The comments below reflect the personal experiences and opinions of readers and do not represent medical advice or the views of this website. The information shared has not been evaluated by the FDA and is not intended to diagnose, treat, or prevent any disease or health condition. Always consult a qualified healthcare professional for medical concerns.
Chlorine-Free Toilet Paper
Posted by Diana (California) on 11/08/2019
★★★★★
Buy NON-CHLORINE TOILET PAPER. and LS will slowly disappear. Hurray! I buy mine at Whole Foods. W.F. makes their own but I buy Seventh Generation. The recycled chlorine free is pricey at a dollar a roll but worth it. Yes, recycled toilet paper sounds dreadful but apparently we can save forests of trees with it and THAT'S worth it. Your new year will truly be a happy one.
Chlorine-Free Toilet Paper
Posted by Aloha Granny (Wailuku, Hawaii) on 06/10/2020
Instead of any toilet paper, use toilet seat bidet— Brondell Swash SE600 Bidet Toilet Seat is a good one. There are many types out there. Using a toilet seat bidet is the only Way to go. You will always be totally clean. Will pay for itself and save a lot of trees.
LS Connection to Lyme Disease
Posted by Bl (Ca) on 08/22/2018 31 posts
I am Lyme positive and have systemic Candida. I would think the Lichen Sclerosis if from Candida which most people with Lyme have. I have all three conditions. Yet my symptoms came on after antibiotics for ear infections. A nasal swab has proven they are fungal.
MMS
Posted by Jackie (Dallas) on 02/23/2021
I will be having biopsy tomorrow but Dr said all my symptoms point to Lichen sclerosus, I have taken MMS in the past, but this pain has caught me off guard, it's like my inmune system has gone haywire, so I will start doing dlsitz baths with MMS, the new version protocol is CDS or Chlorine Dioxide, protocol on how to make it is on YouTube, Dr Andreas kalcker shows step by step how to make it in its purest form. There's also a spray protocol to dilute and use on skin like bacterial vaginitis, so I did do a sitz bath to nite with baking soda, warm water, helped a lot, the creams I'm still researching which to use, organic coconut oil is my go to cream, but needed one like a barrier to help while sitting, I tried Vaseline with Shea butter and it works pretty good, the only thing is gotta reapply after each pee, washing thoroughly, but I'm hopeful that MMS will cure it completely, it got rid of my pollen allergies a while back and helped me with the covid virus back last March.
Vitamin D3
Posted by Liz (Florida) on 10/08/2022
Are you in remission?
Comfrey
Posted by Sue (Fl) on 10/24/2018
How about cbd cream?
Lichen Sclerosus Triggers
Posted by Effie (Tas) on 09/23/2020
Excellent contribution, I agree whole heartedly. Well said. Our internal world is going to manifest in all kinds of physical symptoms, our bodies work to get us to listen, we need to do that.
Lichen Sclerosus Triggers
Posted by Suzanne (WA) on 01/04/2023
My LS history is definitely related to psychological issues. I am an incest survivor. While I look to manage LS symptoms because they can be so disturbing, I am well aware that the root cause lies in my history. Medical people have not a clue about this. They just cut, burn and poison with chems.
LS - Hyperthyroid Connection
Posted by Karen (Uk) on 08/26/2015
★★★★★
Definitely. My sister read anything she could find on LS and our mother had thyroid problems, thyroid removal and in later life developed chronic crohns disease. Poor immune system.
LS and Hypothyroidism Connection
Posted by Cyn (Wa State) on 02/22/2015
Lynn,
I have had LS for about 15 years. Your post concerns me because you fail to consider that this is a progressive disease.You are in the early or mid stages, and I assure you there is no going backwards. I urge you to arrest the progression before you have irreparable damage. By the symptoms you are reporting, the disease is marching forward. This is not good..
There are stages to the disease that are much worse than you are experiencing now. I urge you to seriously educate yourself on this disease. I know a great resource!!
I belong to a wonderful LS support group, well over 10,000 women and men are members, discussing what is working.. Please get ahold of the LS before it progresses much further.
Here it is:
https://groups.yahoo.com/neo/groups/LichenSclerosis/info
This is REALLY WORTH YOUR TIME.
Sincerely, Cyn
LS and Hypothyroidism Connection
Posted by Nancy (Indianapolis) on 10/12/2015
I had hyperparathyroidism, had parathyroid removed, which fixed that, but have lichens acutely. Used clobatasol and premarin cream for years and cannot get rid of it. It even hurts to urinate.
Frankincense Oil
Posted by Mary (Minneapolis, Mn) on 04/10/2014
I had a question about the frankincense oil, did you use it straight or diluted?
Vitamin E, Lavender Oil
Posted by Vicky (N. Carolina) on 11/29/2021
Can you be specific in amounts of lavender oil, frankincense, castor oil and whatever else?
Vitamin E, Lavender Oil
Posted by Robbie (Missouri (mo)) on 04/07/2016
How much of each of these ingredients for Lichen Sclerosus?
Vitamin E, Lavender Oil
Posted by B (Ca) on 06/20/2016 31 posts
Could you please post how you used the oils, how much...
Vitamin E, Lavender Oil
Posted by Cheryl (Tennessee) on 05/12/2017
Review post.... how did you use these oils? How much of each?
