The comments below reflect the personal experiences and opinions of readers and do not represent medical advice or the views of this website. The information shared has not been evaluated by the FDA and is not intended to diagnose, treat, or prevent any disease or health condition. Always consult a qualified healthcare professional for medical concerns.
Turmeric
Posted by Janet (Fernvale, Queensland, Australia) on 04/28/2012
★★★★★
I also swear by Turmeric for Neuropathy, but my understanding is it needs to be heated and taken in conjunction with black pepper for activation. If I have fresh Turmeric I simmer it for approx 10 minutes but if it is powdered making a tea with boiling water is another way to go, I add ginger, black pepper and agave to sweeten and it is a very pleasant drink. I have this drink daily and the pain relief properties are amazing.
Alpha Lipoic Acid, B12
Posted by Shrikant (New York) on 11/15/2011
★★★★★
Hello.... I had feet burning for a long time(2 - 3 years). Earlier to that I found my feet was paining a lot. I am diabetic for the last 30 years. Obviously it should be diabetic neuropathy. Recently I tried Benfontamine (fat soluble Vit B1) 200 mg twice a day alpha lipoic acid 600 mg Methylcobalmin (B12 variety) that aids the process of methylation. I found that the feet burning has been controlled substantially. I used to take alcohol in moderate amount. The day I take alcohol my feet burning erupts and the day I stop it goes away. I think alcohol has something to do with my feet burning and I have now decided to discontinue alcohol altogether! Let us see.
Shrikant
New York
Acetyl-L Carnitine, Alpha-Lipoic Acid
Posted by Carol (Los Angeles, Ca) on 01/12/2012
★★★★★
I was suffering from continual extreme muscle tightness in my thighs and neuropathy in the top of my foot shortly after I began taking Lipitor. I discontinued the Lipitor after 3 weeks, but was unable to exercise without the pain becoming increasingly worse. I stopped taking the Lipitor but had no improvement in my symptoms whatsoever, so after 6 weeks I broke down and decided to try this combination based on Bill's experience. I began taking 500 mgs of Acetyl-L-Carnitine 1x a day and 100 mgs of R Lipoic Acid 2x a day. (I am a small person, so I take a minimal dose. ) I felt relief within 2 days. Five months later, I am happy to report that I am at 98% of where I was before taking the statin with only the slightest bit of tightness and neuropathy when I exercise hard.
You should always check with your doctor and investigate as much as possible before taking a supplement with a prescription drug or other supplements. I believe my original problem with Lipitor was caused by inadvertently combining it with Red Yeast Rice.
Turmeric
Posted by K (San Antonio, Texas) on 02/10/2012
★★★★★
I belive my neuropathy is caused by a course of Leqavuin 2 years ago. It started with a numb big toe and spread out. I've taken b-12 patches, Alpha Lipoic, Lecithin, MSM, acupuncture, Bach remedies, NAC, but what feels like a cure:
This week
5 pieces of Turmeric juiced into my morning carrot juice, along with 2 packets of Liposomal glutathione.
I actually credit the Turmeric more than the gluathione, but the two in combination are alleviating all my numbness and prickling for the last 7 days.
Alpha Lipoic Acid
Posted by Sharon (Sacramento, CA) on 12/03/2008
★★★★★
My mom has peripheral neuropathy not caused by diabetes. She complained every day and it had started to cause a persistant burning in her forehead also (a form of pn according to her neuologist) She now takes 300mg of alpha lipoic acid daily and no longer has the forehead sensation and feet are much less painful. She stopped for awhile and within weeks was complaining of the old symptoms. She resumed the supplement and symptoms abated.
Benfotiamine
Posted by Baldev (Mumbai Maharashtra India) on 06/17/2023 184 posts
May I request Art and any other poster to do the research on this subject. Because Neuropathy of non diabetic origin is quite rempent these days.
Thanks Baldev
Benfotiamine
Posted by Art (California) on 06/17/2023 2325 posts
Baldev,
I'll do that this coming week.
Art
B12
Posted by Whisperingsage (Northern Ca) on 09/20/2020 45 posts
★★★★★
I've been using MSM for years to prevent gallstones and my neuropathy just continued on. My initial neuropathy was from B12 deficiency, which was from chronic diarrhea, which was from vaccine injury.
