The comments below reflect the personal experiences and opinions of readers and do not represent medical advice or the views of this website. The information shared has not been evaluated by the FDA and is not intended to diagnose, treat, or prevent any disease or health condition. Always consult a qualified healthcare professional for medical concerns.
Cyclosporine
Posted by Steve (Coastal Southern Oregon ) on 07/24/2023
Anyone Ever Try This?
My primary care doctor wrote me a prescription for 100 mg of Cyclosporine to try and clear up my LS. It's fairly expensive so I haven't gotten it yet. Thought I see if anyone has tried or heard of this treatment.
Vitamin E and Quercetin Cream
Posted by Lifesawhspr (San Diego CA) on 08/08/2022
★★★★★
Vitamin E and Quercitin Cream for Lichen Sclerosus
After years of steroid use and skin being worse. I recently tried a compound of 3% vitamin E with 1% Quercetin cream and it's worked beautifully. My skin was in such poor shape and painful and has been healing great. I've also used Vaseline with the fissures, but the quercetin has been healing my skin up and helps with inflammation
Epsom Salt Baths, Vitamin E
Posted by Anastasia (Or) on 02/11/2018
★★★★★
My LS is superimposed on atrophic vaginitis brought on by menopause. I relate to the intense nerve jangling initiated by any washing/drying of the vulvar area, which has shriveled and appears as if all the blood has drained out.
As a remedy, I have been taking daily, 20-minute sits baths with 2 handfuls of epsom salts. Very soothing and relaxing. Then, carefully pat dry the external area only, so as not to start the nerve reaction, or tear the thin sensitive vulvar skin, or cause bleeding. Then, I follow with Vitamin E oil to lubricate and aid in healing the labia, vulvar skin.
This leaves the area feeling cool and calm...
Hoping for long-term relief and healing!
Colloidal Silver
Posted by Rebecca (Penna) on 09/07/2017
I have been using this also.
I also do the borax and baking soda soaks, which have given amazing results!
Dietary Changes, Essential Oils
Posted by Pam (Wv) on 07/20/2018
I was using bag balm when I didn't really know what I had, saw a blister...anyway, went to gyno and was diagnosed with LS. I also have IBS so that is a constant issue...Dr told me bag balm though wasn't really effective and may have made it worse. I had a complete hysterectomy last year. I do take estrogen because I was severely depressed. I do believe what you eat is a big factor. Before this diagnosis I lost 23 on WeightWatchers. The dr also said that a low estrogen level and rapid weight loss has also been noted as a cause of LS.
Besides all this, I already have had skin cancer, recently they found a freckle in my eye, this year it is raised so I see a retina specialist to rule out ocular cancer..and my Mother had anal-rectal cancer and a colostomy bag..she was in remission for 7 years but passed away in 2014 of liver cancer. My grandmother had Uterine cancer.
I'm no dr but I'm trying to figure out what things are linked together. I have nerve issues as well and my IBS has been going on since I returned from Desert Storm 27 years ago, we believe we were exposed to chemical agents. Now this LS thing is worrying me that I may get cancer in that area...
LS and Thyroid Connection
Posted by Frances ( Cabarlah, Qld. Australia) on 04/28/2015
Wendy, have you read Dr Brownstein's book re iodine and followed up with the Iodine protocol as mentioned on Earth Clinic; and, whether this has cured the LS?
LS and Thyroid Connection
Posted by Alison (Vancouver, Bc) on 12/16/2015
What group are you on where they talk about using cannabis oil? I'm in Vancouver, Canada and that sort of thing is pretty available, with prescription of course. It's something I'd like to look into so if I can connect with those talking about it, it would be ideal. Thank you.
Frankincense Oil
Posted by Asrana (Rancho Cordova, Ca) on 05/12/2014
Oil of Frankincense, as well as any other essential oil but Oil of Lavender, should NOT be used neat (undiluted) put the drops in a carrier oil and apply topically. Do NOT take it internally!
Frankincense Oil
Posted by Linda (Mariposa, Ca) on 06/04/2014
Was the Frankensence oil applied topically?
Frankincense Oil
Posted by Mama To Many (Tennessee) on 10/20/2015
Dear Lisa,
Frankincense Essential Oil should be used externally.
I have used one or two drops neat (without diluting) unless the area to treat is a sensitive one, in which case, I would mix it one drop with a bit of castor oil or coconut oil and apply to the area one to three times a day.
~Mama to Many~
Vitamin E, Lavender Oil
Posted by Terri (WI) on 08/24/2021
★★★★★
I have had wonderful success with Vitamin E oil for LS as well! I posted this under “remedies.” I get a burning sensation, so I just apply a drop of the oil to the hot area, and it soothes it almost immediately. I haven't had a flare-up for a couple of weeks, so I'm just applying it after I shower every morning as I'd rather stave it off than deal with a flare-up.
Essiac Tea, Homeopathy
Posted by Mama To Many (Tennessee) on 02/04/2015
Dear Jerene,
Personally, I would want to find something else to try first. When I look at cures for LS, I see a number of things I would try before Essiac if I was expecting. I am a huge fan of herbs and use them often. Herbal medicine can be quite powerful. So, I would hesitate to use Essiac in pregnancy. In a cursory search, I was not able to find that the ingredients in Essiac, individually, were contraindicated for pregnancy, I would still err on the side of caution with an herbal blend that is able to cure cancer.
That said, if I had cancer and had to pick between Essiac and chemo, I would pick Essiac.
When I look at Earth Clinic's cure page for LS, I see things like Apple Cider Vinegar, baking soda, dietary changes, eliminating artificial sweeteners, etc. I would be more comfortable with trying those things first.
I hope you find a cure soon! And I hope you have a wonderful pregnancy!
