took Alprazolam (Xanax) .25mg (pediatric dose). This is a common anxiety medication. It can lead to abuse as we build tolerance quickly and can become dependent.

I am compelled to share my indiscretion because it was a miraculous end to an excruciating event. It seems, reducing inflammation that causes the trigeminal nerve to fire up...by constriction or abrasion...ends the event but not the initial cause of that inflammation. For me, the unknown cause was resolved and has not returned. It's been 4 months...in addition, I have changed my television seating and duration to avoid neck aches that seemed to precede the TG. I have read of other factors that inflame the Trigeminal nerve that may not benefit from the Alprazolam...but it is a very small dose...of a widely used medication...that costs $2......

Alkaline Diet, Peppermint Oil

Posted by Suseeq (Sydney, Australia) on 10/12/2015

Dear Alan,

I hope you can keep your pain under control. We tried many meds but nothing kept him pain free, we struggled for years to find something to give him relief as he couldn't even stand a breeze to hit his face and many a time he told me he didn't want to live, sometimes something would work for a couple of weeks but nothing lasted very long. The op was the best and he was very sick after but he improved every day.

Good luck and hope you have found the right thing for you

Alkaline Diet, Peppermint Oil

Posted by Susan Bee (Houston, Tx) on 01/06/2018

I believe it was a bad tooth infection which first caused my TN as I had a horrible infection and had to have a tooth pulled and ever since I wasn't the same. If this is a virus like you said what can I do to get rid of it? I'm dying. I want to have a normal life again.

Diet

Posted by Patti (Seattle, Wa) on 06/05/2013

Hi JsMom from NC: you said your mom was diabetic and a high fat diet is not an answer. I have heard that low fat diets help some people with Trigeminal Neuralgia too. They must be under 10 mg of fat a day for it to work, and it takes about a month to tell if it will work for you. Many have received relief from this diet. I am guessing that the fat in your diet may make the blood vessels slip more against the trigeminal nerve.

Well anyway, someone did a complete research study on this and contacted people to try this diet. Not everyone benefitted from it but many did. Worth a try. It least it is good for your heart.

B12

Posted by Anna (Buffalo, Usa) on 06/02/2011

Hello. Searching different ways to treat and/or cure trigeminal neuralgia. I see on your site that people are praising vitamin b12 for this. However, when I go to supplements and search b12 on your site, the benefits of taking this vitamin do not list TN at all. I am recently diagnosed with this and am trying to see light at the end of the tunnel. Why is that?

B12

Posted by Karen (Jacksonville, Fl ) on 05/16/2021

I was recently diagnosed with TN. I am freaking out. I had ACDF [Anterior Cervical Discectomy and Fusion, a type of neck surgery] on 26 March 2021 and was trying to recover from that and then 6 weeks after crying with this Awful pain, I get told I have TN and was given Tegretol. I do not like taking meds if I do not have to.

Can someone please tell me about this TN and if u think it was caused by my surgery?

And how can I treat this TN naturally?

Same question: Has anyone heard of tried Rosemary Tea and Ashwagandha Oil to help relieve TN pain?

Multiple Remedies

Posted by Connie (Slc, Ut) on 01/11/2011

Hi Sonia; After reading Tom's post to you and the links he provided, I realized that I have had TN, both classic and atypical in the past, and that I may be able to offer some help here. My symptoms were in the lower right jaw, and did result with shocks that made me gasp and jump. In years prior to the shocks, I had TMJ, bruxism, inflammation, and swelling that radiated to the sinus, ear, and neck areas. I've recently had a flare-up, so I've had to shift my approach somewhat. The symptoms that you describe can be called Atypical TN, although some of these neural condition terms can get technical. While there may be a little relief in having a name for this condition, we need to understand the cause. And Even though some Dentists, et al. , can worsen the problem with their Clumsy and primitive procedures, We've ended up in their chair because of health problems. ( Its certainly not that we would choose any of this. ) It is beyond my range to decide whether there's been wrong doing.