DMSO
Posted by Mary (Florida ) on 12/08/2018
You can get dmso at a ranch supply or feed store. I have used it for years. It helps fix just about everything. Read about it online.
Benfotiamine
Posted by Joanne M (Vancouver Wa) on 12/28/2015
★★★★★
I had PN BAD in both feet. After several tests doc told me to stop the B vitamins. B6 in excess can cause PN. I quit the B vitamins and started taking Benfotiamine and after a month my feel are returning to normal! I can finally feel my feet and the tingling is almost gone. Thank goodness!!!!
Some people cannot metabolize B6 efficiently. I'd quit taking them asap.
Niacin
Posted by Joanne (Vancouver, Wa) on 12/02/2015
WARNING!
I got Peripheral Neuropathy from an overdose of B vitamins! Be careful with them. They really messed me up. Vitamin B has been said to help with PN but if you get too much it can cause it. The tingling I was feeling was from too much Niacin also. Called the Niacin flush. Doc told me to go off of B supplements and within a few days my zapping was gone. It's been 2 weeks off of them now and all has recovered except I still have a thick feeling in the balls of my feet. I am now trying the ALA remedy and so far it is helping but it could be also that I am not on the B supplement anymore.
Niacin
Posted by Megan (Usa) on 04/04/2016
B6 people!!! B6 toxicity is happening in small amounts all over the world!!
Benfotiamine
Posted by Hamza (London, UK) on 08/11/2014
★★★★★
My mum had severe pain, pins and needles, numbing, throbbing and tingling in her feet whenever she would try to sleep for about 20 years. I wanted to help her, so I looked it up online and found that vitamin b1 would help. Within a few days of supplementing with 1 vitamin b1 100mg capsule daily her pain is gone and she sleeps much better.
Hepatitis C and Neuropathy Link
Posted by Bill (San Fernando, Philippines) on 05/01/2014
Hi Diane...In a study published in the BMJ in 2003 it was found that varying degrees of peripheral neuropathy, in the form of cryoglobulinaemia, commonly occurred in patients with Hep C. They found that 40 of 51 Hepatitic C patients had this form of peripheral neuropathy.
Peripheral Neuropathy in Hepatitis C
Although the numbers may vary, if you type "Hepatitis C neuropathy" in Google Search you will find many other instances and confirmations that this form of peripheral neuropathy commonly occurs together with Hep C as well as in other diseases like leukemia and pneumonia.
In other studies it has also been suggested that this form of peripheral neuropathy is caused by auto-antibody response arising due to a heavily stressed immune system because of the HCV factor. Nevertheless, cryoglobulinaemia is still referred to in medical research as an idiopathic disease.
idiopathic = completely clueless as to the real cause of the disease
Treatment of cryoglobulinaemia is normally entirely palliative(treat the symptoms) using analgesics and anti-inflammatory drugs, since there appears to be no apparent cure.
I also think that your liver doctor needs to open a book or go on a Hep C refresher course or perhaps she just needs to renew her dusty but outdated Standard of Care Manual.
B12
Posted by Denise (Seattle) on 11/01/2013
Mama to many, Thanks you for the feedback. Interestingly enough, I have a friend that's a periodontist that had cancer and cured it by drinking carrot juice and nothing but for a month! He drank so much the bottom of his feet turned orange...but it worked! He got out of the Doctoring field because it's a "Crooked/unethical game they play to all people." He told me if I ever went to an emergency room and had full insurance coverage they would do every tesy available even if you had a hangnail...I have a neighbor who that happened to and she just had a sore wrist but they ran up an $8,000.00 bill with every kind of test possible..(MRI, CAT scan, full body Xrays, blood tests etc. etc. all stuff completely unrelated to her wrist.) my friend now has a holistic business for children in PA.
In any event, he's cured and I just may give carrot juice a try..even though neuropathy is my issue along with hep-c..Thank you again.
