★★★★☆
I started using turmeric and magnesium yesterday for pain issues. I also take EFA's and have since my 20's. I am currently on an oral antibiotic which was given to me after 2 outbreaks where I turned septic. I had a cyst the size of a grapefruit on my buttocks. It started out the size of a grain of rice at 10pm. By 1pm in the morning I had a fever of 106 and the cyst was the size of a lime. By the time I was able to get into the doctor at about noon I was septic. This happened again a few years later. I also used ACV and zinc, not as helpful for me as other people here at this site. I don't want to add too many thing at once. So for now I see how what I added works. I would like to get off the antibiotics.
My daughter also has DS and HS. You mentioned that you know of other girls with DS who also have this HS condition - I'm interested to hear more if you know anything further of the correlation etc.
We have found HS is definitely a hormonal response to adolescence. Recently, her cycle has been all over the place together with those horrible emotional outbursts. We have removed all Gluten, Dairy, Sugar and Nightshades (tomatoes, capsicum, paprika, potatoes, eggplant etc). We have a daily protocol of organic turmeric capsules - 2 daily, VitC with Zinc, Fish Oils, Probiotics, tea tree oil on lesions twice daily and homeopathic remedies. We have reduced her outbreaks significantly now with only small lumps appearing during/prior to her cycle. These are reasonably manageable when seen early. But were looking to better this if not prevent.
I'm currently looking at a herbal mix here in Australia called Happy Hormones which helps regulate the androgen hormones - which we feel may be a large contributing factor in our situation.
I will definitely add Colloidal Silver to our mix . We can get it here in Australia in our Health Food Shops.
Thank you
Eliminate Allergen Foods
★★★★★
I can not say it enough times on here - it is the CURE and will change your life!! Take out what your body can't digest and you will be back to normal!!!
I would like to help as many ppl as possible who have had this horrible disease - - I have this horrible disease for 3-4 years.... And I have now finally overcome it and am now living a "normal" life once again!!!
This MESSAGE needs to BE SPREAD to ALL HS SUFFERERS!!!
★★★★★
General Feedback
I have had HS from the age of 15 roughly. I have even had a Dermatologist take a biopsy off me in 2000 and not tell me I had HS, all he said was it was a Follicle issue.
After breaking down several weeks ago at the local doctors is when the Doctor told I had "Hidradenitis Suppurativa".
At this point in time I am in severe pain as I have multiple boils under my armpit, and several on my bottom, oh, should I mention that I am sitting sideways! They have been there for about 8 months now and they go and come back. There are some days when I am in so much pain that I cannot go to work. The other worse thing is, I love tennis and coach the game also, due to this illness, I am no longer able to play & coach.
This disease has stopped me from maintaining a relationship and has made me so depressed.
Today I googled "Hidradenitis Suppurativa" and read as much as I could until I went cross-eyed, and I think on the 5th page in the search I clicked on this link.
I have now been reading everyones testimonials on this site for the last 2 hours and have not stopped crying . Snot everywhere, sadly pus later.. It is so much different hearing from others who have the same problem.. I honestly thought I was alone.
I can't even believe that I am writing this up to be posted, I have never been compelled to do anything like this on the net.
Whoever has taken time to maintain & create this site, thank you.
I will try the Turmeric Remedy and keep all posted.
Regards, Liam
★★★★☆
i am writing you the details of this antibiotic but would like to say one thing. this medicine effects on my daughter very quickly probably she is very young and respond immediately to this medicine. but as more adults are suffering with this.. i have a feeling its will take slightly more time probably it will take a month or more . but please try it. she takes one tablet everyday for the last 4 months. i dont know how long i am going to give this medicine but certainly not going to stop soon. at least she is not a victim of Hidradenitis Suppurativa anymore.
the name of the _____ is bee propolis. its a wood supplement. if you couldn't able to find it feel free to contact me.
Burdock Root
★★★★★
one thing that can cure your Hidradenitis Suppurativa is Burdock root. Take Burdock root for 3 months ( 3 times daily) and then stop for 3 months, then repeat... you will not have any problems anymore. Eat lots of read meat ( Burdock may lower iron), lots of fatty fish, limit dairy (once again because of iron absorption) and fruit + vegies. WORK OUT A LOT
Laugh a lot
live well
Michelle
★★★★★
That said, this isn't a complete cure. You need to figure out if you have a food intolerance (mine are excess sugar and corn) and drastically reduce those/that food in your diet. Looking into leaky gut syndrome may also be helpful (I swear by acv, kefir, and probiotics. My stomach has never been this happy). Best of luck to everyone! So encouraged and thankful to have found this site!
Mercurius Vivus (Homeopathic)
Ichthammol
★★★★★
Depends on a location but dub the "thick" paste of ichthammol over the boil little bit bigger than the size of boil itself and put gauze over it and tape it up worked for me.
You can mix with itchamol & Neosporin 50/50 too , also you can apply iodine first then dry it and apply that itchamol & Neosporin over if you want.