Witch Hazel
Posted by Christine (Geelong Victoria ) on 09/11/2022
I think l agree with you if it is indeed that then cellerly would be good too
Essiac Tea, Homeopathy
Posted by Linda (Alice Springs, Australia ) on 05/01/2015
Hi Kate. You mentioned a number of homeopathic remedies you used. I am currently using urtica urens based on your advice. It is helping but not complete. How did you use so many remedies? In what order, when and how much? Thank you
Essiac Tea, Homeopathy
Posted by Evan (Los Angeles) on 10/01/2017
Can you please say which homeopathic remedy was helpful for the skin splitting?
thanks~
Essiac Tea
Posted by Joni (Selma, Oregon) on 11/20/2012
Hi Daisy, The only type of Essiac I've seen is in a powder form for making a tea. You said your product is in liquid form. Is this a tincture? How wonderful this has cured you!
Essiac Tea
Posted by Kim (Florida) on 08/19/2013
To Daisy from Ewa Beach: Does the Essiac tonic still works for you? I was going to try it myself and was wondering if your LS ever came back?
Essential Oils
Posted by Nym (Australia) on 01/28/2021
Words have meaning. Also see Leaky Gut - the true cause of all disease.
Low Oxalates Diet
Posted by Danise (Illinois) on 04/30/2018
Try 4 tablespoons castor oil....Organic 2 drops essential Lavender oil, 1 drop essential lemongrass oil......that's it. Bought mine from herbal store...supposed to work. anyway they say dont use more drops than what ingredients call for. Just diagnosed....comes and goes...flare ups are horrible...no soap, just rinse warm water....began wearing boxers or mens underwear soft cotton equipo boxers.
Emu Oil
Posted by Peter (Auckland, Newzealand) on 07/20/2012
Ostrich oil seems to work as well, it could be that the oil from other birds may work as well.
Vaginal Medication Link to Ls
Posted by Carol (Agoura Hills) on 10/09/2013
My daughter has been suffering with LS she is 12 and has had it for some time. I didn't use the steroid creams but now I am as fear it has progressed. It is very itchy and lots of discomfort. We had tried holistic treatments and herbs and acupuncture as well. I am very interested in the light therapy where do you go to get that? Where do they use the light exactly? Please help. Thank you
Vaginal Medication Link to Ls
Posted by Katy (New York) on 10/10/2013
Carol... Not sure exactly what you have tried or if you read thru the other posts on the site. I can only suggest what I has worked for one of my clients who had it. I had her use infused oregano oil 3 to 4 drops under the tongue, twice daily. I also suggested making a vaginal douche consisting of 50% apple cider vinegar, 50% distilled water with a healthy tablespoon of plain yogurt mixed in. This will be very soothing as well as help the tissues to heal. Diet is also a concern as I'm sure you know and I'm sure you've talked with her about diet, but it is important - getting her to stay away from sugar may be a challenge, but it is necessary.
With her diet, if she can get a lot of probiotics into her from yogurt, kefir, sauerkraut (it's got to be fresh - not canned, bottled - pasturized), also kombucha is a good source. Hope she finds relief soon! Katy
Eliminating Artificial Sweeteners
Posted by Lori7nty7 (Nashville, Tn/usa) on 01/21/2011
★★★★★
For Lichen Sclerosus, eliminate diet drinks, Soda and Crystal Light sweetened with aspartame from your diet. Aspartame is made out of wood alcohol, a toxin. When Aspartame 1st came out many years ago, I had the same symptoms, they now call Lichen Sclerosis. My doctor worked with me eliminating foods and drinks I was ingesting. We found my symptoms would elevate after aspartame drinks. After eliminating aspartame from my diet, I felt relief within a few weeks. Although it took a year to clear up all symptoms. I have been free of all symptoms for many years now. I read all labels, I do not eat or drink anything with aspartame.
Eliminating Artificial Sweeteners
Posted by Rita (United States) on 05/22/2014
I have noticed a lot of comments about artificial sweeteners being suspect. Not true in my case. I am 45 years old and have always avoided artificial sweeteners due to the controversies. I have found that less sugar, in general, has helped with mine. When I was first diagnosed, I was given Clobetasol. At the time, my vulva had scarring but nothing like it does now. I won't be graphic but I do believe the steroid cream/ointment is what has caused even more narrowing/scarring at my vaginal opening and various other important areas. I also, strongly believe, I have an undiagnosed thyroid issue.
Coconut Oil
Posted by Deziner (Pennsylvania ) on 07/24/2020
Soy and Canola oils both cause severe itching swelling and inflammation. Grains of any kind also cause reactions. Eliminate wheat, oats, corn, rice, mullet, quinoa, barley, and all oils made from them. I'm convinced it's an allergy for me.
Vaginal Medication Link to Ls
Posted by Qkas704 (60466) on 07/01/2022
I too had been treated several times for BV and later came down with LS.