Fortunately, I can pass some info about what's brought relief from this condition. There is inflamation and there is infection. Reduce acids that are causing this. Because of Ted's posts to us here , for which I'm so grateful, I've realized repeatedly that so very much of my nerve pain, neuropathy, neuritis, neuralgia, neurosis, etc. , is a direct result of too many acids in the wrong place. This procedure is one of the most difficult ones I've tried. Its the best. I call it "acid accounting". (sorry its corny, maybe someone more poetic can improve this) Simple sugars of course are a cause, but I've had to press this much further. I'm one of the folks that has to suspend or minimize the use of ACV, citrus, citric acid, and even citrates for now. I keep finding new ones, most recently stearic acid, high amounts are found in chocolate. (sorry y'all) While we need good acid in the stomach, colon, vagina, etc. , we need to find ways keep acid in the right place, stop leaking it, and flush excess acid.

One of the kidneys many jobs is to rinse excess acid, so I recommend that we treat kidneys well. (dandelion root and leaf, marshmallow root, nettles, and lots of celery. ) Another kidney function is to balance electolytes. (there are also Other endocrine and exocrine glands that help with this, but the kidneys are a master. ) Magnesium supplementation stopped the shocks and helped much of the pain and inflammation. 6yrs ago, I began with 400 to 600mgs magnesium citrate In divided doses daily. Now Ive switched to Epsom Salts, 14 to 12 tsp. Daily. (It is 39% elemental magnesium) I also recommend a high potassium diet. Try to get 8grams daily or more. That's alot of chewing. Make vegetable juices and soups. Have some fruits with care, slow the delivery of sugars with a light Saute in coconut oil and sea salt. Get a nutrition almanac and search for high potassium foods. (careful with citric acid , high in tomatoes, simmer well. )

My best results with mouth infections have been with an iodine rinse. It may need to be rather strong, 6 drops 2% lugol's in 2oz. Water swished and held , like oil pulling For 1 to 3 minutes 2 to 4 times Daily. I also still use goldenseal tincture, but iodine goes deeper to the root. Someone posted that their TN was relieved with the herb bark called "toothache tree". (zanthoxylum clava, and zanthoxylum americanum), commonly called, prickly ash. Thanks Y'all, Connie

Multiple Remedies

Posted by Connie (Slc, Ut) on 01/12/2011

Apologies y'all, the quantities of epsom salts that I take are 1/4 tsp to 1/2 tsp daily. My typing mistake would be a very dangerous amount to suggest that someone take. Please dismiss the previous measurements for epsom salts. Thanks, Connie

Multiple Remedies

Posted by Shelia (North East, Md, Usa) on 01/23/2011

Connie, I have suffered with TN for 17 yrs. It started when I was 20. I have told people that orange juice, chocolate, and tomatos cause flair ups for me. I would like some more info on this acid thing. Thank you.

Multiple Remedies

Posted by Patricia (Bothell, WA) on 05/04/2014

Like to know if anyone has gone to the LaserMed Center in Myrtle Beach, South Carolina and has had a remission of pain for a year or more, since then? Please let me know. It is a 3 week treatment for the average cases. I am planning to go soon, so I would really like to know if the $ costly fee for the treatment is worth it. It is not covered by insurance, and of course, the roundtrip plane fare costs, unless you live in the state.

Multiple Remedies

Posted by Donna (Prague) on 05/19/2021

Hello Pat, we used to communicate on this site. I did get 6 1/2 years of relief from LaserMed, but last year it flared up again, and I have tried everything including the things I posted on this site... I'm on Lyrica now, but I still get flare ups. Just wondering if you did go to LaserMed and how you did with it and how you are doing? I have a home laser that I got through them... I use it, but haven't got the relief this time. Obviously, it is a lower powered laser. I live in the Czech Republic so traveling to the US is impossible now for more reasons than just Covid. Just wondering how you are doing.

General Feedback

Posted by Maria (Sydney, Nsw) on 05/29/2012

To Diana, from Las Vegas, Nedada" could you please disclose the website and the laser treatment for trigeminal neuralgia?" Thanks.. Maria from Sydney.

General Feedback

Posted by Marie (Woodinville, Wa) on 05/24/2014

Re: Pain Free From Trigeminal Neuralgia. Sonia, your symptoms are very similar to mine. I've been suffering for a year and half - I'm curious if you have found a cure, or anything to help ease your symptoms??