~Mama to Many~
Essiac Tea
Posted by Daisy (Ewa Beach, Hawaii) on 11/22/2012
Joni, it is made from different plants. It is an old native american cure and people are claiming it shrinks tumors. Its so gently you can use it on your animals. Chemotheraphy patients are using it along with thier Chemo. It comes in all forms... Powder... Pills... Liquid... I prefer liquid... I have a hard time swallowing pills. I hope it works for others. It is wonderful not being itchy especially at night. I have some scaring on my wrists but all other scars have healed. If this doesn't cure others... than I have received a miracle from God.
Essiac Tea
Posted by Daisy (Ewa Beach, Hawaii) on 11/23/2012
I buy mine from a [local] health food store. It is also sold online by different people who sell it. Usually health food stores have it and it is in the detox section of the store. I live Hawaii where everything is shipped in so, I purchase it for about $25 a bottle. I plan on taking this 3 times a year. Next year, I will buy a bottle in March, July and then in November.
Essiac Tea
Posted by Daisy (Ewa Beach, Hawaii) on 11/25/2012
I would treat it like a detox and only take it a few times a year. A bottle of drops lasts me about 2 weeks. When taking it I feel great... I even get a zing in my step. But I wouldn't take it every day all year long. Just a few times a year to reclean and purify your body and blood. Again, if you do take it and it works or doesn't work let me know. If it doesn't work, than I know it was a miracle I was healed and I will quit telling people about Essaic. If it does work than we can let everyone know it really works. I have yearly appts. Now with my doctor and she doesn't know I am cured. I can't wait for my appt and bring the bottle of Essaic Tonic Tea with me.
Essential Oils
Posted by Melody (Beebe, Ar, Usa) on 07/27/2012
★★★★★
I believe the Lichen Sclerosus is a yeast/fungal infection and can also be a Thyroid problem. My family uses Essential Oil of Thieves, Ocotea, Oregano... To name a few that are antifungal oils and do no harm to the body. Myrrh oil is also GREAT for the Thyroid. Please do not try using oils that are not pure... Know the company you purchase from and make sure they are pure. Fungus disappears when the oils are used.
Essential Oils
Posted by Sylvia (Birkdale Australia) on 11/18/2014
Be very carefull of using treatments for thrush when you have Lichen Sclerosus. Several Drs just gave it to me and then the specialist said that the antifungal treatments I was given were actualy feeding the LS and making it worse. I believed this because when I used these treatments it felt worse. It took me 2 years of going from dr to dr to be diagnosed properly.
Essential Oils
Posted by Jillery (Rawlly, Nc) on 01/24/2016 84 posts
LS is an autoimmune issue and not a fungal or yeast issue despite the name (lichen. It just has that appearance when looked at under a scope).
Vaginal Medication Link to Ls
Posted by Kathy (Brisbane, Australia) on 09/10/2009
★☆☆☆☆WARNING!
Lichen Scelrosis - theory yet to be proved:
I have a theory that moderate to high use of Vaginal creams for Thrush etc aggravate or possibly even CAUSE LS. The only way to find this out is to get as many women as possible with LS to say whether they have used these creams a lot in the past. I had a history of repeated Thrush and used the creams many times - I notice now that use of these creams aggravate the itchiness and thinness of the area for up to 2 weeks after use. Please post a answer and see if we can 'find' the cause - the Drs have no idea, so....
Vaginal Medication Link to Ls
Posted by Kim (Los Angeles, California) on 01/07/2010
★☆☆☆☆WARNING!
Vaginal Meds causing LS symptoms
This is in response to Kathy from Brisbane, Australia:
I have had the same theory for 4 years, that moderate to high use of Vaginal creams for thrush, vaginitis etc aggravate or possibly even CAUSE LS. 6 Months after taking precription medication for bacterial vaginitis the thinning, tearing, itchyness around th vulva area began.
Ladies please be aware when taking such meds.
Best of luck.
Vaginal Medication Link to Ls
Posted by Lynn (Madison, Ms) on 11/05/2011
★★★★★
Hi Everyone, I've been looking for anwers in many places regarding LS, I've had this for over 10 years myself and it affects my bottom/anal area mostly and I just got fed up with it all!
#1 I've greatly redued the amount of gluten I take in, amost impossible to go Gluten free, but baby steps...
#2 Whole foods, veggies, meats, fruits... I TRY to stay away from processed foods.
#3 and the most important Take a GOOD probiotic. NSM sells a great probiotic, available online.
#4 DO NOT Use the Steroid cream if you can help it! I use A&D ointment on my bottom after every bathroom visit. I also use an aloe/vitatmin E Infused toilet paper, cottonnelle with Aloe & E and Unscented Baby Wipes with Aloe and E after every BM.
The LS is very manageable, I'll even have sex again, my Hubby is so happy... My Gyno is amazed, he said my bottom looked normal! No Steroid cream for over 4 months... IF I have a flareup he suggested minute amounts of the steroid mixed with the A&D ointment... But so for ok, the ointment takes the "edge off" any itchy burny sensation. I know this doesn't cure the LS, but it greatly reduces the effects. Some holistic MD's say the issue is fungus so I'm on it about the probiotics.. I take a double dose once a day... Stay away from Dairy as well even yogurt w/ probiotics...
Vaginal Medication Link to Ls
Posted by Jillery (North Carolina) on 01/09/2016 84 posts
An ok theory for some, but there are little kids who get LS and people who have never used vaginal meds... But true I think that stuff can precipitate LS in others. Look at all the variations of symptoms too.
Eliminating Dairy
Posted by Kerry (Wenatchee, WA) on 07/23/2009
★★★★★
I was diagnosed with Lichen Sclerosis 4 years ago in genital area and my eye lids. What I found that helps the most is to eliminate dairy from my diet. For a year or more, I had to eliminate all mammal products too. So no dairy, pig, cow, lamb, etc. So first, figure out if you have a food sensitivity. Second, DON'T eat foods that bother you. Gas, diarrhea, bloating, constipation. These are all signs that your body can't tolerate what ever you ate. Symptoms can be fairly immediate to 24 hours later.