Vaginal Medication Link to Ls
Posted by Adrianna (Chicago, Il, Usa) on 07/26/2010
I was diagnosed with LS 10 years ago. It happened shortly after having oral sex. I have used a vaginal cream since then, but off and on. Not on a regular basis. About 2 years ago I had surgery in which I took antibiotics and pain meds. Within 2 months I started noticing some really weird things happening to me that never happened before. Since then I've been researching relentlessly on what could be wrong with me. My conclusion is the antibiotics, drugs, creams etc. . . are bad for us. I have candidiasis because antibiotics not only kill the bad bacteria, but the good. This in return let yeast grow out of control in my body causing skin issues, digestive issues, dizziness, drunkenness, etc. . . I believe the only way to get better is to change your life away from the SAD (Standard American Diet). Eat healthy, meaning fresh fruits (very little), meats and vegetables. Try to buy organic, if possible. The pesticides and hormones sprayed/injected into our foods ultimately get inside us and also affect us. No processed, canned, packaged foods. No lunchmeats, sweets, etc. Obviously it can be very difficult to completely stay away from these foods for the rest of your life. I love sweets so I know. I try to eat healthy 99% of the time though. Educate yourself. Research candidiasis, get on a good probiotic, see if you could benefit from digestive enzymes, fish oils, read the Metabolic Typing Diet, search for Yeast Infection No More online book, how dental work can have you suffering (mercury in your mouth), metal in your body. I recently had an eery feeling my LS was linked to my diet as well as all the other issues I've dealt with in the last year. I believe it is true because when I was following a super healthy diet for 5 months (no dairy, only brown rice pasta, brown rice cakes, brown rice, fresh veggies, little fruit (mainly berries) and protein) NO sugar whatsoever and only drank water or decaf herbal teas, continued to exercise, reduce my stress level and take some supplements I had no anal itching and very little if any vulva pain/discomfort.
I also recently decided to research the cream I've been using over the years for my LS and one of the things it says can occur is folliculitis. Last October I woke up one morning with tiny red bumps all over my legs. I have not confirmed by a doctor that it is folliculitis, because I refuse to have anyone try to make me take any medications/creams (drugs)or antibiotics. I am on a mission to change my life for the better and it involves natural/holistic treatments. Always question your doctor and if you don't believe what they are suggesting it is best for you get a second opinion. I recently had to have my wisdom teeth removed and the first oral surgeon I met with said I would have to go on antibiotics and pain killers. I refused because I knew what that mess of meds got me in a year and a half ago. I searched for a holistic dentist and found one who guided me in the right path so I was able to do stay away from the antibiotics and pain meds by using a great quality probiotic and digestive enzymes for inflammation/pain.
I hope some of this helps someone else!
Vaginal Medication Link to Ls
Posted by Sandra (Grantham, United Kingdom) on 08/14/2010
HI
MY DOCTOR AS ADVISED ME TO USE AN EMOLIENT CREAM FOR WASHING/CLEANING THE VAGINAL AREA. THIS HELPS TO STOP IT FROM DRYING OUT, WHICH IN TURN WILL GIVE THE AREA TIME TO HEAL.
Vaginal Medication Link to Ls
Posted by Angela (Pasadena, Ca, Usa) on 10/11/2011
I think that you will find that many people with LS were treated with creams before diagnosis because they or their doctors thought their symptoms were candida. So that would mean they already had LS, not that the creams caused it. That is what happened to me. I was diagnosed with LS after 10 years or more of symptoms that were missed by many doctors and midwives. One midwife saw that it wasn't candida, and saw the changes in the skin, but she apparently knew nothing of LS and called it non-specific bacterial infection, and had me take peridine baths. I've been using clobetasol sparingly for 19 years, and it has arrested the progress, but I don't want to use it anymore.
Vaginal Medication Link to Ls
Posted by Clara (Massachusetts) on 09/24/2014
Mary, I'm having some of the same issues. What kind of doctor performed the UVB laser treatments for you? An OB/GYN or Dermatologist? Have the results lasted for you since your last post? Thank you for your help. The steroid cream is helping but not doing enough and some symptoms are progressing.
Vaginal Medication Link to Ls
Posted by Jamie (Canada) on 02/14/2016
Wendy, your post is so interesting to me. I have had skin issues since I was a teenage (40 years). My skin would itch and burn and small sores would erupt that were like a burn and sometimes would grow to and inch big. I have scarring all over my upper arms, upper back and legs. As a teenager, I was diagnosed with psoriasis. After many years of dermatologists and naturopaths, everyone was perplexed because nothing helped.
I developed LS a year ago and through research was led to Trying Low Oxalates. I went on a low oxalate diet and this has helped tremendously! Many vegetables, fruits, beans, nuts, etc are not my friends.
Like you, the less food I eat, the better I feel! I only have LS breakouts, itchy, burning skin when I eat higher oxalate foods.
Thanks for sharing. I rarely run across anyone who has experienced the whole skin thing.
Vaginal Medication Link to Ls
Posted by Patty (Me) on 05/01/2017
I have had the hood of my clitoris removed 3 times over the past years, it always grows back with LS. Like many people, I was diagnosed with candida years before LS was recognized. It certainly is not a pleasant condition. I plan on trying many of the treatments people have posted here. This is a wonderful site, I'm sure glad I came across it. I wish every one the best of luck. If I find something that works for me, I will be sure to post it.
Vaginal Medication Link to Ls
Posted by Irene (Timmins Ontario) on 05/09/2017
Seeking more info regarding A&D creme.
Eliminating Dairy
Posted by Jackie (Houston, Tx) on 09/24/2009
Hi Kerry,
I noticed that you mentioned you had this Lichen Sclerosis on your eyelids. Can you describe what the symptoms are on the eye? I believe I have LS in the nether regions but noticed that my eyes have been very dry and itchy. I thought that maybe there is a connection.
Thank you,
Jackie : )
Eliminating Dairy
Posted by Paula (Garrison, Ky) on 09/29/2009
I have noticed the same thing, all meat, dairy and even sugar acts up my LS horribly. Ive basically went Vegan since the perscribed cream did nothing for me and my dr ran out of options and I was told to "learn to deal with it". I went on an all juice diet thinking it might be linked to my thyroid or something else so I juiced daily, then I noticed I felt great during the 7 days of all juice, when I added in food back in its when I noticed the symptoms back with in minutes of eating certain food. The only time my LS goes away is when Im sick then I have No LS at all until my cold/flu goes away then it comes back with a vengance!!!
