Top Remedies for Hidradenitis Suppurativa

While doing a little research on it, I came across a posting on an internet forum by a doctor advising people that hydradenitis suppurativa was caused by body oils that became thick and clogged pores which then became boils or carbuncles. (His explanation was better than mine as I am working from memory and it was 15-20 years ago.) He recommended taking Omega 3 oils. I immediately realized that I had been having a remission of the problem for awhile because I had been doing the Atkins diet and taking quite a lot of oil capsules on a daily basis for a year. It had been about 6 months since I stopped taking them because I stopped the diet and the boils had come back to my great dismay.

I immediately started taking them again and the problem was relieved. I have consistently taken oils since then (usually flax seed oils but sometimes fish oils or a combination) and find that as long as I get regular doses, I don't have boils but if I go for too long without it they come back. When I realize that I am starting to get one then I immediately start the oil regimen and they resolve.

I am also prone to Psoriasis or Eczema around my ears and on my scalp. I was not having much luck treating that either but it occurred to me that maybe I was low on oils again so I started taking them and it seemed to clear up. Maybe that was a coincidence but nothing else was working and it had spread all over my scalp and was itching like crazy.

I started using turmeric and magnesium yesterday for pain issues. I also take EFA's and have since my 20's. I am currently on an oral antibiotic which was given to me after 2 outbreaks where I turned septic. I had a cyst the size of a grapefruit on my buttocks. It started out the size of a grain of rice at 10pm. By 1pm in the morning I had a fever of 106 and the cyst was the size of a lime. By the time I was able to get into the doctor at about noon I was septic. This happened again a few years later. I also used ACV and zinc, not as helpful for me as other people here at this site. I don't want to add too many thing at once. So for now I see how what I added works. I would like to get off the antibiotics.

My daughter also has DS and HS. You mentioned that you know of other girls with DS who also have this HS condition - I'm interested to hear more if you know anything further of the correlation etc.

We have found HS is definitely a hormonal response to adolescence. Recently, her cycle has been all over the place together with those horrible emotional outbursts. We have removed all Gluten, Dairy, Sugar and Nightshades (tomatoes, capsicum, paprika, potatoes, eggplant etc). We have a daily protocol of organic turmeric capsules - 2 daily, VitC with Zinc, Fish Oils, Probiotics, tea tree oil on lesions twice daily and homeopathic remedies. We have reduced her outbreaks significantly now with only small lumps appearing during/prior to her cycle. These are reasonably manageable when seen early. But were looking to better this if not prevent.

I'm currently looking at a herbal mix here in Australia called Happy Hormones which helps regulate the androgen hormones - which we feel may be a large contributing factor in our situation.

I will definitely add Colloidal Silver to our mix . We can get it here in Australia in our Health Food Shops.

Thank you

I can not say it enough times on here - it is the CURE and will change your life!! Take out what your body can't digest and you will be back to normal!!!

I would like to help as many ppl as possible who have had this horrible disease - - I have this horrible disease for 3-4 years.... And I have now finally overcome it and am now living a "normal" life once again!!!

This MESSAGE needs to BE SPREAD to ALL HS SUFFERERS!!!

In my opinion, HS is a "triangle disease". HS has very obvious hormonal, endocrine and inflammatory components. I understand it completely in women. Look when women are first and/or worst affected: puberty, menstration, birth control methods, childbirth, perimenopause and finally (and more rarely) menopause. Men with HS often have very low testosterone levels.

Why do some people see improvement when they lose weight or change their diet? Besides reduction of "skin-on-skin" contact and possible reduction of sweating, what could explain this phenomenon? If we look at the endocrine "leg" of the triangle, better blood sugar control could explain it. Adopting a diabetic diet with its low carbohydrate count CAN help you lose weight as it lowers your blood sugar. I like to call a good diet the "God Diet". If God created it in nature, it's on your diet. Notice how the "God Diet" is relatively low in carbohydrates, contains moderate protein and lots of vitamins and minerals? God did not make Twinkies; we did! Being overweight does not cause HS. It is far more complicated than that. Diabetes is strongly associated with other hormonal diseases. Women who are "hormonally challenged" like those with Poly Cystic Ovarian Syndrome (PCOS) are also prone to diabetes. Those women with PCOS who are having a hard time getting pregnant often can be helped with metformin, a drug used in the treatment of diabetes EVEN IF THEY ARE NOT DIABETIC. If you have a problem with yeast infections, think higher blood sugar levels. Men with low testosterone often have diabetes, too, or are at risk of developing it. I HIGHLY recommend all people who have been diagnosed with HS or think they may have HS, to visit an endrocrinologist and have the complete panel of blood tests done. You may be surprised what they show (like my premature ovarian failure or POF).