Thank you for anything you can share!

Laser Treatment

Posted by Herbert (Curacao, Neth. Antilles) on 02/08/2011

I would like to get the address of the clinic that gave the treatment with laser to cure people from TN.
Herbert

Laser Treatment

Posted by Steve (Las Vegas, Nevada, United States) on 08/12/2011

Have you tried EFT? Very easy to learn and helps with many issues doctors can't touch with meds/surgery. Energy healers? A lot of people have found pain relief this way. You can also buy your own cold laser these days for not a lot of money. I've found laser therapy pens to be very effective for relieving many types of pain. Hope that helps.

Steve

Laser Treatment

Posted by Pat In Seattle (Seattle, Wa) on 07/04/2013
0 out of 5 stars

Daniel: You said you had nothing to lose to try this lasermed treatment in Myrtle Beach. Well I tried a laser med treatment from the Chiropractor, just one, and for only 5 minutes, and have been much worse than before I went.

I am talking to the LaserMed treatment center in Myrtle Beach, and it is about $7000 for flight, treatment and a hotel room for the 3 weeks. A pretty expensive thing, but now I am even more afraid to try Laser treatment, since this one caused me so much more agony.

Do you have any insight to give me. I thought I would be able to wait another year for this expensive treatment, but now I am so much more progressed in pain. It has been about 8 days since I had the 5 minute treatment, only to the pain paths, not on the Trigeminal Nerve itself.

thanks

Laser Treatment

Posted by Steve (Las Vegas, Nv) on 07/04/2013

I know a few people that have had success treating trigeminal neuralgia with energy healing. All of the research I have seen on treating this condition with low level lasers indicates that many laser treatments are necessary to have any effect. The initial studies on this said 12 weeks of 2 treatments/week had the best effect. One 5min treatment will have almost no effect at all.

Laser Treatment

Posted by Imelda (USA) on 07/05/2013

Hi Steve, do you have any details on the energy healing?

Laser Treatment

Posted by Leonardo (Quebec) on 06/18/2021

Hello, which kind of therapist would be good for this problem (Trigeminal Neuralgia)? Thanks.

Laser Treatment

Posted by Pain In Seattle (Seattle) on 07/29/2013

Hi Daniela: you mentioned that your mother got treatment at the LaserMed Center in Myrtle Beach, S Carolina. How is she doing now? I am researching this to see if it is a viable option.

It is not covered by most insurances because it is considered experimental. It is about $5600 for the treatment and then add round trip plane fare and motel for 3 weeks and all the other things you need, it is quite a package for most people to pay and the time away from home as well is costly.

SO please keep us informed on how your mother is progressing. Yes, I did call them, and I got one reference to call me back. I am not sure why there can't be more people willing to share, if they have successful results, but there doesn't seem to be more.

I am wary about just seeing testimonies on their websites; just good advertising that is all. I want to hear more from the people who have nothing to gain but want to share how they actually got rid of the agony of TN just for altruistic reasons. So please keep us informed how your mother is doing.

I wonder why Neurologists haven't heard of this? They have heard of Upper Cervical Chiropractors though and it has helped people with TN and is covered by most insurances. So is this worth a try first? I don't know.

Laser Treatment

Posted by Karen (Weston. Colorado. Us) on 11/10/2014

How long has your mother been pain free?

Laser Treatment

Posted by Tifanie (Dothan, Usa) on 11/17/2014

Hi, I was wondering what the laser treatment was? In or outpatient? I got TN at 22 & tried everything I could find including surgery, which spaced out the pain from every 2-3 seconds to every 20-30 seconds. So not great results but better than nothing. I'd like to know if your mom is still pain free or if it's a maintenance type of treatment? Thanks so much in advance!