Third, take a high quality fish oil. For me, 4,ooo mg seem to do the trick. I don't have any vaginal itching and my eyelids don't stick to my eyeballs at night as long as I unless I indulge in cheesecake on my birthday or forget to take the fish oil.
As a side note, as of two years ago, I have adrenal fatigue too. These measures help with that too.
Wheatgrass
Posted by Venda (Redmond, Wa) on 01/19/2012
Biopsy showed lichen sclerosis, sorry I always misspell this. Prescribed ointment thinned out skin so it would easily break, so I stopped. Also when preg wanted natural option. Best natural relief: Burt's bees chapstick, with peppermint is the best. Can be used several times a day without irritation. Shower daily a must. If leaking urine after baby, wipe with wipey as well for extra cleaning. Actually have always been very sexual, and luckily this hasn't affected my drive :)
Wheatgrass
Posted by Patty (Me) on 05/01/2017
Hi - People don't always have all the symptoms at once. What you are describing sure sounds like LS. You said you've seen doctors, have you brought up LS to them? Maybe ask your doctor to referrer you to an OBGYN or a Derm who specializes in LS. My biopsy came back positive, but they don't always, yet you still have it. I wish you luck.
Vitamin E
Posted by Andrea (Asheville, NC) on 03/01/2009
For Lichen Sclerosus, I have found that using a vitamin E capsule like a suppository overnight usually takes care of symptoms overnight. My MD prescribed steriod creams, which also work, but not as well. However, they are more convenient to use during the day. Although steriod creams are not natural, I believe a natural estrogen cream may work the same way. I have read lately that lichen schlerosis is often triggered by a decrease in estrogen in the body, so I'm experimenting with increasing intake of soy products, which contain natural estrogens. My MD also recommended probiotics and turmeric to control symptoms. Apparently, there is no cure available, just good symptom management.
Change Fabrics
Posted by San (UK) on 01/24/2024
★★★★☆
I have this condition and have had from some years now. I was prescribed Dermovite cream which is a steroid and although it works to reduce the inflammation I don't take kindly to anything prescribed by GP's, so rarely use it and found other ways to bring some comfort. I use Emuaid Cream, which has proved to be a great success. However, I think it may be certain fabrics that cause this problem because I always buy stretch fabric jeans and there is one particular pair that has more elastane in than others. I find that when I sit in them for a prolonged time, the itching begins. It could also be washing powders or softeners used in your machines. For now I'm going through the fabric experiment!
Change Fabrics
Posted by Sandra (Somerset) on 10/15/2024
★★★★★
I absolutely agree regarding certain stretch fabrics. The more elastane in jeans, the worse things are as I suffer from this condition too!
Vitamin E and Quercetin Cream
Posted by Julie (Pittsburgh, Pennsylvania ) on 11/10/2022
Could you tell me the name of this cream and where you purchased it?
Essential Oils
Posted by Veronica (PA) on 06/22/2022
★★★★★
Clobet whatever it's called is a horrible steroid medication it would have me burning 🔥 like crazy or itchy like I would scratch so hard it was crazy. But I was so dry and skin on vulva would Crack or I would get tears near the opening or around the clitoris. Every time I peed it was torture.
TRY THIS RECIPE:
Coconut oil (best one they sell in Walmart)
All Organic Essential Oils: Lavender, Frankensence, Rosemary, Tea Tree Oil.
1 TBL SPOON COCO OIL 3 DROPS ESSENTIAL OILS. SO YOU WILL NEED 4 TABLESPOONS SO YOU CAN PUT 3 DROPS OF EACH OIL.
If you have Vitamin E capsules pierce 2 and add that too. Store in Fridge.
Put it on before you go out but wear a pad cuz it's messy. After evening shower put it again. It feels so soothed immediately. You will feel the difference by the next day. So moisturized and wonderful. It's amazing. I promise you. My condition is so bad I no longer have Labia Minora. The skin stretched it away. My vaginal opening is so small and tight and too painful for sex. It's been about 4 years.
TRY IT PLEASE!!! You can also use those same 5 ingredients in your hair/scalp for hair thinning. But you should use MCT/Fractionated coconut oil in hair and Organic Sweet Almond Oil. Use on freshly washed DRY hair. Leave in for 2-3 hours with a plastic cap if you can leave in overnight and then wash gently and condition hair in cold water from middle to ends not scalp. Try to air Dry but if you must blow dry use cold setting.
PLEASE I BEG YOU TO TRY MY DIY REMEDIES. YOU WONT BE DISAPPOINTED.
Clobetasol
Posted by Monica (Monica) on 03/22/2025
so sorry for what you're going through. I also had to have a biopsy b/c of thickened skin and omg never again without an anaesthetic, not even or especially the numbing injection.
I'm off processed foods, wear only cotton underwear, and will definitely wash new underwear in the future. Shame on those big corporations that put more care into how much they make than how their handling of their products affects their customers. Not to get "political" but this is a classic example of why there needs to be regulations and plenty of them.
Dietary Changes
Posted by Karen (Meridian, ID) on 05/06/2020
Robin, this is amazing! Please share with us a typical day's meals, and update after being on this diet for a longer term. Blessings to you!
Homeopathy
Posted by Beebs (Scotland) on 02/15/2020
★★★★☆
When I went to my GP with symptoms and white patches I was told I may have thrush .. a swab was taken and sent to the lab. In the meantime I was given a cream to relieve the itch ( Of course it didn't relieve the itch..). Later that week I met with my friend .. and it was my friend who told me I had LS... she had the exact same symptoms but hadn't been diagnosed quickly. I went back to my GP and she confirmed that I did indeed have LS. I was prescribed an emollient to use when showering/washing and a steroid cream.
I used both and the steroid cream did help but I didn't want to be using it on a daily basis. My GP referred me to a homeopathic doctor and I was prescribed a remedy called Acidicum Nitricum (nitric acid ).
