★★★★☆
WORKED TEMPORARILY
The clobetasol is one of the strongest topical steroids and the body seems to build resistance to it and it can not be used in multiple areas of the body such as the face, genital areas and the armpits as it can cause other issues such as thinning of the skin and discolorations of the skin. It can also cause high blood pressure if used over large areas of the body as well as blurred vision and high cholesterol. Hair loss is another side effect as is stretch marks. Itching is also a common one These side effects may or may not be reversible once the clobetasol is stopped.
https://www.drugs.com/sfx/clobetasol-topical-side-effects.html
I say this, not to scare you, but from experience.
Art
Honey
★★★★☆
Cyclosporine
Given the known side effects of cyclosporine :
https://www.drugs.com/mtm/cyclosporine.html#side-effects
It might be worth viewing ECs page on LS here and decide what you think would be most appropriate for you:
https://www.earthclinic.com/cures/lichen-sclerosus.html
Art
Essential Oils
★★★★★
Dietary Changes
If you start out making 100 mistakes and you take away 50 of those mistakes your results will improve in the short term. That doesn't mean you are doing something right, it's just means you are doing less wrong.
Keto and Carnivore are both highly restrictive diets which utilize fasting and calorie restriction, essentially people lose weight because they are starving themselves in the short term. This is why so many people fall off the diet. You can only starve yourself for so long before your body screams for sugar and since most people on these diets don't understand their natural diet they don't feed on fruits when the body cries for sugar, instead they go for cake and cookies. The other reason that people appear to lose weight is extreme dehydration. The dark circles and sunken face are another sign of the dehydration, as are the veins bulging from the skin. If you hit a certain point of dehydration your body can no longer create life saving edema so they lose water weight. Since most people on a SAD diet eat salt their bodies are full of edema water weight which sheds when they dehydrate their body on a high protein diet. As soon as they fall off the diet the weight comes back quickly because the body starts to hydrate again and needs to dilute all those acids. Usually they put even more weight back on then before they started the diet because they have put even more acids into the system that require even more dilution. You see this with every high protein diet. The person calorie restricts and dehydrates leading to short term weight loss, then they binge because you can't starve that long, then they regain all the weight plus some. The body has no choice but to respond this way because it was never designed to handle high protein.
You can look at the marketing or you can look at the science and how your cells function. Keto and carnivore diets have good marketing. The carnivore diet even takes testimonials of raw vegans from their own websites and posts them on the carnivore diet site as if these people ate meat to recover their health.
Looking at the science and you see the mortality rates for Keto, 54% increase in mortality in just one year on the diet with a pre existing condition and 25% increase in mortality for "healthy" population. Meaning better than half the people with chronic disease who try keto die within one year on the diet and one quarter of people without a chronic disease diagnosis also die. Those are not statistics I would want to play around with.
It's important we understand the difference between marketing/advertising and science.
As for the carnivore diet, I would not wish that on my worst enemy. I cannot even put into words adequately the pain that people suffer on that diet. I hear from people every day trying to recover their health and with the carnivore diet it's always the same, I felt great for the first 1-3 years, (usually 1 year) and then I felt like I was dying. The pain was everywhere in my body. You can see the disease in their swollen faces before the pain hits too. First they get the sunken face with dark under eyes, then they get the swollen face like Shaun Baker has now. That swelling is edema. The body uses edema to dilute acids. Acids damage the bodies cells so the body floods the area with water as a protective mechanism to deal with the excessive quantities of acids surrounding the cells. Some people get away with it longer than others because of their bodies ability to create more edema to dilute the acids. Others hit the pain very quickly. It depends how bad of shape their body was in to get started. This is why Carnivore heavily targets the very young with their marketing. They know that a young body can go much longer and create more edema then an older body.
As for why people “feel good” on keto and carnivore and why they have short term success you have two primary reasons.
1. Meat is a stimulant drug, so people eating meat are literally getting high, with the same damaging effects on the body as taking cocaine or any other drug which stimulates and damages the body.
2. Most people who fall for the keto or carnivore marketing are coming from eating a SAD diet which includes Meat, Dairy, Eggs, cooked foods, salt, refined sugar, processed foods, alcohol, food coloring and many other poisons. If you start out doing 100 things wrong and then you remove 50 of those wrong things your performance is going to improve in the short term. Disease is all about burden. The more you burden your cells the more disease conditions are created in your body. So if you are making a lot of mistakes and you cut down some of those mistakes you will see some short term improvement. But ultimately if you are not providing your body with the necessities of nutrition which your physiology demands (fruits and tender leafy greens) then ultimately your system will shut down.
Improved obesity- not got to ideal weight - any time you calorie restrict and starve the body some weight will come off. Any time you dehydrate the body you lose water weight.
Improve hypertension - lose some weight and some burden is lifted. Improved is not healed, it's just a better number where the disease still exists but the score is lower. That's not healing.