Eliminating Dairy
Posted by Frannie (Wilsonville, Or) on 09/12/2010
Kerry from Winatchee....... I also suffer from both ailments - adrenal fatigue and lichen schlerosis. I had the lichen schlerosis under control with steroids, but now it's back worse than ever a few years later. I'm looking for a better solution. Natural if possible.
Eliminating Dairy
Posted by Elizabeth (New Zealand) on 02/27/2015
★★★★★
Wow, I hadn't put the two together. My eyes are dry and red when I have the flare ups. Never realized that before this post. Thank you.
Wheatgrass
Posted by Stacy (Durango, CO) on 07/12/2009
Hi, I haven't ever used this form of communication before but I have a question. A friend suggested to me that I may have lichen sclerosis. I have tiny razor blade slits up the sides of my labia majora (both sides)- they bleed and sting and feel much like a razor blade cut. Sometimes it seems to go across my perineum and over my anus, causing that to also be painful. I used to only think that it was from sex and maybe I had an STD but have been checked many times and seem to baffle the practioners - they often start questioning me about abuse. Well, now, I haven't had sex in two months and I have it again - so I am trying to figure out what it may be - my symptoms do not seem to be the same as what you are describing but I'm trying whatever avenue I can because it is quite painful and debilitating and I recieve no valid answers from practioners.
Wheatgrass
Posted by Linda (Houston, TX) on 07/21/2009
Stacy from Durango - According to my good friend, a dermatologist, Lichen sclerosis can be diagnosed with a biopsy of the skin. According to her it is not that uncommon and you should be able to ask a derm or ob-gyn to biopsy the skin so you can get an answer and start treatment. I too have been diagnosed with it but I haven't had the biopsy yet. I will be doing that soon so I can get a definite answer. Steroid creams are used quite a bit to bring the skin back to normal. If you don't want to waste your time with an uninformed doctor, try calling ahead and find out if they're familiar with the condition. Good luck
Wheatgrass
Posted by Mary (Valencia, Ca) on 02/07/2010
★☆☆☆☆
I was desperate for relief and decided to try the Wheatgrass lotion. The delivery was great. However, when I put the lotion on the vaginal area it burned like crazy. Not just for a short time. I put some more on later thinking it just takes time. Again the burning. So, I went back to my salt water which seemed to relieve the burning for a while. There must be something else out there but I don't have a clue. I don't have the itching, I have the soreness (sitting and exercising are very uncomfortable), redness and inflammation.
Mary
Wheatgrass
Posted by Tropical Qld (Australia, Qld) on 09/25/2011
I have had LS for 13 years and had no idea what it was until I saw this post.
I have gone to the doctor and each time I go, they diagnose me with Thrush. So I'm so grateful to find that there are other women out there.
I noticed this in my teens and found everytime I had candy, chocolate or anything high in sugar, the itching would get worse. Bread from the grocery store and carbs in particular would also make the itching worse. For this reason, I just limited my carb and sugar intake (I have the sweetest tooth ever! ) and found that it was fine. Exercise, like 30 minutes of intense cardio regularly really helps with the symptoms.
I have young children and my diet has gone out the window and I've noticed that my symptoms are getting worse and the burning is getting more intense. I think I will have to get back on the bandwagon and continue with a 'healthy lifestyle.'
I have found cocoa butter oil helps with the itching and it's funny as I bought neem oil a couple weeks ago for this reason and looks like other ladies on this site have found it helpful.
Wheatgrass
Posted by Ingrid (Belgium) on 04/06/2017
I have had this question too.
Vitamin E
Posted by Jillery (Nc) on 02/14/2016 86 posts
Try adding Red Clover herbal pills... they supposedly increase estrogen. They have helped my LS symptoms a GREAT DEAL!!
DMSO
Posted by BdetteR (United Kingdom) on 10/30/2023
Thank you for this update. It's helpful to know of the concentration you are using given there are so many concentrations of DMSO available. That there is a combination with comfrey and castor oil is interesting, too. I don't know about Tallow Balm so will look. I am about to use DMSO to work with herniated discs and adhesions in my neck and wonder if comfrey would be additionally helpful given its effects on bone, flesh and cartilage healing.
Dietary Changes
Posted by Bliss (FL) on 10/08/2023
Did it work for you?
Clobetasol
Posted by Julie (England Essex) on 11/05/2021
Hi Melissa, has the hot baths and cream application still working for you? I am also finding it difficult to get the itching and soreness under control I was diagnosed in June after a punch biopsy and recently had really dry skin on either side of my clitoris that has shrunk back as of yet no white plaques on vulva. Thank you.
Clobetasol
Posted by Marlene (Nc) on 09/25/2020
★★★★★
I have had LS for years and only had it diagnosed 2 years ago. My dermatologist put me on Clobetasol Propionate and it works wonders.
Ozonated Olive Oil
Posted by Karen (AZ) on 12/05/2023
I've been using o instead hemp oil too. Powerful and hemp has the highest frequency out of the oils so I thought to go that route. Have you noticed the white patches returning to healthy link yet? Does that even happen?