I take this remedy daily and also use the emollient on a daily basis .. Since I started using the homeopathic remedy I have only had to use the steroid cream on a handful of occasions. I tend to use Organic Aloe Vera Gel in the first instance. I think the fact that I was diagnosed early ( albeit through my friend ) has helped keep symptoms to a minimum. I was not aware that LS was progressive and have gained knowledge from reading others posts. My friend was mis- diagnosed on several occasions and as a result has many problems associated with LS.
There are many things which can trigger LS flare ups the main factor being stress. Diet can play a big part in alleviating symptoms. Everyone is an individual and if you find something natural that helps you then go for it.
Dietary Changes
Posted by Katrien (The Netherlands) on 04/27/2022
Hoi,
Wat een verhaal, Mijn ayurvedische kunsten. Heeft me verteld. Na 15 jaar LS-problemen, witte westerse kunstmedicatie en gels DR. medication and gels Nu suiker, Geen industrieel voedsel It goes better, but dificult to follow this diet.
Hi,
What a story. My ayurvedic arts. Told me. After 15 years of LS problems, western art meds and gels DR. medication and gels Now sugar, No industrial food. It goes better, but dificult to follow this diet.
Urine Therapy
Posted by Yofi (USA) on 02/01/2020
★★★★☆
A bit of your own urine stops the itching of LS almost immediately but only temporarily. I also agree with others who have reported that staying alkaline helps.
Urine Therapy
Posted by Yofi (USA) on 02/01/2020
I just apply the urine topically when I pee and let it dry naturally if I have the time or pat excess off with toilet paper. A probiotic and/or anti-candida enzymes before bed also help w/ night-time itching. I learned about the urine tx from a traditional healer who did not charge me for the advice. Needless to say, this remedy is free and readily available. It's the most effective thing I've used in many years of dealing with LS.
Lyme Disease Connection
Posted by Bl (Ca) on 08/22/2018 31 posts
★★★★★
I am Lyme positive and have systemic Candida. I would think the Lichen Sclerosis if from Candida which most people with Lyme have. I have all three conditions. Yet my symptoms came on after antibiotics for ear infections. A nasal swab has proven they are fungal.
Dietary Changes
Posted by For ever better (Israel ) on 05/29/2023
Can you please share with us how you take the colloidal silver and which type?
MMS
Posted by Jackie (Dallas) on 02/23/2021
I will be having biopsy tomorrow but Dr said all my symptoms point to Lichen sclerosus, I have taken MMS in the past, but this pain has caught me off guard, it's like my inmune system has gone haywire, so I will start doing dlsitz baths with MMS, the new version protocol is CDS or Chlorine Dioxide, protocol on how to make it is on YouTube, Dr Andreas kalcker shows step by step how to make it in its purest form. There's also a spray protocol to dilute and use on skin like bacterial vaginitis, so I did do a sitz bath to nite with baking soda, warm water, helped a lot, the creams I'm still researching which to use, organic coconut oil is my go to cream, but needed one like a barrier to help while sitting, I tried Vaseline with Shea butter and it works pretty good, the only thing is gotta reapply after each pee, washing thoroughly, but I'm hopeful that MMS will cure it completely, it got rid of my pollen allergies a while back and helped me with the covid virus back last March.
Vitamin D3
Posted by Liz (Florida) on 10/08/2022
Are you in remission?
Comfrey
Posted by Sue (Fl) on 10/24/2018
How about cbd cream?
Lichen Sclerosus Triggers
Posted by Effie (Tas) on 09/23/2020
Excellent contribution, I agree whole heartedly. Well said. Our internal world is going to manifest in all kinds of physical symptoms, our bodies work to get us to listen, we need to do that.
Lichen Sclerosus Triggers
Posted by Suzanne (WA) on 01/04/2023
My LS history is definitely related to psychological issues. I am an incest survivor. While I look to manage LS symptoms because they can be so disturbing, I am well aware that the root cause lies in my history. Medical people have not a clue about this. They just cut, burn and poison with chems.
LS and Thyroid Connection
Posted by Karen (Uk) on 08/26/2015
★★★★★
Definitely. My sister read anything she could find on LS and our mother had thyroid problems, thyroid removal and in later life developed chronic crohns disease. Poor immune system.
Dietary Changes
Posted by Melissa (TN) on 08/06/2023
If you happen to see this, could you post how you did the essiac tonic detox? I drank essiac every day for a year and it made no difference but I didn't change my diet.
LS and Thyroid Connection
Posted by Cyn (Wa State) on 02/22/2015
Lynn,
I have had LS for about 15 years. Your post concerns me because you fail to consider that this is a progressive disease.You are in the early or mid stages, and I assure you there is no going backwards. I urge you to arrest the progression before you have irreparable damage. By the symptoms you are reporting, the disease is marching forward. This is not good..
There are stages to the disease that are much worse than you are experiencing now. I urge you to seriously educate yourself on this disease. I know a great resource!!
I belong to a wonderful LS support group, well over 10,000 women and men are members, discussing what is working.. Please get ahold of the LS before it progresses much further.
Here it is:
https://groups.yahoo.com/neo/groups/LichenSclerosis/info
This is REALLY WORTH YOUR TIME.
Sincerely, Cyn
LS and Thyroid Connection
Posted by Nancy (Indianapolis) on 10/12/2015
I had hyperparathyroidism, had parathyroid removed, which fixed that, but have lichens acutely. Used clobatasol and premarin cream for years and cannot get rid of it. It even hurts to urinate.
Frankincense Oil
Posted by Mary (Minneapolis, Mn) on 04/10/2014
I had a question about the frankincense oil, did you use it straight or diluted?
Vitamin E, Lavender Oil
Posted by Vicky (N. Carolina) on 11/29/2021
Can you be specific in amounts of lavender oil, frankincense, castor oil and whatever else?
Vitamin E, Lavender Oil
Posted by Robbie (Missouri (mo)) on 04/07/2016
How much of each of these ingredients for Lichen Sclerosus?