Coffee
Posted by Scott (Pen Argyl Pa) on 09/21/2013
★★★★★
I've been taking a number of supplements and natural remedies for neuropathy for almost a year now, each having a range of effectivness, advantages and disadvatages. They include D3, B12 and chewing on raw ginger. I was surprised when I realized what actually helped the most. A mug of coffee works the best and gives the longest lasting relief. It took a while for me to figure this out because I generally don't drink it that much, only when I really need to stay awake for work or a long drive. I still limit my coffee consumption but not as much as I used to. Obviously, don't drink it in the evening if you want to get your sleep.
I'd be interested in learning how this works for others. All I know is I'm getting a lot of relief when I have my 12 oz. Mug of it. It lasts me through almost the entire work day.
Apple Cider Vinegar
Posted by Bill (San Fernando, Philippines) on 04/16/2013
Hi Denise... Lack of Iodine in the body can cause cold hands and cold feet. Iodine helps to regulate and control the body's accomodation to hot and cold conditions via the thyroid gland -- especially at the peripherals of the body. So it might help if you supplement kelp or lugol's iodine to see if this helps your problem of feeling cold at the peripherals of your body.
Another reason for this problem could be because of your Hep C. Improving the liver's function thereby purifying your blood may also be helped by taking Milk Thistle(1000 mgs twice a day at mealtimes), Selenium(200 mcgs twice a day at mealtimes) and Alpha Lipoic Acid or ALA (300 mgs twice a day at mealtimes). ALA is a wonderful detoxer of poisons and is well known to help peripheral neuropathy problems in the body. Drinking Chanca piedra tea two or three times a day or taking 1000 mgs of Chanca piedra (twice a day at mealtimes) will also help you detox and repair your liver. I would also take Chlorella on a daily basis to help remove any heavy metals from your body.
You can also find other useful Hep C remedies here on EC:
BHT Remedy for Hep C
Berkson Therapy for Hep C
Ted's Lysine and Vitamin C remedy for Hep C
Burdock Root
Posted by Ky Mama (Clinton, Ky) on 03/24/2013
I took the Burdock Root before meals. But I don't think it is hard on the stomach and could probably be spaced out any way that is convenient. Four to five 00 capsules is generally about a teaspoon. Hope that helps!
Burdock Root
Posted by Ky Mama (Clinton, Ky) on 08/29/2013
Yes, it worked out to about 3 teaspoons a day. It would be fine to just take the powder in water. It has a mild taste. It is used for food in other countries. I hope it helps you as much as it helped me. God bless you! KY Mama
Severe Neuropathy Remedies
Posted by Timh (Louisville, Ky, Usa) on 03/13/2013 2048 posts
Katie: According to our leading authority on Parasite disease, Dr Hulda Clark, we all have parasites or stages. For many people this isn't a problem, for others, however, it creates chronic diseases that do not respond to treatment with any significance. Parasites excrete all sorts of bacteria, funguses, and viruses as a byproduct of their metabolism. Heavy metals, or zenobiotics are also possible with you. Look a few yrs back in your life (recapitulate) and try to find any particular moment when you got out of your element (routine) and became "suddenly" ill. Something is dragging your immune system down.
First, do an herbal parasite cleanse, as well as any methods of general detoxification (info here on E.C.)
Second, boost your immune system by supporting your Thymus Gland. Here is a previous post I made for this: The Thymus gland is like the brain of the immune system as it is involved in both production and regulation of immune or white blood cells. Thymus function decreases significantly w/ age so any method to augment it is definitely recommended especially those suffering chronic infections. To boost the Thymus do these little exercises on a daily basis and significantly boost your immune power. First, use some type negative pole magnet (the side that sticks to metal) over the Thymus, which is directly between the lower neck and heart area; a common refrigerator magnet will do just fine; do this for approx 15 minutes. Second, do the "Thymus Tap" by making a fist and gently bump the T area a few times and wait a little then bump again several times daily. Thirdly, supplement Raw Thymus Glandular as recommended on label. " Also, if I might add, Zinc Lozenges will boost the Thymus.
Here is a link for Lyme Section: https://www.earthclinic.com/cures/lyme_disease.html
Hope this helps. Come back and update us how you're doing.
Severe Neuropathy Remedies
Posted by Whisperingsage (Northern Ca) on 09/21/2020 45 posts
If B12 deficiency goes on too long, it can be permanent.