Replace the gauze and re apply itchamols thick and generously then cover it with gauze again and tape it up. About 4 days and all the pus comes out & sticks to the gauze.
Get an itchamol in a jar for the horse. Because you gonna need it.
Coconut Oil
★★★★★
I've gained significant weight over the last two years and this led to my armpits becoming much worse. I was at a point where I would have at least 5 boils at any one time around my armpit area.
Around 3 months ago I started to apply cold pressed coconut oil onto my armpit skin once or twice a week. I initially started because I'd heard it was anti bacterial and honestly I just wanted to take away some friction.
Within a week I noticed my armpits looked less angry, and I wasn't developing new boils as quickly as "normal". And within a month my boils were down to almost nothing. I'm still like that now. I'll get maybe one or two a month, my scarring seems to be fading too, and I have less than half the blackheads I had when I started.
For the first summer in a long time I can wear cami tops, and short sleeve dresses without being embarrassed.
I haven't tried the Apple Cider Vinegar but I'll defo give that a go when next I get a boil and will update.
I'd 100% recommend coconut oil to anyone. I know it probably won't work for everyone but for me it's been an absolute game changer!
Multiple Remedies
apply to the affected area. Wil be gone in a week but need to keep taking the CS for a little longer. The boils come back, but not like before, keep doing the same every time with or without boils and will kill the bacterias in the blood. My BF is 8 years boil free. CS kills antibiotics resistant bacterias. No side efects. Remember to apply the CS, Magnesia milk mix.
Avocado Bark Tea
★★★★★
I hope someone will be healed by this too. I also tried turmeric but for me it made a little change. l also had one of the worst Hidradenitis suppurativa.If anyone wants to hear more just ask. Sorry for my English its a second language to me.
Multiple Remedies
★★★★☆
As per my experience, antibiotics are not much effective unless its when a flare up occurs and you want to reduce the inflammation. Also, if you do surgery you have to do it each time a flare up comes.
But, I have been dealing with it and now I have very less flare ups using the following:
- After bath, Use Povidone Iodine solution, the traditional brown colour liquid on your affected area to kill all the germs.
Let it dry so that it doesnt stain your clothes
- Use clindamycin gel on your affected area any time of the day or before sleep.
Do not miss any day.
Do not shave or wax.Try an alternative.
Try not to sweat too much.
Drink water.
I guarantee that you wont have a flare up :)
Good luck guys and stay strong!
p.s In case you get a flare up ever, use neosporin (bacitracin) powder on it for school/work since its a powder and the pus won't scar your clothes.
Antibiotics
★★★★☆
From my experience... drinking alcohol makes things bad, as the alcohol in my system pushes the doxycycline out of my system and the disease comes back for 24 hours or so with a vengeance. I've also had success putting the hibiclens on troubled areas with a cotton ball during flare ups (don't wash off and re-apply when you feel the itch coming back), which somehow helps to prevent things from getting worse and spreading.
What brings me back to the online community after years of control is that my new insurance won't pay much for the doxycycline, making the drug $70 a month... I reluctantly paid for one more month of meds and received word today that I'm going to be switched over to Cephalexin going forward. Has anyone had success with docycycline and then made the switch over to cephalexin? I should mention that I've been on the doxy daily for going on 3 to 4 years now. However, I've been reading that the cephalexin cannot be taken daily due to its strength... I'd be very grateful for any feedback. Good luck everyone, here's to hoping that modern science and medicine will someday soon figure out a cure to this life-altering disease, which is surprisingly affecting a large part of the worlds population.
On that note, I also hope my experience will help someone out there who is struggling to find answers.
★★★★☆
I live in the tropics where the virus swept through last summer causing thousands of people to become ill.
This started September 2014, and has caused me terrible joint pain, styes, skin rash, and the boils. I bought some tea tree oil soap which has helped a lot, I bathe with it, rinse and dry thoroughly, then rub soap on the boils and dab on talc. They seem to be going now, still hard lumps but no pus. I also drink a tea made with fresh grated ginger and turmeric, you can use dried powder, cinnamon, honey and lime juice plus hot water. I have taken 4 types of antibiotics which did nothing, doctors seem disinterested and have offered no advice or medication. There is no cure or treatment for chikungunya virus, only painkillers, the effects can last for years, I had never heard of HS until I started researching the cause of boils/lesions in the armpit area. Hope there is a treatment soon for all the people suffering from HS.
Turmeric, Tea Tree Oil
I read some place that oranges contain a vitamin that reduces inflammation. So I eat 3-4 daily. Within two months of these changes the wound that's was present for years is gone. I'm beyond thrilled. It's worth giving it a try. Miko
Scars
Ginger, Garlic, Mint, Pomegranate
★★★★★
I have been facing this issue since last one year and doctors say we can not help in this case even they don't understand what is causing this disease. Two weeks ago I visited my dad and he told me one remedy and I came back and tried and trust me I was surprised. It's herbal Antibiotic which seems 1000 times more effective than medical stuff.