I have virtually cured the HS lesions in my underarms. I say "virtually" because I have had one lesion in 10 years. I had laser underarm hair removal. The one lesion that I did get was immediately following shaving of some leftover "whispies" (You can barely even see them). HS is a "clogging disease". Removing the hair shaft from its follicle allows for more "wiggle room" for sweat to be released. A number of HS sufferers stop using anti-perspirant because of its clogging factor. Drinking plenty of water helps to dilute one's sweat. Showering after exercise does not allow sweat to stay on the skin. I am considering having Botox treatments on my inner thighs done. I want to reduce the sweat factor as much as I can. I do very well in the wintertime, but not so great in the summertime. I have kept my disease as bay using as many preventative tips that I can learn from other sufferers (like boy-leg panties and tea tree oil, to name a couple).

I am interested in Tumeric. It makes sense. Long before antibiotics were discovered, people used other substances known for controlling infections. Tea tree oil is one. Honey is another. Wine was used as an antiseptic. Olive oil was used in biblical times for skin problems. When modern scientists examine these substances today, they can explain why they work.

One topic that I want to bring up that is not popular to hear is smoking. I've read several studies that implicate smoking in the development of HS. Quitting smoking doesn't seem to affect HS much, but never starting to smoke in the first place is a huge factor. There are genetics behind HS sufferers who have other famly members afflicted by HS, but smoking may be the kick off behind those without the obvious genetic link. The link between smoking and HS was as high as 90% in those studies. I once went to an HS support group meeting. There was a group of approximately 15 of us who went out to dinner together. I asked around the table who were smokers or ex-smokers. Of the 15 people present, only one person was a non-smoker/never been a smoker! That particular woman never had HS until after she had a complete hysterectomy - a hormonal-challenged woman of normal weight. Why didn't our group reflect the percentage of smoking adults in the United States? Why did our group reflect a smoking rate of over 90%? I mentioned earlier that I have psoriasis. Did you know that psoriasis and smoking have a connection, too?

I think HS can be conquered if we can attack it in its earliest stages. Most diseases are better managed before they really get bad. Early diagnosis is key. Please share with others what works for you!

Eating yogurt every day and putting olive oil on daily prevents flare ups of Hidradenitis Suppurative. I rub olive oil on my groin every morning and every night; it soaks in quickly. Most of the time, I do not get the bumps unless I skip several days of putting on the oil; however, even if I get a bump, it prevents any bumps from getting large. I have had some so large I could not even sit correctly. ____ patches are great for pain relief. You can cut the patch to the exact size you need. I am 49 and have had bouts with these since I was in my teens. About six months ago, I read about the oil in Isaiah 1:6 In the JPS version it reads "From head to foot no spot is sound: all bruises, and welts, and festering sores-not pressed out, not bound up, not softened with oil." I had pressed bumps allot, but I had never softened them with oil. The oil works miracles.

i am writing you the details of this antibiotic but would like to say one thing. this medicine effects on my daughter very quickly probably she is very young and respond immediately to this medicine. but as more adults are suffering with this.. i have a feeling its will take slightly more time probably it will take a month or more . but please try it. she takes one tablet everyday for the last 4 months. i dont know how long i am going to give this medicine but certainly not going to stop soon. at least she is not a victim of Hidradenitis Suppurativa anymore.

the name of the _____ is bee propolis. its a wood supplement. if you couldn't able to find it feel free to contact me.

one thing that can cure your Hidradenitis Suppurativa is Burdock root. Take Burdock root for 3 months ( 3 times daily) and then stop for 3 months, then repeat... you will not have any problems anymore. Eat lots of read meat ( Burdock may lower iron), lots of fatty fish, limit dairy (once again because of iron absorption) and fruit + vegies. WORK OUT A LOT

Laugh a lot
live well

Michelle

That said, this isn't a complete cure. You need to figure out if you have a food intolerance (mine are excess sugar and corn) and drastically reduce those/that food in your diet. Looking into leaky gut syndrome may also be helpful (I swear by acv, kefir, and probiotics. My stomach has never been this happy). Best of luck to everyone! So encouraged and thankful to have found this site!