Vitamin E, Lavender Oil
Posted by B (Ca) on 06/20/2016 31 posts
Could you please post how you used the oils, how much...
Vitamin E, Lavender Oil
Posted by Cheryl (Tennessee) on 05/12/2017
Review post.... how did you use these oils? How much of each?
Witch Hazel
Posted by Christine (Geelong Victoria ) on 09/11/2022
I think l agree with you if it is indeed that then cellerly would be good too
Essiac Tea, Homeopathy
Posted by Linda (Alice Springs, Australia ) on 05/01/2015
Hi Kate. You mentioned a number of homeopathic remedies you used. I am currently using urtica urens based on your advice. It is helping but not complete. How did you use so many remedies? In what order, when and how much? Thank you
Essiac Tea, Homeopathy
Posted by Evan (Los Angeles) on 10/01/2017
Can you please say which homeopathic remedy was helpful for the skin splitting?
thanks~
Essiac Tea
Posted by Joni (Selma, Oregon) on 11/20/2012
Hi Daisy, The only type of Essiac I've seen is in a powder form for making a tea. You said your product is in liquid form. Is this a tincture? How wonderful this has cured you!
Essiac Tea
Posted by Kim (Florida) on 08/19/2013
To Daisy from Ewa Beach: Does the Essiac tonic still works for you? I was going to try it myself and was wondering if your LS ever came back?
Essential Oils
Posted by Nym (Australia) on 01/28/2021
Words have meaning. Also see Leaky Gut - the true cause of all disease.
Low Oxalates Diet
Posted by Danise (Illinois) on 04/30/2018
Try 4 tablespoons castor oil....Organic 2 drops essential Lavender oil, 1 drop essential lemongrass oil......that's it. Bought mine from herbal store...supposed to work. anyway they say dont use more drops than what ingredients call for. Just diagnosed....comes and goes...flare ups are horrible...no soap, just rinse warm water....began wearing boxers or mens underwear soft cotton equipo boxers.
Vaginal Medication Link to Ls
Posted by Carol (Agoura Hills) on 10/09/2013
My daughter has been suffering with LS she is 12 and has had it for some time. I didn't use the steroid creams but now I am as fear it has progressed. It is very itchy and lots of discomfort. We had tried holistic treatments and herbs and acupuncture as well. I am very interested in the light therapy where do you go to get that? Where do they use the light exactly? Please help. Thank you
Vaginal Medication Link to Ls
Posted by Katy (New York) on 10/10/2013
Carol... Not sure exactly what you have tried or if you read thru the other posts on the site. I can only suggest what I has worked for one of my clients who had it. I had her use infused oregano oil 3 to 4 drops under the tongue, twice daily. I also suggested making a vaginal douche consisting of 50% apple cider vinegar, 50% distilled water with a healthy tablespoon of plain yogurt mixed in. This will be very soothing as well as help the tissues to heal. Diet is also a concern as I'm sure you know and I'm sure you've talked with her about diet, but it is important - getting her to stay away from sugar may be a challenge, but it is necessary.
With her diet, if she can get a lot of probiotics into her from yogurt, kefir, sauerkraut (it's got to be fresh - not canned, bottled - pasturized), also kombucha is a good source. Hope she finds relief soon! Katy
Eliminating Artificial Sweeteners
Posted by Lori7nty7 (Nashville, Tn/usa) on 01/21/2011
★★★★★
For Lichen Sclerosus, eliminate diet drinks, Soda and Crystal Light sweetened with aspartame from your diet. Aspartame is made out of wood alcohol, a toxin. When Aspartame 1st came out many years ago, I had the same symptoms, they now call Lichen Sclerosis. My doctor worked with me eliminating foods and drinks I was ingesting. We found my symptoms would elevate after aspartame drinks. After eliminating aspartame from my diet, I felt relief within a few weeks. Although it took a year to clear up all symptoms. I have been free of all symptoms for many years now. I read all labels, I do not eat or drink anything with aspartame.
Eliminating Artificial Sweeteners
Posted by Rita (United States) on 05/22/2014
I have noticed a lot of comments about artificial sweeteners being suspect. Not true in my case. I am 45 years old and have always avoided artificial sweeteners due to the controversies. I have found that less sugar, in general, has helped with mine. When I was first diagnosed, I was given Clobetasol. At the time, my vulva had scarring but nothing like it does now. I won't be graphic but I do believe the steroid cream/ointment is what has caused even more narrowing/scarring at my vaginal opening and various other important areas. I also, strongly believe, I have an undiagnosed thyroid issue.
Coconut Oil
Posted by Deziner (Pennsylvania ) on 07/24/2020
Soy and Canola oils both cause severe itching swelling and inflammation. Grains of any kind also cause reactions. Eliminate wheat, oats, corn, rice, mullet, quinoa, barley, and all oils made from them. I'm convinced it's an allergy for me.
Vaginal Medication Link to Ls
Posted by Qkas704 (60466) on 07/01/2022
I too had been treated several times for BV and later came down with LS.