Dietary Changes
Posted by Karen (Meridian, ID) on 05/06/2020
Robin, this is amazing! Please share with us a typical day's meals, and update after being on this diet for a longer term. Blessings to you!
Dietary Changes
Posted by B. Latifa (Algerie) on 03/26/2022
هل ممكن ان تدليني عن هذه الحمية الخالية من اللحم، لاني مريضة منذ 4 سنوات بمرض الحزاز المتصلب وشكرا
Can you tell me about this meat-free diet, because I have been ill with lichen sclerosus for 4 years, and thank you.
Homeopathy
Posted by Ann (USA) on 05/30/2020
Beebs, Can you tell us whether acidicum nitricum was a remedy specific to you/our constitutional type, or is it a remedy that is known to work for anyone with LS? I think your homeopath would know this. Thanks for sharing.
Dietary Changes
Posted by EB (So US) on 02/14/2020
Carol, do you eat wheat or other grains? Are you sure it is LS? Have you had a biopsy? Thanks.
Dietary Changes
Posted by Cat (UK) on 05/26/2023
Hi Jen,
hoping you still have access to this thread. I wondered about your progress, if it was healed ect. also you mentioned the white patches are all gone. did you mean they re- pigmented. Tanks Cat
Chlorine-Free Toilet Paper
Posted by Dee (CA) on 12/08/2019
★★★☆☆
Get your non-chlorine TP at Trader Joe's, a wee bit cheaper
Oregano + Coconut Oils
Posted by EggBiscuit (Georgia) on 10/29/2019
★★★★☆
Hi Jill, How are you doing now? I tried several oils and creams and the clobetasol seemed to remove the white spots after a month but soreness persists. ( I, too, am from IL but do not live there at the moment.) Have oregano oil and will try with some coconut oil.
Oregano + Coconut Oils
Posted by For ever better (Israel ) on 05/30/2023
Thanks for sharing. After which period did you see results? it stopped the atrophy or regenerated tissues as well?
Dietary Changes
Posted by For ever better (Israel ) on 05/29/2023
Can you please share with us how you take the colloidal silver and which type?
MMS
Posted by Mary (Tx) on 06/15/2020
Just ordered MMS for a different condition, then was wondering if this would also help a daughter with LS. Saw your post. Are you still in recovery? Thanks!
Mary
MMS
Posted by Latifa (Geneva) on 04/13/2024
L.S. Rita's feedback on her use of MMS for lichen sclerosis is most interesting. As for the internal use for eight days, gradually increasing the doses, does this mean 8 daily intakes of 125 ml? I did that last year without having knowledge of MMS benefits for lichen sclerosis and found it quite awkward with the 10 minutes abstention before and after food intake. Is there a less constraining alternative for internal use? Can some drops of essential oils be added to the MMS sit bath mixture? Can I use the aquarium MMS for the sit- bath? And for drinking water for human consumption? Does MMS neutralize and eliminate heavy metals? If yes, can this substitute Zéolith? Thank you in advance for your kind reply.
Prescription Meds for LS
Posted by Jillery (Rawlly, Nc) on 12/24/2017 86 posts
★★★★☆
I have tried just about every natural remedy that is listed in EC even with help of my naturopath for a few years. I finally went to a dermo who is well versed in LS and he prescribed Acitritin (ended up on 25 mg per day until he decides to decrease again. We ramped up originally as he had good results with other patients ). I also use a topical as well. I still get flares but it is from stress or skipping the ointment a few days or weeks. He feels if I do this for a year I may be able to go off of everything. My skin is so much nicer. The ointment is called Tacrolimus 0.1% Doc also has me use Burt's Bees baby wipes. He is in Chapel Hill NC. Dr Kenneth Becker. Some of the natural stuff would work a few days or weeks and then I would get a horrible flare. This rash just seems to continuously morph... but that is autoimmune stuff. I keep reading just incase something diff comes along so I don't have to do the drugs. (btw, my LS was a dry spot outside vagina and then a 'hot spot' where my butt cheeks touch. I have gotten 'plaque' (really weird dry skin) in both those areas. I had also had like a thrush baby rash from my mound up and over my belly. I have my labia and clit. Good luck all.... lots of work. hugs~
Lyme Disease Connection
Posted by Tonya (Minnesota) on 09/27/2017
Lora, can you tell me where you read about the connection to Lyme's diesase?
Lichen Sclerosus Triggers
Posted by Anna H (Ireland) on 11/21/2016
Another possible cause of LS...
I have had LS for 20 years and while it mostly stayed calm, lately the itch around my genital area is off the chart so I am delighted to find lots of options on your site to try out. I had a suspicion, which others have validated, that years of wearing sanitary towels is a possible contributor, especially if during the 70's, 80's etc.
Comfrey
Posted by Compastella (Middle East) on 11/28/2016
Anna,
Please I need to know exactly what the cream is and where to get it urgently. The pain is immense.
Comfrey
Posted by Laurie (Lady Lake, Fl) on 01/24/2017
How can I get some of the comfrey cream from Croatia? I am desperate😟
Platelet Rich Plasma Injection Therapy
Posted by Kat (San Francisco, Ca ) on 08/25/2016
Can you tell me or email me the name of your doctor? I live in the area and I have been researching the treatment. Thank you for sharing!
Platelet Rich Plasma Injection Therapy
Posted by Kathy (Capitola) on 05/16/2017
Can you tell me what Dr. you went to? Would greatly appreciate it. Thank you.