OK try this ...I am same like you, searched on google for whole year, tried many things but nothing worked but this thing which I am going to share here. Cures me 70 % in 10 days ..
I am sure you don't believe but try it and then inform me within two weeks..within 2 3 days you will be letting me know that it's killing the disease..
Here you go
1) fresh ginger 50 grams
2) fresh garlic 25 grams
3) mint leaves 50 gram (fresh)
4) pomegranate seeds 50 grams (dried one)
Put in a blender and make a sauce; now put in an air tight jar.
Dosage:: 1 tablespoon (full) after breakfast, 1 after lunch, 1 after dinner.(with water) ...OR you can put this paste on the Bread and eat it...
Please Please for one week don't eat fast food; you will sea the result which will amaze you.. Please guys share it with everyone .. May Allah cure everyone from all the diseases... Best Of Luck Waiting for your response...
Yara's HS Treatment Plan
My boyfriend and I started dating 1 year ago, we actually did not date but met and started living together almost right away, it was love at first sight and we haven't been apart ever since. Once we first started, as with every relationship, hands all over the place, sex 5-6 times a day, it was crazy, we both work from home, so we spent pretty much every minute of every day together. He always told me how he loved my flawless skin and how amazed he was because of it, I never quite understood that, he also never took his shirt off, not even when the lights were off... I never made a big deal out of it, I just found it strange. Three months into the relationship we stopped having sex, completely, all of the sudden, I could feel he wanting but not trying to. Though I am a very communicative person, at first I never felt like asking him the reason why we stopped having sex, I just questioned myself all day all night, fell rejected, undesired, some days I thought I was being cheated on, some other days after visiting stupid internet forums thinking he was gay. This led to a lot of pain and anguish from my side, sleeping everyday with someone who kisses, caress and loves me, but has not intention of having sex. After three months I finally asked him what was going on and he told me he had a boil on his groin, alright I said, bought him medicines, stupid me trying to cure him. The boil went away, and although I didn't pressure him, the sex wasn't coming back. Six months after that, I told him I couldn't keep on and didn't want to be in a sexless relationship (lots of internet research led me to that conclusion, again with the stupid housewives forums), I wasn't in a rush, nor I was mad or desperate, I was just bored, I told him he could take the time to search for a new place. About a week after that I noticed a boil on his neck, he told me he was getting this boils since he was 17, he is 38 now.
When he first started getting them his parents took him everywhere, the conclusion was always severe acne, and the remedies all kinds of antibiotics or anti-acne treatments, he never got better so they told him he'd just have to live with that. When we met he was on remission (and had been for about a year) 3 months after that he got a boil, and then another, an then another, and then two at a time, and so on. I started reading about his symptoms and came across with the name Hidradenitis Suppurativa on a British Council document, I translated it and read it to him and he could relate 100% with it, I told him to go back to another dermatologist and asked for another diagnosis, he went and again they told him severe acne, and 7 months of accutane, which he has already taken before with nothing but bad side effects and no remission. I was mad, and sad, and started doing my own research, I found this forum, and after reading every single comment on HS Ailments I did my own treatment plan and asked him to give me a month for results.
We live in South America, so there is no such thing as a Food Allergy Test as far as I'm concerned. I am a very enthusiastic amateur baker, and I used to make him a 1 pound cake a week, he is a very enthusiastic amateur barista so he drinks about 3 or 4 cups coffee a day. He is about 150 pounds, not overweight at all, but I could see how our food intake might be affecting his condition.
We stopped eating wheat, sugar and coffee about a week ago, we also lower significantly our consumption of carbs such as potatoes, rice.
He started taking:
Turmeric - internal, one teaspoon a day with warm olive oil
Zinc - internal, one tablet a day
Calendula - internal, infused
Omega 3 - internal, one tablet a day
And using:
Tea tree oil - external
Hypoallergenic soap
We still can't tell if he is getting any results from what we are doing, I just hope he is, it is worth a try. If his life is better mine is a hundred times better. I don't want to see him living in pain, more so if he is trying to hide it from me. There are three more weeks to go, we'll see. He has being living with this disease for 20 years and as much as a part of him the condition is, I want to be with the man I met without it, in remission, enjoying physically and emotionally every second he spent with me.
Hopefully I would post a reply with positive feedback in a few days. Good night and good luck to all of you.
I would try a charcoal poultice over the area. It should help with the pain and also draw out any lingering infection, as well as helping the skin to heal. You will find, "How to Make a Charcoal Poultice" in the index of the Activated Charcoal page her at Earth Clinic. You can use one poultice for overnight and change it a few times during the day.
You can also take turmeric internally. 1 teaspoon twice a day. You can mix it into milk (dairy, almond, rice etc.) or take 4 capsules.
I hope you find relief soon. Please keep us posted on your progress!
~Mama to Many~