Improved diabetes - this one is so ridiculous. If you are not eating sugar in the moment you will not have blood sugar spikes. But diabetes is a fat issue, it's never been a sugar issue. Fat blocks the absorption of sugar into the cell. When the body has excess fat coating the cells the cells are unable to push sugar into the cells so the sugar remains in the bloodstream. If you eat a keto or carnivore diet you are putting more fat in and making the situation far worse long term but you are hiding the damage being done short term because you are not putting in the warning indicator, the sugar. As soon as a person comes off the unsustainable carnivore diet and binges on sugar their diabetes shows that it was never gone in the first place.
Improved gastro symptoms- most gastro symptoms are a result of mixing foods which constipate and digest very slowly with natural foods which digest at normal speeds. If you put fruit into a system that is constipated from cooked foods and proteins then the sugars will ferment. If you remove the constipating and dehydrating substances from the diet then fruits digest as designed and there is no fermentation. If you put in only meat the body becomes highly constipated, hence the reason keto and carnivore diet followers poison their body with coffee, because coffee creates diarrhea as the body tries to rapidly flush out the poison, further dehydrating the body.
Improved psychiatric symptoms- most mental health issues are digestive issues. See above. Less digestive distress leads to less mental symptoms due to not combining foods which digest at different speeds. Lauren Whiteman
Dietary Changes
★★★★★
★★★★★
I bought a small jar from a British Columbia company and when you receive it, keep it stored in the fridge. It's okay to ship via unrefrigerated mail though. It looks like solid vaseline. Reasonably priced.
There are many topical uses for this product, from acne to cuts and bruises.
Clobetasol
★★★★☆
Vitamin E, Lavender Oil
★★★★★
Vitamin E, Lavender Oil
★★★★★
Low Oxalates Diet
★★★★★
I did use a steroid cream for several weeks. But I am all clear, skin is normal color now, my gp advice is to continue doing what I am doing.
Emu Oil
★★★★★
I plan to check in here in a few weeks to update on my condition.
Good Luck to all. This is a horrid thing to live with.
★★★★☆
2000 - 23 yrs ago, first symptoms were itching across lower belly and groin. No diagnosis, was prescribed steroid gel which controlled itching. Symptoms went away after 3-4 years.
Life was very stressful. I had given up my home, furnishings and everything that didn't fit into 10 boxes, to live with my sister on Maui. After 6 weeks, we fought and she dumped me and I was challenged with finding a home and work and knowing only one person.
2005 - New symptoms begin, vaginal itching and burning just like a yeast infection. NP gave me an antibiotic cream and a steroid gel. No diagnosis. The gel controlled the mild itching.
Life Stress Bad as I was in a very toxic relationship that lasted 7 yrs.
2012 - Symptoms escalate. Doc diagnoses as LS and gives me instructions to use a steroid cream, heavily, briefly mentions skin thinning as side affect and warns against any straining during bowel movements.
2020 - I find Earth Clinic and begin experimenting with natural remedies and diet as I am determined not to continue using the poisonous steroid cream (which works well to control my symptoms). Symptoms are the worst ever and disturb my sleep. COVID stress times.
Natural Remedies I've tried:
- ACV - no help
- Aloe Vera Gel 99% - soothing, best symptom control, but far from perfect.
- Baking Soda and Borax - no help.
- Comfrey calendula healing salve (DIY) - soothing, minimal symptom control.
- Castor Oil - soothing and better symptom control
- Tallow Balm (DIY) - soothing, minimal symptom control.
- Diet - no sugar, less wheat, minimal dairy. My efforts were hit and miss, no affect on symptoms.
DMSO
Day 1, this almost eliminates symptoms after 4 applications and sleep was good at last.
Application:
Put 1/2 tsp aloe Vera in palm of CLEAN hand with 3 or 4 drops of DMSO. Mix with fingers and feel it warming, then apply liberally on CLEAN affected area working it in gently. Let the area dry thoroughly before coming in contact with anything. About 10 - 15 minutes. DMSO is transdermal and will carry anything it touches into your body; toxins from soap or laundry detergent, fabric softeners, dryer sheet toxins, etc. If you are confident you have a toxic free home and laundry, you could put on clean panties after a few minutes and get dressed.
I will continue mixing the DMSO with aloe Vera but eventually, I will mix it with tallow because of tallow's healing qualities for our skin. I render my own tallow from 100% grass fed beef. Tallow balms are sold on Etsy.
References:
https://herbalmana.com › collections › dmso
https://www.truemedicineuniversity.com/healing-with-dmso
★★★★★
★★★★★
★★★★☆
I have for 3 days been using manuka honey and am trying 10+ umf on one side of my chest and 18+ on the other side to see if one works better. LS is now 95 percent flat and nearly all the white is gone. I am keeping my fingers crossed that this finally does the trick. None of the doctors have been particularly useful over the years in finding a useful remedy (but at least they could diagnose it) not even those at the best Boston hospitals... Does it seem that they have far more interest in Lyme disease than helping us women with this sometimes embarrassing ailment?