Vaginal Medication Link to Ls
Posted by Adrianna (Chicago, Il, Usa) on 07/26/2010
I was diagnosed with LS 10 years ago. It happened shortly after having oral sex. I have used a vaginal cream since then, but off and on. Not on a regular basis. About 2 years ago I had surgery in which I took antibiotics and pain meds. Within 2 months I started noticing some really weird things happening to me that never happened before. Since then I've been researching relentlessly on what could be wrong with me. My conclusion is the antibiotics, drugs, creams etc. . . are bad for us. I have candidiasis because antibiotics not only kill the bad bacteria, but the good. This in return let yeast grow out of control in my body causing skin issues, digestive issues, dizziness, drunkenness, etc. . . I believe the only way to get better is to change your life away from the SAD (Standard American Diet). Eat healthy, meaning fresh fruits (very little), meats and vegetables. Try to buy organic, if possible. The pesticides and hormones sprayed/injected into our foods ultimately get inside us and also affect us. No processed, canned, packaged foods. No lunchmeats, sweets, etc. Obviously it can be very difficult to completely stay away from these foods for the rest of your life. I love sweets so I know. I try to eat healthy 99% of the time though. Educate yourself. Research candidiasis, get on a good probiotic, see if you could benefit from digestive enzymes, fish oils, read the Metabolic Typing Diet, search for Yeast Infection No More online book, how dental work can have you suffering (mercury in your mouth), metal in your body. I recently had an eery feeling my LS was linked to my diet as well as all the other issues I've dealt with in the last year. I believe it is true because when I was following a super healthy diet for 5 months (no dairy, only brown rice pasta, brown rice cakes, brown rice, fresh veggies, little fruit (mainly berries) and protein) NO sugar whatsoever and only drank water or decaf herbal teas, continued to exercise, reduce my stress level and take some supplements I had no anal itching and very little if any vulva pain/discomfort.
I also recently decided to research the cream I've been using over the years for my LS and one of the things it says can occur is folliculitis. Last October I woke up one morning with tiny red bumps all over my legs. I have not confirmed by a doctor that it is folliculitis, because I refuse to have anyone try to make me take any medications/creams (drugs)or antibiotics. I am on a mission to change my life for the better and it involves natural/holistic treatments. Always question your doctor and if you don't believe what they are suggesting it is best for you get a second opinion. I recently had to have my wisdom teeth removed and the first oral surgeon I met with said I would have to go on antibiotics and pain killers. I refused because I knew what that mess of meds got me in a year and a half ago. I searched for a holistic dentist and found one who guided me in the right path so I was able to do stay away from the antibiotics and pain meds by using a great quality probiotic and digestive enzymes for inflammation/pain.
I hope some of this helps someone else!
Vaginal Medication Link to Ls
Posted by Sandra (Grantham, United Kingdom) on 08/14/2010
HI
MY DOCTOR AS ADVISED ME TO USE AN EMOLIENT CREAM FOR WASHING/CLEANING THE VAGINAL AREA. THIS HELPS TO STOP IT FROM DRYING OUT, WHICH IN TURN WILL GIVE THE AREA TIME TO HEAL.
Vaginal Medication Link to Ls
Posted by Angela (Pasadena, Ca, Usa) on 10/11/2011
I think that you will find that many people with LS were treated with creams before diagnosis because they or their doctors thought their symptoms were candida. So that would mean they already had LS, not that the creams caused it. That is what happened to me. I was diagnosed with LS after 10 years or more of symptoms that were missed by many doctors and midwives. One midwife saw that it wasn't candida, and saw the changes in the skin, but she apparently knew nothing of LS and called it non-specific bacterial infection, and had me take peridine baths. I've been using clobetasol sparingly for 19 years, and it has arrested the progress, but I don't want to use it anymore.
Vaginal Medication Link to Ls
Posted by Clara (Massachusetts) on 09/24/2014
Mary, I'm having some of the same issues. What kind of doctor performed the UVB laser treatments for you? An OB/GYN or Dermatologist? Have the results lasted for you since your last post? Thank you for your help. The steroid cream is helping but not doing enough and some symptoms are progressing.
Vaginal Medication Link to Ls
Posted by Jamie (Canada) on 02/14/2016
Wendy, your post is so interesting to me. I have had skin issues since I was a teenage (40 years). My skin would itch and burn and small sores would erupt that were like a burn and sometimes would grow to and inch big. I have scarring all over my upper arms, upper back and legs. As a teenager, I was diagnosed with psoriasis. After many years of dermatologists and naturopaths, everyone was perplexed because nothing helped.
I developed LS a year ago and through research was led to Trying Low Oxalates. I went on a low oxalate diet and this has helped tremendously! Many vegetables, fruits, beans, nuts, etc are not my friends.
Like you, the less food I eat, the better I feel! I only have LS breakouts, itchy, burning skin when I eat higher oxalate foods.
Thanks for sharing. I rarely run across anyone who has experienced the whole skin thing.
Vaginal Medication Link to Ls
Posted by Patty (Me) on 05/01/2017
I have had the hood of my clitoris removed 3 times over the past years, it always grows back with LS. Like many people, I was diagnosed with candida years before LS was recognized. It certainly is not a pleasant condition. I plan on trying many of the treatments people have posted here. This is a wonderful site, I'm sure glad I came across it. I wish every one the best of luck. If I find something that works for me, I will be sure to post it.
Vaginal Medication Link to Ls
Posted by Irene (Timmins Ontario) on 05/09/2017
Seeking more info regarding A&D creme.
Eliminating Dairy
Posted by Jackie (Houston, Tx) on 09/24/2009
Hi Kerry,
I noticed that you mentioned you had this Lichen Sclerosis on your eyelids. Can you describe what the symptoms are on the eye? I believe I have LS in the nether regions but noticed that my eyes have been very dry and itchy. I thought that maybe there is a connection.
Thank you,
Jackie : )
Eliminating Dairy
Posted by Paula (Garrison, Ky) on 09/29/2009
I have noticed the same thing, all meat, dairy and even sugar acts up my LS horribly. Ive basically went Vegan since the perscribed cream did nothing for me and my dr ran out of options and I was told to "learn to deal with it". I went on an all juice diet thinking it might be linked to my thyroid or something else so I juiced daily, then I noticed I felt great during the 7 days of all juice, when I added in food back in its when I noticed the symptoms back with in minutes of eating certain food. The only time my LS goes away is when Im sick then I have No LS at all until my cold/flu goes away then it comes back with a vengance!!!
Eliminating Dairy
Posted by Frannie (Wilsonville, Or) on 09/12/2010
Kerry from Winatchee....... I also suffer from both ailments - adrenal fatigue and lichen schlerosis. I had the lichen schlerosis under control with steroids, but now it's back worse than ever a few years later. I'm looking for a better solution. Natural if possible.
