The comments below reflect the personal experiences and opinions of readers and do not represent medical advice or the views of this website. The information shared has not been evaluated by the FDA and is not intended to diagnose, treat, or prevent any disease or health condition. Always consult a qualified healthcare professional for medical concerns.
LS and Thyroid Connection
Posted by Seeker (East Sussex) on 04/05/2015
I have a theory about lichen sclerosus and wondered if it applies to anyone else. I heard that girls born to women with an overactive thyroid whilst pregnant have a high chance of developing LS. This applies to me, does anyone else have a mother with LS and who had it whilst pregnant?
LS and Thyroid Connection
Posted by Justine (France) on 08/15/2017
My mother had a thyroid operation when I was very young. I think she had it removed and subsequently was told that it was underactive as she gained weight. She developed LS of the vulva in her 50s and now has scleroderma in her fingers. I have never had any health problems but at the age of 43 I developed LS of the vulva. Could be an interesting line of enquiry to see if there is a connection.
Dietary Changes
Posted by Pan (Holland) on 12/06/2014
Hi Emily, Do you mean you are cured? Is it really gone, or 'just' the symptoms? I can prevend the itching by using oil on the white area, but the pain stays. I do not eat/drink: gluten, sugar, dairy, alcohol, black coffee, black tea. I meditate and sport a lot. My main whish is to get back the soft skin around my clitoris. It is hidden now...and I would love to dare being intimate again, without pain and with more joy!
Dietary Changes
Posted by Priscilla (San Mateo, Ca) on 03/05/2016
Emily, Do you mean you have cured your Lichen Sclerosis by eating a raw food diet? How many weeks of eating the raw vegetables, including the greens, and berries as fruit did it take?
Are you still cured? Do you no longer have 'itch" or 'white patches" in the pubic area?
I bought a book called " LICHEN SCLEROSIS -HEALING THE DISEASE" by Ginny Chandoha...Helping the Body Heal Naturally" ISBN9781836711345, , , how she cured her lichen sclerosis..
Among other things, she used organic, unrefined, coconut oil on her itch and stopped the itch at that moment...etc She eats organically.. Also heard that Dermatologist Doctor prescribed steroid cream DESONOIDE CREAM 0,05% that took itch away..to be used sparingly.
Has anyone read this book or tried this cream? And cured themselves? I just got this book this week. Great ideas in it that helped me a lot.
Priscilla-on March 4,2016
LS and Thyroid Connection
Posted by Kat (Florida) on 02/13/2016
I have LS and hypo/hyperthyroidism depending on thyroid med dosage :) It fluctuates all the time. I currently started using Ashwagandah for thyroid and adjust it according to hypo/hyperthyroid symptoms (Now using three a week - Mon, Wed, Fri). Seems to be a good fit for me. Haven't had a blood test since starting it almost a year ago; but according to the symptoms it is working well. It is good for many other medical issues too.
Didn't know LS and thyroid were linked. This is interesting. I use various combos of essential oils in emu oil topically for the LS ... the itching of LS is less with ashwagandah, but the rash and patches are still there.
Honey
Posted by Te Ao Marie (New Zealand) on 06/08/2016
How has the honey treatment been going?
Frankincense Oil
Posted by Paula (Toronto Canada) on 04/22/2014
A further question about the use of Frankincense Oil - did you use it topically or did you take it internally?
Frankincense Oil
Posted by Debbie (Lyme Regis, GB) on 11/07/2014
I'm very interested in your post as I have had Lichen Sclerosus for 2 years and been on Steroid cream, which has stopped working. I would love to use a more natural approach, so thought I would try Frankincense oil - do you put it in a carrier oil? And do you apply it directly to the area affected? Thank you so much! I am looking forward to enjoying itch free evenings. Debbie
Frankincense Oil
Posted by Monie (Virginia, US) on 12/23/2014
Frankincense - why not, I have tried everything else. It has got to work. I have gotten rid of bread, sugar and dairy.
Frankincense Oil
Posted by Shades (South Africa) on 01/05/2015
Can I mix francinsense mixed with coconut oil for lessions on vg?
Frankincense Oil
Posted by Nathan (Illinois) on 03/17/2015
What brand frankensense oil did you use?
Frankincense Oil
Posted by Frances (Cabarlah. Qld.) on 07/17/2015
Which frankincense did you use, pls. The product of India or Yemen? The latter very expensive.
Frankincense Oil
Posted by Lisa (Phoenix) on 10/19/2015
Hi. Did you take the frankensense oil internally or use it topically? Thanks.