Severe Neuropathy Remedies
Posted by Karen (Tampa, Fl) on 03/13/2013
Katie, Dice a whole lemon, skin and all then liquify it in a blender.. Strain if you want and put in glass... Add one tablespoon of X-virgin olive oil and one tablespoon of lecithin and drink everything either at once or spread out over the day... Also put more lecithin - up to 4 tablespoons in the drink if you want to... It is most important for nerves... Do this for one month... You will see improvement and maybe resolution.
Report back to this site if you are so inclined... God bless.
Severe Neuropathy Remedies
Posted by J (Ny) on 03/20/2014
Try r - alpha lipoic acid 300mg 3 x daily
Benfotiamine 500 2x daily
Acetyl l carnitine 2x daily
Methly b12 15000mcg sublingual 2x daily
B complex vitamin 2x daily
10000 iu vit d3 daily. Excessively lotion all affected skin twice daily since neuropathic doesnt sweat. Elevate feet at night above the level of the heart. Thick soft socks or footies
You can try the neuropathy oil they sell in cvs pharmacy, a tea tree oil neura.... Something like that sorry dont remember the name exactly. Stay away from alcohol consumption Forever! God bless you I will pray for you. J
Gluten-Free Diet
Posted by Lily (Kelowna, British Columbia) on 01/14/2013
★★★★★
Gluten-Free Diet for Neuropathy
Research ideopathic gluten sensitivity. I have had relief from kicking gluten from my diet!! I tried all the other stuff & got some relief BUT this was relief and it happened within days of being diligent about NO GLUTEN.
Iodine
Posted by Lizette (Wi) on 11/07/2017
★★★★★
Lugel's Iodine is the best and most potent...be mindful it requires very little!
Alpha Lipoic Acid
Posted by Tom (Eu) on 11/04/2012
Hi Al, Great to hear of your improvements. With regards to your wondering if the ALA was sending your hair back to its original colour I would think that maybe it is. I have included the following article which describes the relationship between ALA and ALCAR when used together. Bascially says that ALCAR can cause oxidative stress which is why it is usually teamed with ALA to counteract any negative impact on cells. I think it is basically the Good guy of the duo and may very well be what has caused your hair to go back to its original colour.
http://www.pponline.co.uk/encyc/alpha-lipoic-acid-and-acetyl-l-carnitine-can-they-improve-sports-performance-8
With regards to your wondering if it was welding that caused your hair to turn grey in your early years, all I can say to that is that I have an uncle and he has been welding for many years. He is now in his late seventies and last year he had to undergo an operation for a hole at the back of this eye - at least I think that's what it was, which he says he is nearly sure was caused by welding - this goes to show you how much welding he done over a lifetime, however he didn't actually turn grey until he was in his late forties/early fifties. But who knows maybe it's a case of horses for courses.
I have also included a link with regard to a forum on nerve regeneration which may/may not be of use to you, the first guy seems to be using supplements similar to that you use for nerve regeneration.
http://www.healthboards.com/boards/neuropathy/75917-anyone-experienced-nerve-regeneration.html
All I can say Al is that it is truly great to hear of your good news. I can't say that there seems to be much info out there results-wise for people in relation to ala/alcar and neuropathy so you seem to be a pioneer to some extent. Wishing you the best going back to work and hoping that you will keep us updated. Regards.
Alpha Lipoic Acid
Posted by Art (Vancouver Bc, Canada) on 09/24/2013
★★★★★
Dear Al.
I am so glad to hear about your success with the ALA. I have had great success with it as well with the burning sensation just above my knees and pressure aches on both wrist. I was taking 2x250mg with every meal and then I discovered I only need to take it at noon and supper. Without this my life would be hellish painful. It was your posts that got me started on the ALA. I did try the R factor ALA with little success.
Art.
Alpha Lipoic Acid
Posted by Al (Alvena, Sk., Canada) on 11/04/2012
ALA will make your heart race if you have overactive thyroid problems and/or are on thyroid medication(s). You should maybe get your thyroid gland checked out and that might even fix your neuropathy. Most ALA labels caution about using it with thyroid medications.