Niacin with Aspirin
★★★★★
Niacin caused burning so the pharmacy told me to take it with aspirin to remove the burning and it worked 100%.
Coconut Oil, Homeopathy
I will ask (again) for some Dutch doctors here and will let you know. In the meantime I sit in the sun, in lotus... now and then.
Frankincense Oil
★★★★★
Then I read that this was a precancerous condition and very closely tied to emotional issues. So I immediately started using pure Frankincense oil and within two days could tell it was healing. No pain, no itching and the lesions were disappearing. I used two drops in the am and in the pm for three weeks. Now it is GONE! I'm so thankful for this healing and am staying off sugar and starting to eliminate wheat! I can sit without wincing and walk without that pain! Thank you EC for your awesome website to help us all!
Essiac Tea
★★★★★
Cold Water, Evening Primrose Oil
★★★★★
★★★★★
Vaginal Medication Link to Ls
★★★★☆
Then finally as a result of a paragraph I saw written by a Doctor about psoriasis, his theory was that toxins were unable to escape through the normal route ie liver kidneys so they moved to the next available organ which was the skin, causing serious skin eruptions. This made a lot of sense to me, so I started to treat LS like it was one of my allergic reactions, and bingo, the first real success in 8 months of trying. All I did was cut down on my consumption of food by approximately one third. The sores, pimples and razor like cuts cleared up instantly, and the itching wasn't far behind. My symptoms are now 90% reduced, and I can control the symptoms by dieting. Someone mentioned a low carb diet, and I noticed that certainly applied to me also. Ironically vegetables and fruit, the things you would think were good for you, were causing a lot of surface itching that kept me awake all night. I try to eat any major meal early in the day, and at night it might just be a small high protein meal, like a leg of chicken, but no veg or fruit especially potatoes.
I do think this disease is multifaceted and there is no one solution for everyone. One thing I want to say about this. It had spread from my vulva to anus, cleavage, bust, and all over my back, and finally to my mouth where the white skin was about an inch long and half inch wide. I managed to easily get rid of the mouth problem by putting garlic oil on about 6 times a day. It completely disappeared within 3 to 4 days, and didn't reappear for about two months, when I again repeated the treatment and it went again. The diet cleared up the itching on my back and breasts and anus. The manic itching in the vulva area disappears 90% of the time as long as I don't overeat at all, and I am still experimenting with food to get an even better result. But right now I am in a very good place, and maybe this approach might help others. That is my sincere wish - if only to help one person with this awful disease.
I don't know if garlic oil repeatedly applied to white patches in any other area would work, as it seems to me that every place you get it, it behaves differently, so I would be interested to hear if anyone else has had any success with that. My sincere best wished to all. Just because they tell us this disease is incurable, doesn't mean we shouldn't try to cure it.
Wheatgrass
★★★★★
I have had this for 2 years. and found Wheatgrass works wonders after using the topical steroids and it getting worse. I stopped using what the doctor prescribed and used WG and she was amazed and wanted to take pictures and everything. I tried many natural remedies and this is what I have found to work. I had about 6 months that was excruciating and painful sex but now and basically symptom free besides having a small patch of white spots that never real go all the way for good.
Wheatgrass pulp as a compress for 15-45 mins. Make sure it is juicy this is a little messy but very clean and has been proven as a remedy for many problems including yeast infections. Just holding the compress on for 30 mins made my white spots disappear and the skin that appeared was pink and healthy. Juice it and grow it yourself and use 1-2 times a week or get a wheatgrass shot at a heathfood store and ask for some of the pulp. I do this -you can tell them it is to treat a burn or infected cut b/c it is used for that too. You just bundle up the pulp and hold it on press it to your skin firmly. I sit and watch TV on the couch or in bed on top of a towel with paper towels on top. The chlorophyl is very rich and can stain clothing/sheets. Wheat Grass contains many minerals and chlorophyl so maybe this is why it works so well.
But, I recently got wheatgrass cream form an Australian doctor who makes it. it is sold on his website Dr. Wheatgrass. I find if I put this on a few nights a week the white spots disappear too and the skin heals. This stuff is amazing you can heal cuts and burns very quickly with it with generally no scarring. I also found that salt water baths help and Aloe Vera gel helps soothe, and tea tree oil ointment takes away itchiness.
I used the Nuva Ring birth control vaginal ring for 2 years and that is when my problems with LS started. Now I use a pill and generally have a little bit of white spots but no irritation at all anymore and the white spots always go away every month when I get my period. I feel maybe if I did not use hormonal birth control at all this would go away completely but am not at a point in my life where I can justify it as there is not as reliable of a natural method Hope this helps some people with LS b/c it is really awful to have this condition.