Laser Treatment

Posted by Yolanda (New Market, Va ) on 02/19/2015

I was diagnosed with Trigeminal Neuralgia in the year of 1998. Did not have any symptoms of this very painful #10 pain until after dentist sessions with trying to change my bite, which by the way, I was losing teeth, had root canals, etc. that these symptoms became very, very evident. After many visits to the medical profession, and research on my part, I decided I needed to see an Neurologist in Staunton, Va. who was associated with the University of Va, Charlottesville, VA, Neurological Dept., and learned that a blood vessel was leaning on a nerve. After x-rays showed this condition, I was recommended to be a candidate for sterostatic radio therapy that I decided to do.

Dec. 9,2000, was when I was admitted to the University of VA hospital for an overnight stay. There was no invasion of the skull. I was fitted with a helmet that was carefully centered and then wheeled into another room with an attendant behind a glass window. I then was placed in the next room and this beam was centered on the necessary position, asked the kind of music I liked with ear phones, for about an hour. Just this one treatment and released. After stopping Tegretol, Gabapentin, etc, I was slowly eliminating these medications.

I was pain free until the year of 2008. At that time minor disturbances with sinusitis aggravating the nerve on the side of my face occasionally but nothing like the #10 pain preceding the treatment. I am grateful and thankful that I am not going thru what I had been. I was 76 years old at that time. Every two years I had a contrast brain scan. Now I have been reading that B 12 is beneficial to patients, but since I am from the old school of common sense, I thought it is much better for the body to absorb the natural vitamins from our food intake. I am now eating fresh liver from a local butcher at least once a week, fresh caught fish at least once a week, fresh green vegetables to keep the bowels open and lots and lots of prayer, a necessary ingredient for daily life.

Laser Treatment

Posted by Brit (London, Ontario) on 03/22/2015

Is this treatment offered in Canada ?

Laser Treatment

Posted by Ellena (South Africa) on 04/06/2015

I have TN. I live in South Africa and will have have to look for a facility that uses Laser Treatment for Trigeminal Neuralgia. Please give me more info. What kind of laser treatment and what kind of clinic?

Laser Treatment

Posted by Kathy ( Ny) on 04/21/2015

What is the name of the clinic and the laser she had done? What's the name of it? Thanks, Kathy

Supplements

Posted by Bonnie (Hilton Head, Sc) on 08/26/2010

Could you please tell me how long before you noticed significant improvement? Also why do you think the Phosphatitdyl serine was the most effective? I am just now trying to get help using natural remedies.

Supplements

Posted by Barabara (Bothell, Washington) on 10/22/2012

Hi Bonnie and Carol: in regards to Phosphatititdyl Serine of 100 mg a day, it is researched on the web as helping with memory and cognition and is important in the cell structure esp. Of the brain. It improves the cell membranes so it might help with Trigeminal Neuralgia.

Unfortunately, with TN, it is difficult to tell what really helps unless it is used for a long period of time. This is because TN has periods of remission and unless something has been helping for almost a 7-8 months or a year, it is really hard to determine whether it is the treatment or just a natural remission of the disease. I have had remissions but usually only for a month or two.

So Carol, I am asking you again, if the Phosphatitdyl Serine is still helping you with the Trigeminal Neuralgia, before, I again, try another supplement for pain. It is so expensive, and I have pill bottles that I can't use as it is.

I have also found that joint supplements, such as Hyaronic Acid, seem to make the TN worse; why I don't know. Maybe in its attempt to make things more lubricated and flexible, my arteries and nerves are slipping around against the Trigeminal Nerve more. I am wondering is anyone has experienced this before?

Thanks, Barbara

General Feedback

Posted by Shawanna (Chapel Hill, North Carolina Orange) on 12/19/2009

Hello, i just wanted to let you know these post have been very helpful. My mother who is 40, is suffering from Trigeminal Neuralgia. It saddens me to see her depressed everyday! She is scared to have any surgeries done, but i hope some of these home remedies help. Again, thanks!

General Feedback

Posted by Kay (In The Valley, Ca) on 12/20/2009

Shawanna from Chapel Hill, I have a very dear friend that suffers from this same problem and has found no relief. Could you let us know what remedies your mother tries and what does and doesn't work for her. I wish her luck with this very painful, life altering condition. Thanks for sharing with us.