Frankincense Oil
Posted by Shelby (Connellsville, Pennsylvania ) on 01/04/2016
Hello. I've been suffering with lichen sclerosus for about 5 years now. I was wondering if the frankincense oil completely cured you of it. Are you having any issues to this day? Thank you! -Shelby
Frankincense Oil
Posted by Jillery (Rawlly, Nc) on 03/16/2016 84 posts
★☆☆☆☆
I tried the Frankincense and it caused a flare with me. I used it diluted with coconut oil and again with Emu oil. Nope, not for me :-(
Frankincense Oil
Posted by Mary K (Arizona) on 08/03/2018
★☆☆☆☆
Mama to Many, I tried mixing colloidal silver water with distilled water and coconut oil and drops of frankincense and lavender. It burned so bad! What to do? Lessen oils? even coconut oil with baking soda burns badly. I don't know what to do anymore! It is spreading. I am going to try emu oil or castor oil now.
Apple Cider Vinegar, Lavender Oil
Posted by Michelle (Ar) on 04/19/2015
What kind of lavender oil did you use? And where do you apply it at?
Cold Water, Evening Primrose Oil
Posted by Frankie (Brooklyn Ny) on 11/02/2016
★★★★★
You're right, cold water always work.
Cold Water, Evening Primrose Oil
Posted by Thebiscuit (Woodstock, Ga) on 07/13/2020
Ann- I just read your post from years earlier. I am next door in Woodstock and similarly situated re the LS. How are you?
Cold Water, Evening Primrose Oil
Posted by Elsa (Beaupr) on 04/23/2021
By VJ do you mean vulva?
Eliminating Wheat
Posted by Cindy (Canada) on 12/18/2014
Did you just go wheat free and sugar free, or grain free? Due to my jst flashes, insomnia, my nutrtionist said I should give up all grains which I did for almost two months and things were getting better but not quite perfect, I think nightshades and dairy are culprits... It was just so expensive eating organic, buying all my vitamins, etc that I. Ould to keep it up. I ended up going on bioidentical hormones which mostly work. I believe I have had LS for over ten years and just now my Dr did a biopsy for it. I'm using cortisone but it's only been two weeks and things are a bit better but far from perfect. I have raw areas around my opening that aren't healing much, I have not been able to have intercourse for six months. Wondering what to do. I will try wheat free and sugar free and go from there I guess.
Essiac Tea, Homeopathy
Posted by Desperate For Help (Grabill, Indiana. Usa) on 03/02/2013
What brand of Essiac tea did you use? I am desperate. There are different brands... Liquid and powder. Please advise. Thank you.
Essiac Tea, Homeopathy
Posted by Victoria (San Francisco, California) on 02/03/2015
Hello.. Re: LS... Where did you purchase the Essiac Tea?
How are you feeling now?
Thanks!! Victoria
Essiac Tea, Homeopathy
Posted by Jerene (Burlington, Ky) on 02/04/2015
I have Lichen Sclerosus and am 16 wks pregnant. Would essiac tea be safe?
Essiac Tea, Homeopathy
Posted by Pat (Montgomery, Alabama) on 07/15/2015
How is the Kreosotum and petroleum used? Is Kreosotum an over the counter cream or pill?
Essiac Tea, Homeopathy
Posted by Ashley (Talladega, Alabama) on 02/05/2017
I think that's what I have. Where do you order the tea because I itch the most at night
Essiac Tea, Homeopathy
Posted by Felicia (Mi) on 07/28/2017
Hello, I'm wondering how to use the essiac tea for lichen Sclerosis, I'm reading that people have said they followed the directions, you mean just what the bottle says? Or is there a specific way to take it for lichen Sclerosis? Thanks so much for any help!
Essiac Tea, Homeopathy
Posted by Mary (Arizona) on 08/03/2018
I am newly diagnosed and after reading so much about this disease, I am terrified. I already suffer from fibromyalgia and Rheumatoid arthritis. I really feel that a cleansing diet and natural remedies are the way to go. The high strength steroid cream just made it worse. My Dr. won't listen and insists I keep using it! My body is telling me something different. Going to try all these natural remedies until I find what works for me. Thanks for all the support on this site.
Essiac Tea
Posted by Rsw (Uniontown, Oh) on 11/16/2012
Hi Daisy, Can you tel us how long you took the essiac tea tonic and how many times a day did you take it? How many drops? You are the first person who has ever been cured of LS that I have seen. I have Lichen Planus and have been trying to cure it for almost ten years. My doctor and dentist admit they don't understand the disease. Mine is all internal and systemic, no skin outbreaks.
I have been trying Lisa's suggestion for water kefir for about a month and I think it is good for the whole body. I have ordered some essiac tea with high hopes, and passed your tip along to others with LP. I am praying this works for me and others. Thank you so much for posting!
Essiac Tea
Posted by Linda (Reno, Nv) on 11/23/2012
Daisy, where do you buy your essiac toner with no alcohol? Looking on the internet and seeing only ones with alcohol in them.