Alpha Lipoic Acid
Posted by Al (Alvena, Sk., Canada) on 12/02/2012
★★★★★
3 months now since I started ALA & ALCAR and I have been working full time - just around 60 hours per week in the log book. I am quite surprised at how well I am doing. At the end of the first week I was exhausted, partially due to icy roads on days 4 & 5, and thought I would need to take a break midweek for a few weeks but kept at it and didn't need to. I still have a bit of pain, tingling and numbness but it is still receding. I expect that it will take many months to completely recover if I ever do. I am maintaining my supplement regimen but have reduced the Lyrica by 50% a week ago, resulting in an increase in the pain level, and have also reduced the amount of Diamicron MR that I am taking by 50% as well due to the blood sugar getting too low, a good indication that the curcumin and Diamicron MR are actually healing the pancreas as I am healing the neuropathy. Maybe the two are complementary. I saw another acquaintance today that I hadn't seen since June and he didn't recognize me due to my hair colour returning. Onwards and upwards.
Alpha Lipoic Acid
Posted by Al (Alvena, Saskatchewan, Canada) on 03/04/2015
★☆☆☆☆WARNING!
Another update. I recently had surgery to remove the right lobe of my liver. This was due to matastatic colon cancer and as a result my blood pressure has gone up resulting in other problems including reduced energy and increased neuropathic pain. I noticed that when I had something sweet to eat like jam, cake, candy, etcetera that the neuropathic pain was reduced substantially so I started experimenting. When doing anything slightly strenuous my blood pressure and sugar would drop and my pulse would go way up so the first thing I tried was leaving out the diamacron and metformin. This allowed the sugar to increase and gave me back my energy without my blood pressure and pulse being significantly affected, but the sugar went too high so I added the metformin back in. Big surprise!!!! The neuropathic pain went way down, more than eating something sweet made it go down. As a result I typed "diamacron" into google and clicked on "diamacron side effects" and found out that it causes neuropathic pain, conflicts with metformin, is not supposed to be used if you have liver problems, are having or recently had surgery. None of this was covered in the pharmacy information sheet I was provided. The warning is not about alpha lipoic acid, but rather it is about the diamacron prescription medication and what it does. Eliminating it has made a huge difference. I have not as yet tried the nicotine but will be soon. Al
Acetyl-L Carnitine, Alpha-Lipoic Acid
Posted by Tlkleen (Halifax, Nova Scotia) on 02/10/2013
My husband has a rare disease called Tangiers. It causes neuropathy mainly in his limbs, but has lost feeling all over. He suffers from alot of pain. He is getting ALA treatment from his naturopath. They are starting a new treatment that involves a new natural med that will be administered before the ALA to help the body absorbe it. They say he will notice a difference with in 30 days. Fingers crossed!
Alpha Lipoic Acid
Posted by David (Westford, Ma) on 04/29/2012
★★★★★
I was diagnosed with peripheral neuropathy in November, 2011. The excrutiating burning on the bottoms of my feet had gotten progressively worse and I really thought my days were numbered. The last thing I would ever want to do would be to go on disability but it seemed like that was where I was headed. I have done everything to help myself. Mind/body 8 week course to learn to live with chronic pain, accupuncture, diet, meditation, yoga and more. Three days after I started ALA I thought my pain had started to reduce.
Now 6 weeks later except for minor discomfort now and then I don't think about my feet 24/7 anymore. I actually drove myself to the Museum of Fine Arts and walked around last week for a couple of hours forgetting that a few weeks prior I never could have done that. I feel blessed to have found ALA if this is why I have gotten better. I have also stopped all statins as I tried just about every one of them. I also discontinued amlodipine as the swelling it causes of my feet I was sure was aggravating my pain. I now take 900mg. Per day and wonder if that is too much? I have read many research articles on ALA and they seem to agree that IV ALA does help neuropathy. There don't seem to be any conclusive studies on oral ALA. I am looking to try and find whether ALA can actually cure Neuropathy or if you need to keep taking it?
B12 and Metacobalin
Posted by Ms (Honolulu, Hawaii) on 02/13/2012
★★★★★
I also took the same Bs as Shrikant (the fat soluble B 12 & Metacobalin) and my neuropathy in both feet that I had for a few years got better THE NEXT 24 hours I could tell - a difference for the better. I am now still on the fat soluble Bs and it has been 1 1/2 years now. The tingling, the extreme sensitivity, the sudden jerking jolts of what felt like electric shocks within my feet are all gone.