Platelet Rich Plasma Injection Therapy
Posted by Saro (Nashville, Tn) on 07/15/2017
Ocean51, could you be so kind and give an update on how you are doing now, please share your doctor that performed the treatment for you, thank you
Platelet Rich Plasma Injection Therapy
Posted by Lana (London) on 04/15/2018
Hello Ocean51, how is your LS doing atm? This post is from 2 years ago but I hope you will read my message. I have recently been diagnosed with LS and I am looking to try PRP. Your feedback will be extremely helpful. Did you need to do another PRP treatment of several sessions? If yes, in how many months after the first one? Was the effect as strong as the first time? Are you using any steroid creams atm?
Warm regards,
Lana
Platelet Rich Plasma Injection Therapy
Posted by Aloha Granny (Maui) on 09/08/2021
Dr. Coyle does PRP with laser treatment called the Tulip procedure. He is in Pensacola, Florida.
Platelet Rich Plasma Injection Therapy
Posted by Melanie (London) on 02/28/2022
Hi,
Would you mind sharing the details of where we could find this dr please
EC: A number of doctors now perform Platelet Rich Plasma Therapy. You can search Google using those search terms for a local doctor in your area.
Lichen Sclerosus Triggers
Posted by Arlene (Colorado) on 11/15/2016
Jodi, I think you've got something there. I've had LS for almost 30 years. It started in 1987. I was having sex with my ex-husband 5 years after we were divorced. I think mentally I was trying to stop and that was my defense mechanism. Thank goodness he met someone and stopped needing me. You mentioned Aloe Vera but didn't say if it helped. Please let me know.
Colloidal Silver
Posted by For ever better (Israel ) on 05/29/2023
does it cure it?
Coconut Oil, Homeopathy
Posted by Rusty (Lansing, Mi) on 05/08/2015
Hi Linda, May I ask where you had your UV therapy done? Was it at a dermatologists office? Thanks.
Coconut Oil, Homeopathy
Posted by Rusty (Lansing, Mi) on 05/08/2015
Hi Linda, May I ask where you had your UV therapy done? Was it at a dermatologists office? Thanks.
LS - Hyperthyroid Connection
Posted by Seeker (East Sussex) on 04/05/2015
I have a theory about lichen sclerosus and wondered if it applies to anyone else. I heard that girls born to women with an overactive thyroid whilst pregnant have a high chance of developing LS. This applies to me, does anyone else have a mother with LS and who had it whilst pregnant?
LS - Hyperthyroid Connection
Posted by Justine (France) on 08/15/2017
My mother had a thyroid operation when I was very young. I think she had it removed and subsequently was told that it was underactive as she gained weight. She developed LS of the vulva in her 50s and now has scleroderma in her fingers. I have never had any health problems but at the age of 43 I developed LS of the vulva. Could be an interesting line of enquiry to see if there is a connection.
Dietary Changes
Posted by Pan (Holland) on 12/06/2014
Hi Emily, Do you mean you are cured? Is it really gone, or 'just' the symptoms? I can prevend the itching by using oil on the white area, but the pain stays. I do not eat/drink: gluten, sugar, dairy, alcohol, black coffee, black tea. I meditate and sport a lot. My main whish is to get back the soft skin around my clitoris. It is hidden now...and I would love to dare being intimate again, without pain and with more joy!
Dietary Changes
Posted by Priscilla (San Mateo, Ca) on 03/05/2016
Emily, Do you mean you have cured your Lichen Sclerosis by eating a raw food diet? How many weeks of eating the raw vegetables, including the greens, and berries as fruit did it take?
Are you still cured? Do you no longer have 'itch" or 'white patches" in the pubic area?
I bought a book called " LICHEN SCLEROSIS -HEALING THE DISEASE" by Ginny Chandoha...Helping the Body Heal Naturally" ISBN9781836711345, , , how she cured her lichen sclerosis..
Among other things, she used organic, unrefined, coconut oil on her itch and stopped the itch at that moment...etc She eats organically.. Also heard that Dermatologist Doctor prescribed steroid cream DESONOIDE CREAM 0,05% that took itch away..to be used sparingly.
Has anyone read this book or tried this cream? And cured themselves? I just got this book this week. Great ideas in it that helped me a lot.
Priscilla-on March 4,2016
Dietary Changes
Posted by Melissa (TN) on 08/06/2023
If you happen to see this, could you post how you did the essiac tonic detox? I drank essiac every day for a year and it made no difference but I didn't change my diet.
LS and Hypothyroidism Connection
Posted by Kat (Florida) on 02/13/2016
I have LS and hypo/hyperthyroidism depending on thyroid med dosage :) It fluctuates all the time. I currently started using Ashwagandah for thyroid and adjust it according to hypo/hyperthyroid symptoms (Now using three a week - Mon, Wed, Fri). Seems to be a good fit for me. Haven't had a blood test since starting it almost a year ago; but according to the symptoms it is working well. It is good for many other medical issues too.
Didn't know LS and thyroid were linked. This is interesting. I use various combos of essential oils in emu oil topically for the LS ... the itching of LS is less with ashwagandah, but the rash and patches are still there.
Honey
Posted by Te Ao Marie (New Zealand) on 06/08/2016
How has the honey treatment been going?
Frankincense Oil
Posted by Paula (Toronto Canada) on 04/22/2014
A further question about the use of Frankincense Oil - did you use it topically or did you take it internally?