Eliminating Dairy
Posted by Elizabeth (New Zealand) on 02/27/2015
★★★★★
Wow, I hadn't put the two together. My eyes are dry and red when I have the flare ups. Never realized that before this post. Thank you.
Wheatgrass
Posted by Stacy (Durango, CO) on 07/12/2009
Hi, I haven't ever used this form of communication before but I have a question. A friend suggested to me that I may have lichen sclerosis. I have tiny razor blade slits up the sides of my labia majora (both sides)- they bleed and sting and feel much like a razor blade cut. Sometimes it seems to go across my perineum and over my anus, causing that to also be painful. I used to only think that it was from sex and maybe I had an STD but have been checked many times and seem to baffle the practioners - they often start questioning me about abuse. Well, now, I haven't had sex in two months and I have it again - so I am trying to figure out what it may be - my symptoms do not seem to be the same as what you are describing but I'm trying whatever avenue I can because it is quite painful and debilitating and I recieve no valid answers from practioners.
Wheatgrass
Posted by Linda (Houston, TX) on 07/21/2009
Stacy from Durango - According to my good friend, a dermatologist, Lichen sclerosis can be diagnosed with a biopsy of the skin. According to her it is not that uncommon and you should be able to ask a derm or ob-gyn to biopsy the skin so you can get an answer and start treatment. I too have been diagnosed with it but I haven't had the biopsy yet. I will be doing that soon so I can get a definite answer. Steroid creams are used quite a bit to bring the skin back to normal. If you don't want to waste your time with an uninformed doctor, try calling ahead and find out if they're familiar with the condition. Good luck
Wheatgrass
Posted by Mary (Valencia, Ca) on 02/07/2010
★☆☆☆☆
I was desperate for relief and decided to try the Wheatgrass lotion. The delivery was great. However, when I put the lotion on the vaginal area it burned like crazy. Not just for a short time. I put some more on later thinking it just takes time. Again the burning. So, I went back to my salt water which seemed to relieve the burning for a while. There must be something else out there but I don't have a clue. I don't have the itching, I have the soreness (sitting and exercising are very uncomfortable), redness and inflammation.
Mary
Wheatgrass
Posted by Tropical Qld (Australia, Qld) on 09/25/2011
I have had LS for 13 years and had no idea what it was until I saw this post.
I have gone to the doctor and each time I go, they diagnose me with Thrush. So I'm so grateful to find that there are other women out there.
I noticed this in my teens and found everytime I had candy, chocolate or anything high in sugar, the itching would get worse. Bread from the grocery store and carbs in particular would also make the itching worse. For this reason, I just limited my carb and sugar intake (I have the sweetest tooth ever! ) and found that it was fine. Exercise, like 30 minutes of intense cardio regularly really helps with the symptoms.
I have young children and my diet has gone out the window and I've noticed that my symptoms are getting worse and the burning is getting more intense. I think I will have to get back on the bandwagon and continue with a 'healthy lifestyle.'
I have found cocoa butter oil helps with the itching and it's funny as I bought neem oil a couple weeks ago for this reason and looks like other ladies on this site have found it helpful.
Wheatgrass
Posted by Ingrid (Belgium) on 04/06/2017
I have had this question too.
Vitamin E
Posted by Jillery (Nc) on 02/14/2016 84 posts
Try adding Red Clover herbal pills... they supposedly increase estrogen. They have helped my LS symptoms a GREAT DEAL!!
DMSO
Posted by BdetteR (United Kingdom) on 10/30/2023
Thank you for this update. It's helpful to know of the concentration you are using given there are so many concentrations of DMSO available. That there is a combination with comfrey and castor oil is interesting, too. I don't know about Tallow Balm so will look. I am about to use DMSO to work with herniated discs and adhesions in my neck and wonder if comfrey would be additionally helpful given its effects on bone, flesh and cartilage healing.
Dietary Changes
Posted by Bliss (FL) on 10/08/2023
Did it work for you?
Clobetasol
Posted by Julie (England Essex) on 11/05/2021
Hi Melissa, has the hot baths and cream application still working for you? I am also finding it difficult to get the itching and soreness under control I was diagnosed in June after a punch biopsy and recently had really dry skin on either side of my clitoris that has shrunk back as of yet no white plaques on vulva. Thank you.
Clobetasol
Posted by Marlene (Nc) on 09/25/2020
★★★★★
I have had LS for years and only had it diagnosed 2 years ago. My dermatologist put me on Clobetasol Propionate and it works wonders.
Ozonated Olive Oil
Posted by Karen (AZ) on 12/05/2023
I've been using o instead hemp oil too. Powerful and hemp has the highest frequency out of the oils so I thought to go that route. Have you noticed the white patches returning to healthy link yet? Does that even happen?
Dietary Changes
Posted by B. Latifa (Algerie) on 03/26/2022
هل ممكن ان تدليني عن هذه الحمية الخالية من اللحم، لاني مريضة منذ 4 سنوات بمرض الحزاز المتصلب وشكرا
Can you tell me about this meat-free diet, because I have been ill with lichen sclerosus for 4 years, and thank you.
Homeopathy
Posted by Ann (USA) on 05/30/2020
Beebs, Can you tell us whether acidicum nitricum was a remedy specific to you/our constitutional type, or is it a remedy that is known to work for anyone with LS? I think your homeopath would know this. Thanks for sharing.
Dietary Changes
Posted by EB (So US) on 02/14/2020
Carol, do you eat wheat or other grains? Are you sure it is LS? Have you had a biopsy? Thanks.
Dietary Changes
Posted by Cat (UK) on 05/26/2023
Hi Jen,
hoping you still have access to this thread. I wondered about your progress, if it was healed ect. also you mentioned the white patches are all gone. did you mean they re- pigmented. Tanks Cat
Oregano + Coconut Oils
Posted by EggBiscuit (Georgia) on 10/29/2019
★★★★☆
Hi Jill, How are you doing now? I tried several oils and creams and the clobetasol seemed to remove the white spots after a month but soreness persists. ( I, too, am from IL but do not live there at the moment.) Have oregano oil and will try with some coconut oil.