Essiac Tea
Posted by Linda (Reno, Nv) on 11/23/2012
Daisy, thanks for your reply. Is this tonic something you need to take everyday? You mentioned using 3 bottles for a whole year.
Essiac Tea
Posted by Rsw (Uniontown, Oh) on 11/25/2012
Hi Daisy, I ordered essiac tea, which I will brew at home, and it should be here this coming week. I hope it will work as well as the tea tonic, which I didn't see on the Internet. If this works, you will have found a very elusive cure and many people will finally find some relief from these miserable autoimmunes. I have tried every lead that seems plausible for ten years and I'm so excited to try this! Thank you, Daisy, for posting your experience on EC. I hope we get a bunch of success stories!
Essiac Tea
Posted by Joni (Selma, Oregon) on 11/25/2012
Thanks Daisy, I am going to get some Essiac and will certainly let you know the results. I absolutely believe in miracles. God doesn't always work in the same way for all people, but I won't know if this will be my miracle too until I try!
Essiac Tea
Posted by Linda (Reno) on 11/28/2012
Daisy, I am going to try it and I will let you know for sure if it works.
Essiac Tea
Posted by Mjf030947 (Las Vegas, Nv) on 01/20/2013
I have LS and want to know how to apply the essaic tonic.
Essiac Tea
Posted by Daisy (Ewa Beach, Hi) on 02/21/2013
You drink it.
Essiac Tea
Posted by Anna (Australia) on 05/04/2015
If you type in Essiac Tea in your browser you will find all the information you need to make a decision about using this product. I have just started to use it.
Essiac Tea
Posted by Ashleigh (Michigan) on 11/23/2015
Do you drink it straight or mix it with something?
Essiac Tea
Posted by Ingrid (Belgium ) on 04/06/2017
So Daisy, after 5 years, how is the LS? Did the Essaic Tonic Tea work?
Essential Oils
Posted by Ab (New York) on 10/16/2013
Hello, I am thinking I may have LS just because of the symptoms I am experiencing. Can all of the essential oils be used in conjunction with one another? Also would Vitamin E oil work as well?
Essential Oils
Posted by Rebecca (New Braunfels, Tx) on 03/17/2015
How are you using the essential oils (Thieves)? Taking orally or applying to the site?
Low Oxalates Diet
Posted by Nickie (London Uk) on 10/07/2015
Until you have figured out the cause maybe you could use a homeopathic cream such as Hypericum and Urtica. This is extremely mild and soothing and can be used for burns and stings etc, if it doesn't help, it certainly won't hurt.
Low Oxalates Diet
Posted by Tanya (Burlingame) on 03/16/2016
Please, tell me more about the low-oxalate diet. I have not been diagnosed with Licen Sclerosus but I have all the symptoms and they are getting worse. My life has become terrible with my husband, I lost sleep from itching and pain, the obgyns ignore me. Only now I found out what I have.
I need all the help to diminish my agony.
Low Oxalates Diet
Posted by Monica (Corvallis, Or) on 03/16/2016
Have you heard of sitting in a bath with borax and baking soda? Look up the borax conspiracy.
Low Oxalates Diet
Posted by Terry (Wisconsin) on 10/18/2016
I have had it for 3 years. For intense itching I use desitin maximum strength, wear white cotton panties with unscented panty liners, and drink organic apple cider vinegar all natural drink, ( found at health food stores and festival food store) 8 ounces 3 times a week. Also when I followed a gluten free diet and no artificial sweeteners my LS was gone. Now I restarted the gluten free diet and no aspartame.
Low Oxalates Diet
Posted by Margaret ( United Kingdom ) on 01/09/2017
I have had lichen sclerosis for years, it got so bad I went to a Specialist at a Nuffield hospital, finally I found out the name of it. I'm 79 and 3/4!
I tried the "Emuaid" cream, it came from America and was nearly 68 dollars!!! I found out later that it's on "E-bay" much cheaper, it only lasted me a week but it was so good! So soothing, but I can't afford it!
I'm going to try the "Gluten free and Low Oxalates diet, I have done a lot of research on line, my ls is particularly bad at the moment. Wish me luck!! Margaret.
Low Oxalates Diet
Posted by Candice (Kansas, Mo) on 02/17/2017
Please help on this diet and how long till see results?
Coconut Oil
Posted by Victoria (Wichita, Kansas) on 12/06/2010
Has anyone tried Coconut Oil for this condition (LS) ?
Neem Oil, Green Tea Extract
Posted by Terlyn (Syracuse, Ny) on 12/28/2009
★★★★☆
I have had LS for a few years to the puzzlement of my gyn until September when the white spotting finally appeared. I tried calendula oil then castor oil and now I am in my 2nd week of Neem oil with a green tree extract added 2 or 3X a day. It is messy but it brought me healing relief.
The others brought relief from the itching and bleeding which is a blessing but I want it to heal and not continue to split.