Frankincense Oil
Posted by Debbie (Lyme Regis, GB) on 11/07/2014
I'm very interested in your post as I have had Lichen Sclerosus for 2 years and been on Steroid cream, which has stopped working. I would love to use a more natural approach, so thought I would try Frankincense oil - do you put it in a carrier oil? And do you apply it directly to the area affected? Thank you so much! I am looking forward to enjoying itch free evenings. Debbie
Frankincense Oil
Posted by Monie (Virginia, US) on 12/23/2014
Frankincense - why not, I have tried everything else. It has got to work. I have gotten rid of bread, sugar and dairy.
Frankincense Oil
Posted by Shades (South Africa) on 01/05/2015
Can I mix francinsense mixed with coconut oil for lessions on vg?
Frankincense Oil
Posted by Nathan (Illinois) on 03/17/2015
What brand frankensense oil did you use?
Frankincense Oil
Posted by Frances (Cabarlah. Qld.) on 07/17/2015
Which frankincense did you use, pls. The product of India or Yemen? The latter very expensive.
Frankincense Oil
Posted by Lisa (Phoenix) on 10/19/2015
Hi. Did you take the frankensense oil internally or use it topically? Thanks.
Frankincense Oil
Posted by Shelby (Connellsville, Pennsylvania ) on 01/04/2016
Hello. I've been suffering with lichen sclerosus for about 5 years now. I was wondering if the frankincense oil completely cured you of it. Are you having any issues to this day? Thank you! -Shelby
Frankincense Oil
Posted by Jillery (Rawlly, Nc) on 03/16/2016 86 posts
★☆☆☆☆
I tried the Frankincense and it caused a flare with me. I used it diluted with coconut oil and again with Emu oil. Nope, not for me :-(
Frankincense Oil
Posted by Mary K (Arizona) on 08/03/2018
★☆☆☆☆
Mama to Many, I tried mixing colloidal silver water with distilled water and coconut oil and drops of frankincense and lavender. It burned so bad! What to do? Lessen oils? even coconut oil with baking soda burns badly. I don't know what to do anymore! It is spreading. I am going to try emu oil or castor oil now.
Apple Cider Vinegar, Lavender Oil
Posted by Michelle (Ar) on 04/19/2015
What kind of lavender oil did you use? And where do you apply it at?
Cold Water, Evening Primrose Oil
Posted by Frankie (Brooklyn Ny) on 11/02/2016
★★★★★
You're right, cold water always work.
Cold Water, Evening Primrose Oil
Posted by Thebiscuit (Woodstock, Ga) on 07/13/2020
Ann- I just read your post from years earlier. I am next door in Woodstock and similarly situated re the LS. How are you?
Cold Water, Evening Primrose Oil
Posted by Elsa (Beaupr) on 04/23/2021
By VJ do you mean vulva?
Eliminating Wheat
Posted by Cindy (Canada) on 12/18/2014
Did you just go wheat free and sugar free, or grain free? Due to my jst flashes, insomnia, my nutrtionist said I should give up all grains which I did for almost two months and things were getting better but not quite perfect, I think nightshades and dairy are culprits... It was just so expensive eating organic, buying all my vitamins, etc that I. Ould to keep it up. I ended up going on bioidentical hormones which mostly work. I believe I have had LS for over ten years and just now my Dr did a biopsy for it. I'm using cortisone but it's only been two weeks and things are a bit better but far from perfect. I have raw areas around my opening that aren't healing much, I have not been able to have intercourse for six months. Wondering what to do. I will try wheat free and sugar free and go from there I guess.
Essiac Tea, Homeopathy
Posted by Desperate For Help (Grabill, Indiana. Usa) on 03/02/2013
What brand of Essiac tea did you use? I am desperate. There are different brands... Liquid and powder. Please advise. Thank you.
Essiac Tea, Homeopathy
Posted by Victoria (San Francisco, California) on 02/03/2015
Hello.. Re: LS... Where did you purchase the Essiac Tea?
How are you feeling now?
Thanks!! Victoria
Essiac Tea, Homeopathy
Posted by Jerene (Burlington, Ky) on 02/04/2015
I have Lichen Sclerosus and am 16 wks pregnant. Would essiac tea be safe?
Essiac Tea, Homeopathy
Posted by Pat (Montgomery, Alabama) on 07/15/2015
How is the Kreosotum and petroleum used? Is Kreosotum an over the counter cream or pill?
Essiac Tea, Homeopathy
Posted by Ashley (Talladega, Alabama) on 02/05/2017
I think that's what I have. Where do you order the tea because I itch the most at night
Essiac Tea, Homeopathy
Posted by Felicia (Mi) on 07/28/2017
Hello, I'm wondering how to use the essiac tea for lichen Sclerosis, I'm reading that people have said they followed the directions, you mean just what the bottle says? Or is there a specific way to take it for lichen Sclerosis? Thanks so much for any help!
Essiac Tea, Homeopathy
Posted by Mary (Arizona) on 08/03/2018
I am newly diagnosed and after reading so much about this disease, I am terrified. I already suffer from fibromyalgia and Rheumatoid arthritis. I really feel that a cleansing diet and natural remedies are the way to go. The high strength steroid cream just made it worse. My Dr. won't listen and insists I keep using it! My body is telling me something different. Going to try all these natural remedies until I find what works for me. Thanks for all the support on this site.
Essiac Tea
Posted by Rsw (Uniontown, Oh) on 11/16/2012
Hi Daisy, Can you tel us how long you took the essiac tea tonic and how many times a day did you take it? How many drops? You are the first person who has ever been cured of LS that I have seen. I have Lichen Planus and have been trying to cure it for almost ten years. My doctor and dentist admit they don't understand the disease. Mine is all internal and systemic, no skin outbreaks.