Oregano + Coconut Oils
Posted by For ever better (Israel ) on 05/30/2023
Thanks for sharing. After which period did you see results? it stopped the atrophy or regenerated tissues as well?
MMS
Posted by Mary (Tx) on 06/15/2020
Just ordered MMS for a different condition, then was wondering if this would also help a daughter with LS. Saw your post. Are you still in recovery? Thanks!
Mary
MMS
Posted by Latifa (Geneva) on 04/13/2024
L.S. Rita's feedback on her use of MMS for lichen sclerosis is most interesting. As for the internal use for eight days, gradually increasing the doses, does this mean 8 daily intakes of 125 ml? I did that last year without having knowledge of MMS benefits for lichen sclerosis and found it quite awkward with the 10 minutes abstention before and after food intake. Is there a less constraining alternative for internal use? Can some drops of essential oils be added to the MMS sit bath mixture? Can I use the aquarium MMS for the sit- bath? And for drinking water for human consumption? Does MMS neutralize and eliminate heavy metals? If yes, can this substitute Zéolith? Thank you in advance for your kind reply.
Prescription Meds for LS
Posted by Jillery (Rawlly, Nc) on 12/24/2017 84 posts
★★★★☆
I have tried just about every natural remedy that is listed in EC even with help of my naturopath for a few years. I finally went to a dermo who is well versed in LS and he prescribed Acitritin (ended up on 25 mg per day until he decides to decrease again. We ramped up originally as he had good results with other patients ). I also use a topical as well. I still get flares but it is from stress or skipping the ointment a few days or weeks. He feels if I do this for a year I may be able to go off of everything. My skin is so much nicer. The ointment is called Tacrolimus 0.1% Doc also has me use Burt's Bees baby wipes. He is in Chapel Hill NC. Dr Kenneth Becker. Some of the natural stuff would work a few days or weeks and then I would get a horrible flare. This rash just seems to continuously morph... but that is autoimmune stuff. I keep reading just incase something diff comes along so I don't have to do the drugs. (btw, my LS was a dry spot outside vagina and then a 'hot spot' where my butt cheeks touch. I have gotten 'plaque' (really weird dry skin) in both those areas. I had also had like a thrush baby rash from my mound up and over my belly. I have my labia and clit. Good luck all.... lots of work. hugs~
Lyme Disease Connection
Posted by Tonya (Minnesota) on 09/27/2017
Lora, can you tell me where you read about the connection to Lyme's diesase?
Lichen Sclerosus Triggers
Posted by Anna H (Ireland) on 11/21/2016
Another possible cause of LS...
I have had LS for 20 years and while it mostly stayed calm, lately the itch around my genital area is off the chart so I am delighted to find lots of options on your site to try out. I had a suspicion, which others have validated, that years of wearing sanitary towels is a possible contributor, especially if during the 70's, 80's etc.
Comfrey
Posted by Compastella (Middle East) on 11/28/2016
Anna,
Please I need to know exactly what the cream is and where to get it urgently. The pain is immense.
Comfrey
Posted by Laurie (Lady Lake, Fl) on 01/24/2017
How can I get some of the comfrey cream from Croatia? I am desperate😟
Platelet Rich Plasma Injection Therapy
Posted by Kat (San Francisco, Ca ) on 08/25/2016
Can you tell me or email me the name of your doctor? I live in the area and I have been researching the treatment. Thank you for sharing!
Platelet Rich Plasma Injection Therapy
Posted by Kathy (Capitola) on 05/16/2017
Can you tell me what Dr. you went to? Would greatly appreciate it. Thank you.
Platelet Rich Plasma Injection Therapy
Posted by Saro (Nashville, Tn) on 07/15/2017
Ocean51, could you be so kind and give an update on how you are doing now, please share your doctor that performed the treatment for you, thank you
Platelet Rich Plasma Injection Therapy
Posted by Lana (London) on 04/15/2018
Hello Ocean51, how is your LS doing atm? This post is from 2 years ago but I hope you will read my message. I have recently been diagnosed with LS and I am looking to try PRP. Your feedback will be extremely helpful. Did you need to do another PRP treatment of several sessions? If yes, in how many months after the first one? Was the effect as strong as the first time? Are you using any steroid creams atm?
Warm regards,
Lana
Platelet Rich Plasma Injection Therapy
Posted by Aloha Granny (Maui) on 09/08/2021
Dr. Coyle does PRP with laser treatment called the Tulip procedure. He is in Pensacola, Florida.
Platelet Rich Plasma Injection Therapy
Posted by Melanie (London) on 02/28/2022
Hi,
Would you mind sharing the details of where we could find this dr please
EC: A number of doctors now perform Platelet Rich Plasma Therapy. You can search Google using those search terms for a local doctor in your area.
Lichen Sclerosus Triggers
Posted by Arlene (Colorado) on 11/15/2016
Jodi, I think you've got something there. I've had LS for almost 30 years. It started in 1987. I was having sex with my ex-husband 5 years after we were divorced. I think mentally I was trying to stop and that was my defense mechanism. Thank goodness he met someone and stopped needing me. You mentioned Aloe Vera but didn't say if it helped. Please let me know.
Colloidal Silver
Posted by For ever better (Israel ) on 05/29/2023
does it cure it?
Coconut Oil, Homeopathy
Posted by Rusty (Lansing, Mi) on 05/08/2015
Hi Linda, May I ask where you had your UV therapy done? Was it at a dermatologists office? Thanks.
Coconut Oil, Homeopathy
Posted by Rusty (Lansing, Mi) on 05/08/2015
Hi Linda, May I ask where you had your UV therapy done? Was it at a dermatologists office? Thanks.