Setting Boundaries

Posted by Elizabeth (Buchanan, MI) on 04/30/2009

I've had nerve blocks, lyrica, tegretol, neuronton, marinol(marijuana relieves the pain temporarily), migraine meds+++ I'm a guinea pig for the pharmaceutical companies. I've had 6+ jaw surgeries and facial reconstruction surgery with 3 bone graphs which I think caused this pain.

I suffer terribly from trigeminal neuralgia. When I have an emotional upset, the pain elevates... intolerable, + extreme...I'm a very emotional person who has been suffering from the pain for 10+ years. I've been on every prescription possible with no relief and adverse side effects.

When I read your comment, I was very curious as to how much pain you have endured and how you can control not giving your power away. I do everything for everyone anytime and rarely receive anything in return. Sometimes, I think that I should live alone for the rest of my life because any conflict triggers the neuralgia pain. I should move to a remote place where I'm the only human.

Stress is killing me...or at least it feels like I'm dying slowly from the pain.

Please let me know some of your secrets to holding onto your power and not giving sooooo much.

I look forward to hearing from you....Pleeeeeeeeease!!!

I have an appoinment coming up with the U of M...costs $400+ and I don't feel confident about the doctors at all.

Thank You

Setting Boundaries

Posted by Ann (Pittsfield, Massachusetts, Usa) on 07/19/2010

Hi, Just found your comment as well as the site. I believe I am having a mild bout of TN. But as I have had a number of patients with it, I am able to hypothesize that that is what's going on with me. I hope you are doing better. I am a psychologist who specializes in helping people with chronic pain. I suffer myself from Rheumatoid Arthritis which I was diagnosed with at age 3. Anyway I cannot stress enough the importance of meditating. It is essential for anyone under chronic stress and or chronic pain which of course is a stressor. It takes a lot of guts to deal with pain but there are some important strategies that help. My best to you and your fight. Ann

Setting Boundaries

Posted by Nikki (Tampa, Fl) on 07/07/2015

This is me! I also get it when I'm indecisive. I haven't learned to stand up for myself yet, though.

Vitamin B Depleted by Flax Seed Connection

Posted by J (Houston, Tx) on 11/01/2009

Wow, it's really surprising to hear that there are some negative attributes to flax seed. Congratulations on your healing.

Vitamin B Depleted by Flax Seed Connection

Posted by Mary Perkins (Murfreesboro, Tn) on 06/21/2011

I have had the excruciating pain of trigeminal neuralgia even when my B12 level was over 1,000. I have foun trigeminal neuralgia specifically linked to the amound of saturated fat that I have eaten. I was searching for some kind of relief and came across a diet for trigeminial neuralgia. It was written by Frank Sherwood. I tried it and it worked. I went off of the diet and am home today suffering the consequences. It took about one week on the diet to reep the benefits. I was also taking about one to two tegretol pills a day with the diet. It was because I felt a flicker of pain and was afraid of a full blown attack. I have not suffered a full blown attack today because I am taking tegretol but I am not feeling well because of the medication. I am convinced that the diet was the key. I also went to the chiropractor. That is also beneficial.

Vitamin B Depleted by Flax Seed Connection

Posted by Pete (Minneapolis, Mn) on 07/25/2011

I'm glad to see this thread! Have suffered with TN for almost 5 years. Am a vegan most of the time, sometimes go into eating dairy for periods of months, tried Frank Sherwood's TN diet (strict control of saturated fats), found that it seemed to help for a number of months but the TN came back during a stressful time with less sleep a few weeks ago. Got disheartened, "fell off the wagon, " have been eating some junk food again, having more and worse attacks...

I was super strict from Oct. 3 through about three weeks ago: in fact by Jan. Was not only eating less than 3 grams of saturated fat a day, but also all raw--was living on raw fruit, raw veggies, raw seeds and nuts (mostly pumpkin seeds and sunflower seeds and walnuts, in carefully measured small daily amounts) and just enough flax to get omega 3s. No sugar, no flour, no refined anything, no cooked or toasted foods... and exercising every day until I tried going outdoors to walk in May and began having TN attacks again--partly stress/overwork/undersleep but also pollen/pollution/mold and outdoor weather seem to trigger them off no matter how perfect my diet is.