I have been trying Lisa's suggestion for water kefir for about a month and I think it is good for the whole body. I have ordered some essiac tea with high hopes, and passed your tip along to others with LP. I am praying this works for me and others. Thank you so much for posting!
Essiac Tea
Posted by Linda (Reno, Nv) on 11/23/2012
Daisy, where do you buy your essiac toner with no alcohol? Looking on the internet and seeing only ones with alcohol in them.
Essiac Tea
Posted by Linda (Reno, Nv) on 11/23/2012
Daisy, thanks for your reply. Is this tonic something you need to take everyday? You mentioned using 3 bottles for a whole year.
Essiac Tea
Posted by Rsw (Uniontown, Oh) on 11/25/2012
Hi Daisy, I ordered essiac tea, which I will brew at home, and it should be here this coming week. I hope it will work as well as the tea tonic, which I didn't see on the Internet. If this works, you will have found a very elusive cure and many people will finally find some relief from these miserable autoimmunes. I have tried every lead that seems plausible for ten years and I'm so excited to try this! Thank you, Daisy, for posting your experience on EC. I hope we get a bunch of success stories!
Essiac Tea
Posted by Joni (Selma, Oregon) on 11/25/2012
Thanks Daisy, I am going to get some Essiac and will certainly let you know the results. I absolutely believe in miracles. God doesn't always work in the same way for all people, but I won't know if this will be my miracle too until I try!
Essiac Tea
Posted by Linda (Reno) on 11/28/2012
Daisy, I am going to try it and I will let you know for sure if it works.
Essiac Tea
Posted by Mjf030947 (Las Vegas, Nv) on 01/20/2013
I have LS and want to know how to apply the essaic tonic.
Essiac Tea
Posted by Daisy (Ewa Beach, Hi) on 02/21/2013
You drink it.
Essiac Tea
Posted by Anna (Australia) on 05/04/2015
If you type in Essiac Tea in your browser you will find all the information you need to make a decision about using this product. I have just started to use it.
Essiac Tea
Posted by Ashleigh (Michigan) on 11/23/2015
Do you drink it straight or mix it with something?
Essiac Tea
Posted by Ingrid (Belgium ) on 04/06/2017
So Daisy, after 5 years, how is the LS? Did the Essaic Tonic Tea work?
Essential Oils
Posted by Ab (New York) on 10/16/2013
Hello, I am thinking I may have LS just because of the symptoms I am experiencing. Can all of the essential oils be used in conjunction with one another? Also would Vitamin E oil work as well?
Essential Oils
Posted by Rebecca (New Braunfels, Tx) on 03/17/2015
How are you using the essential oils (Thieves)? Taking orally or applying to the site?
Low Oxalates Diet
Posted by Nickie (London Uk) on 10/07/2015
Until you have figured out the cause maybe you could use a homeopathic cream such as Hypericum and Urtica. This is extremely mild and soothing and can be used for burns and stings etc, if it doesn't help, it certainly won't hurt.
Low Oxalates Diet
Posted by Tanya (Burlingame) on 03/16/2016
Please, tell me more about the low-oxalate diet. I have not been diagnosed with Licen Sclerosus but I have all the symptoms and they are getting worse. My life has become terrible with my husband, I lost sleep from itching and pain, the obgyns ignore me. Only now I found out what I have.
I need all the help to diminish my agony.
Low Oxalates Diet
Posted by Monica (Corvallis, Or) on 03/16/2016
Have you heard of sitting in a bath with borax and baking soda? Look up the borax conspiracy.
Low Oxalates Diet
Posted by Terry (Wisconsin) on 10/18/2016
I have had it for 3 years. For intense itching I use desitin maximum strength, wear white cotton panties with unscented panty liners, and drink organic apple cider vinegar all natural drink, ( found at health food stores and festival food store) 8 ounces 3 times a week. Also when I followed a gluten free diet and no artificial sweeteners my LS was gone. Now I restarted the gluten free diet and no aspartame.
Low Oxalates Diet
Posted by Margaret ( United Kingdom ) on 01/09/2017
I have had lichen sclerosis for years, it got so bad I went to a Specialist at a Nuffield hospital, finally I found out the name of it. I'm 79 and 3/4!
I tried the "Emuaid" cream, it came from America and was nearly 68 dollars!!! I found out later that it's on "E-bay" much cheaper, it only lasted me a week but it was so good! So soothing, but I can't afford it!
I'm going to try the "Gluten free and Low Oxalates diet, I have done a lot of research on line, my ls is particularly bad at the moment. Wish me luck!! Margaret.
Low Oxalates Diet
Posted by Candice (Kansas, Mo) on 02/17/2017
Please help on this diet and how long till see results?
Coconut Oil
Posted by Victoria (Wichita, Kansas) on 12/06/2010
Has anyone tried Coconut Oil for this condition (LS) ?
Neem Oil, Green Tea Extract
Posted by Terlyn (Syracuse, Ny) on 12/28/2009
★★★★☆
I have had LS for a few years to the puzzlement of my gyn until September when the white spotting finally appeared. I tried calendula oil then castor oil and now I am in my 2nd week of Neem oil with a green tree extract added 2 or 3X a day. It is messy but it brought me healing relief.
The others brought relief from the itching and bleeding which is a blessing but I want it to heal and not continue to split.