Only thing is lately, I have noticed a tightness appearing and I cannot bend back my toes towards me comfortably. Don't know why...
B12 and Metacobalin
Posted by Maria (Gippsland, Australia ) on 02/13/2012
Hi Ms (from Honolulu), If it feels like that they might cramp if you move them any further then I would suggest magnesium. Works for me if my toes feel like or do cramp. Even if it is not cramp it would be worth trying some mag.
MSM
Posted by Janet (Kendal, U.k) on 08/19/2011
★★★★★
My partner also suffered with PN due to his diabetes, he was already taking ACV and CO, this seemed to help his blood sugars , but not the pain.
However literally after the first dose of MSM he got instant relief, he continues to take it but rather on an if and when need basis. Also we read that LECITHIN can help, which he also takes, daily, due to a relative short shelf life. He is so much better.!!! Oh I hope this helps , any one that suffers this puts up with so much.:(.
B12
Posted by Al (Alvena, Sk., Canada) on 09/16/2012
Kate, I have noticed that if the pain is less when you wake up in the morning that it is often an indication of too large a dosage of something and so would reduce one item at a time until I found the culprit and then put everything else back to normal dose and reduce or eliminate the one that caused the problem. When things get worse we need to experiment a bit. Al
Alpha Lipoic Acid
Posted by Liz (Boston, Ma) on 06/25/2011
★★★★★
Months ago, I added Alpha Lipoic Acid (100mg 3x per day) to my daily supplements for its antioxidant properties. After about a month, I noticed that the intense foot burning and pain I'd been experiencing for years was GONE! Yay!!
Just an FYI - the dosage I take is a low one (300mg/day). Those suffering with different types of neuropathy could go as high as 800mg/day.
Alpha Lipoic Acid
Posted by Bess (Calgary, Alberta, Canada) on 10/26/2011
Hi Monique - You may want to increase your Vitamin B12 (Methylcobalamine - take sublingual tablets) and ensure you take a Vitamin B Complex as well. I've read that Vitamin B12 protects the sheathing surrounding nerve cells and can promote regeneration and growth of nerve cells.
Also, be tested for Vitamin D deficiency (mercola.com or Vitamin D Council have lots of info on this). If you do an Internet search for "vitamin D deficiency neuropathy" you'll find lots of information suggesting you get your Vitamin D levels up. Good luck!
Vitamin B-1 (Benfotiamine)
Posted by Juliamary (Johannesburg, South Africa) on 12/09/2011
People who have burning feet - do you realise that it can be caused by too much caffeine? Caffeine prevents the absorption of vitamin B, so that even if you are eating well and having vitamin B supplements, that vitamin B is not being absorbed. The reason why some sufferers are not getting any better when they take various remedies may be because they are drinking eight cups of strong tea or coffee a day! Give it up and see the difference it makes.
Vitamin B-1 (Benfotiamine)
Posted by Al (Alvena, Sk., Canada) on 09/16/2012
Gatordennis, I have used grapeseed extract, curcumin (an extract of turmeric), gabapentin/Lyrica, alpha lipoic acid, acetyl-l-carnitine, hydromorphcontin and morphine. Nothing has worked as good as ALA and ALCAR although grapeseed extract reduced the need for narcotics ALA and ALCAR ELIMINATED THE NEED FOR NARCOTICS. I still use Lyrica but hope to be off of it soon and just started using benfotiamine. Just a note to those with gluten intolerance, my wife was diagnosed with celiac disease and I had just heard about an old variety of wheat that could be tolerated by celiac's. I bought some whole grain flour made from "RED FIFE" wheat and six months later she had no further indication of celiac disease. Seems the old varieties of wheat have different composition of glutens/proteins that make a difference. My supplier tells me that "MARQUIS" wheat is quite similar and is showing the same results. Al
Alpha Lipoic Acid
Posted by Marie (Philadelphia, Pa) on 09/23/2009
★★★★★
Hi, I have a pinched nerve also in my lower back and I have not been diagnosed with neuropathy, I do have symptoms like neuropathy. I did research on EC and other sites regarding alc and alpha lipoic acid is helping me also. I take 400mg a day.