Some things I have found that help, often work miraculously are:

HOMEOPATHIC ALLERGY/SINUS TABS. Homeopathic tabs that if I take them right at the beginning of an attack, often stop the attack completely. I always need two. Sometimes they do not work at all.

SUBMERGING MY HEAD in water. Yes, literally, "soaking my head! " I fill the bathtub with medium-warm or lukewarm or cool water depending on the ambient air temp, and kneel down and dunk my head under, slowly blowing out through my nose, holding my head under as long as possible, coming up for air and immediately going under again... After a little while it often stops the pain completely. Again, not always but it works often enough to be worth the trouble and attempt.

I will try B12-maybe my veganism is causing the TN, in part! Lack of B12. I was taking more B12 during the period when I was having fewer attacks, did not realize there was a reputation for it to help with this. Just happened to slack off by chance...

Try the homeopathic tabs! I suspect TN may have many different triggers for diff. People, but for many of us may be akin to an autoimmune/allergic response to environment. Lately I feel like a tropical fish, oversensitive to the extreme to minute changes in the air. Weather really sets these off. The tabs somehow seem to help me restabilize when my trigeminal nerves start to "go postal.

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Posted by N (Tel Aviv, Israel) on 12/24/2011

I'm a 34 yo guy from Israel, suffering 'just' a year and 8 months... after a tooth filling at the lower left molar tooth.

I suffer from constant pain all day and night... It's not a life worth living. I was a healthy guy.

And although I went to tens of doctors (took neurological medicine etc. ) - still don't have a solid diagnose. I feel that saying "atypical facial pain" - is like saying - "we don't really know - we don't really care". I still feel there's something dental that's wrong in my mouth.

Also - my jaw bone at this side of the face changed during this year. It got more "pointy". Or "boney". and by touch it feels like a very small bone grew in the angle of the mandible

Anyone had that? (a slight change in thier bones?)

Don't know what it means - and what to do with the pains...:(

libcard2000(at)yahoo.com

Vitamin B Depleted by Flax Seed Connection

Posted by Pauline (Uk) on 08/31/2016

Being in Israel have you heard of NanoVibronix? If you are still suffering try contacting them about their ultra sound invention. Not cheap but interesting. I have one standing by but acupuncture has helped me in the mean time.

Vitamin B Depleted by Flax Seed Connection

Posted by Pat (Seattle, Wa) on 09/07/2013

Low Fat Diet May Fail Many for Trigeminal Neuralgia:

This is for Pete and others who have tried the Sherwood low fat diet of 10mg or less of fat a day. I tried it and I tried it for 2 months. It did nothing for me and may fail many others.

There is real facts and research about the low carbohydrate diet and how it has helped children with epilepsy. 1/3 of the children put on the diet had their epilepsy completely gone, 1/3 had it reduced significantly and the last 1/3 saw no improvement.

The Mayo Clinic called it the Ketogenic diet. However, since the advent of antiseizure drugs the knowledge about this diet became unknown; it is easier to treat a patient with a drug than to educate and motivate a family to make major dietary changes.

Well my doctor told me to try the Atkins Diet because it is low carbohydrate. Well I am willing to try anything before I have to go for surgery (ugh-drilling a hole in your brain is the top surgical approach recommended now but often fails)

So please anyone know about low carbohydrates and if it has helped you with Trigeminal Neuralgia, please respond. I know I have heard of one person long time ago, that said it helped her, but I can't find her entry.

Please let us know. Actually the diet allows veggies, salads, and some fruit right from the start, and you do not feel hungry. It increases your HDL (good cholesterol)and decrease the triglicerides.

Please share any information.

Peppermint Gum

Posted by Melissa (Chattanooga, Tennessee) on 03/25/2010
★☆☆☆☆

WARNING!

Just a word of caution for those of us with TN and not ATN. Chewing is a trigger of pain for most of us. So gum chewing is usually not advised.

Peppermint Gum

Posted by Mag (Edinburgh, Scotland) on 08/16/2010
★☆☆☆☆

WARNING!

Hi, as like what Melissa said, chewing gum triggers my TN off, so be careful, good luck though x