Depends on a location but dub the "thick" paste of ichthammol over the boil little bit bigger than the size of boil itself and put gauze over it and tape it up worked for me.
You can mix with itchamol & Neosporin 50/50 too , also you can apply iodine first then dry it and apply that itchamol & Neosporin over if you want.

Replace the gauze and re apply itchamols thick and generously then cover it with gauze again and tape it up. About 4 days and all the pus comes out & sticks to the gauze.

Get an itchamol in a jar for the horse. Because you gonna need it.

I've gained significant weight over the last two years and this led to my armpits becoming much worse. I was at a point where I would have at least 5 boils at any one time around my armpit area.
Around 3 months ago I started to apply cold pressed coconut oil onto my armpit skin once or twice a week. I initially started because I'd heard it was anti bacterial and honestly I just wanted to take away some friction.

Within a week I noticed my armpits looked less angry, and I wasn't developing new boils as quickly as "normal". And within a month my boils were down to almost nothing. I'm still like that now. I'll get maybe one or two a month, my scarring seems to be fading too, and I have less than half the blackheads I had when I started.

For the first summer in a long time I can wear cami tops, and short sleeve dresses without being embarrassed.
I haven't tried the Apple Cider Vinegar but I'll defo give that a go when next I get a boil and will update.
I'd 100% recommend coconut oil to anyone. I know it probably won't work for everyone but for me it's been an absolute game changer!

apply to the affected area. Wil be gone in a week but need to keep taking the CS for a little longer. The boils come back, but not like before, keep doing the same every time with or without boils and will kill the bacterias in the blood. My BF is 8 years boil free. CS kills antibiotics resistant bacterias. No side efects. Remember to apply the CS, Magnesia milk mix.

As per my experience, antibiotics are not much effective unless its when a flare up occurs and you want to reduce the inflammation. Also, if you do surgery you have to do it each time a flare up comes.

But, I have been dealing with it and now I have very less flare ups using the following:
- After bath, Use Povidone Iodine solution, the traditional brown colour liquid on your affected area to kill all the germs.
Let it dry so that it doesnt stain your clothes
- Use clindamycin gel on your affected area any time of the day or before sleep.

Do not miss any day.
Do not shave or wax.Try an alternative.
Try not to sweat too much.
Drink water.

I guarantee that you wont have a flare up :)
Good luck guys and stay strong!

p.s In case you get a flare up ever, use neosporin (bacitracin) powder on it for school/work since its a powder and the pus won't scar your clothes.

From my experience... drinking alcohol makes things bad, as the alcohol in my system pushes the doxycycline out of my system and the disease comes back for 24 hours or so with a vengeance. I've also had success putting the hibiclens on troubled areas with a cotton ball during flare ups (don't wash off and re-apply when you feel the itch coming back), which somehow helps to prevent things from getting worse and spreading.

What brings me back to the online community after years of control is that my new insurance won't pay much for the doxycycline, making the drug $70 a month... I reluctantly paid for one more month of meds and received word today that I'm going to be switched over to Cephalexin going forward. Has anyone had success with docycycline and then made the switch over to cephalexin? I should mention that I've been on the doxy daily for going on 3 to 4 years now. However, I've been reading that the cephalexin cannot be taken daily due to its strength... I'd be very grateful for any feedback. Good luck everyone, here's to hoping that modern science and medicine will someday soon figure out a cure to this life-altering disease, which is surprisingly affecting a large part of the worlds population.

On that note, I also hope my experience will help someone out there who is struggling to find answers.

I live in the tropics where the virus swept through last summer causing thousands of people to become ill.

This started September 2014, and has caused me terrible joint pain, styes, skin rash, and the boils. I bought some tea tree oil soap which has helped a lot, I bathe with it, rinse and dry thoroughly, then rub soap on the boils and dab on talc. They seem to be going now, still hard lumps but no pus. I also drink a tea made with fresh grated ginger and turmeric, you can use dried powder, cinnamon, honey and lime juice plus hot water. I have taken 4 types of antibiotics which did nothing, doctors seem disinterested and have offered no advice or medication. There is no cure or treatment for chikungunya virus, only painkillers, the effects can last for years, I had never heard of HS until I started researching the cause of boils/lesions in the armpit area. Hope there is a treatment soon for all the people suffering from HS.

I read some place that oranges contain a vitamin that reduces inflammation. So I eat 3-4 daily. Within two months of these changes the wound that's was present for years is gone. I'm beyond thrilled. It's worth giving it a try. Miko