The comments below reflect the personal experiences and opinions of readers and do not represent medical advice or the views of this website. The information shared has not been evaluated by the FDA and is not intended to diagnose, treat, or prevent any disease or health condition. Always consult a qualified healthcare professional for medical concerns.
5htp
Posted by Terri (San Jose, CA) on 11/11/2006
★★★★★
5HTP is greatly helping myself and my daughter with our symptoms of fibromyalgia. I have tried low doses of antidepressants in the past but nothing worked as well to improve my sleep as 5-HTP has. I take 200mg per night. My type comes with several essential cofactors to assist in proper seratonin production. No side effects for me, unlike with the other drugs. I'm considering it for more members of my family. We have a genetic sleep and pain disorder. Hopefully we can find the right dose for all of us. I advise everyone to see a qualified ND or sympathetic MD before self dosing to be extra safe but side effects are rare thankfully.
Replied by Lily
(San Antonio, TX / U.S.A)
09/30/2008
Replied by Bodulica
(Barrie, CA)
02/28/2015
Replied by carmel
(Essex, England)
01/08/2022
★★★☆☆
Replied by steve
(MO)
05/21/2023
Acetyl-L-Carnitine, Alpha Lipoic Acid
Posted by Robin (Chicago, Il) on 07/30/2010
★★★★☆
Let me start by saying that I've always been into natural health and supplements, and am very aware of my body and what goes into it. I knew something was wrong for about 6-7 years, but when fibro/CFS finally hit me like a mack truck last October, I was absolutely shocked that I was nearly crippled and could not stop sleeping. I knew I wasn't dying only because I had been trying tirelessly to lose weight since my daughter was born in 2005. It just wasn't happening. However, I could not imagine what could possibly give me so much pain and fatigue, but not be killing me at the same time?! Needless to say, I figured it out. Great... One of those things no one really knows what it is, where it comes from, etc. Well, the internet is now my best friend, which I'm sure is something to which all of you can relate. Okay, so I'll get to the point!! In May, I began taking acetyl l-carnitine with alpha lipoic acid (must be taken together) after okaying it with my rheumatologist. The acetyl l-carnitine actually GOT ME OUT OF BED and able to play with my daughter and do a bit of housework. Although, I still have a lot of pain, I no longer sleep for hours on end and some of the fog has lifted. Apparently, acetyl l-carnitine works with mitochondria and helps them to properly utilize energy sources. I'm also happy to report that, since I started taking this supplement, I've lost 12 pounds (in 2 months). I'm not sure if it's because my body is better processing my food intake or just the fact that I'm out of bed. All I know is that I have done nothing different calorically. For those of you with chronic fatigue, this is really, really worth a try. I thank God EVERY DAY!!
Replied by Rob
(Manhattan, Ny)
07/31/2010
Replied by Marxzanna
(Tennessee)
06/16/2017
★★★★★
ACV and Baking Soda
Posted by Mzellie (Bristol, WI USA) on 08/14/2007
★★★★★
Ailment, fibro, all the symptoms,but now am much better from apple cider vinegar & baking soda tonic. i need to know how to use iodine in my water, and to use for painting, how long may i do this? all of the water and all day?I need to be able to fix the water i drink. i have been using cayenne peper for a yr now. i am starting the blackstrap molasses now and i will let you all know how that goes.Thank You for this WONDERFUL site & all this awsome info you are so willing to share, may you always walk with GOD.
EC: We emailed Mzellie for more info about the ACV and baking soda.
08/15/2007: Mzellie from Bristol, WI USA replies, "Howdee and yes it is much better !!!!I have been taking the acv combo for about 9yrs ..I drink b.soda for headaches & i always brush my teeth with b.soda. I do not take any prescriptions for 12 years now,i go to doctor for tests and look up in my-book for health alternitives{book ] for what's wrong and then go for it... find what my body is in need of ..I really need to know what i can do for infectious endocarditis ?????I have the signs of splinters under my fingernails .... heart infection ,,I am taking Triphala now , just started it last week,my doctor said it was there because of my age.....and a lot more things will change.... that this is just the start of aging... well i will be 62 in6mo. and i have very little gray hair ony at the temples and very little...soooooo but i use vinger for rinse,i am in gooooood health now 12 yrs ago i was ready for the wheelchair and NO HELP from dr. so i had to dig for myself and now i am much better.. all with combo, but somthig is missing and i think it my be the iodine,i bought a bottle today..the product called ...... COMPLETE MINERALS H2o....iodine100mg...potassium 75mg serv.1 TB. If Ted will help and Thank " You " for all your help..................may GOD always walk with you also mzellie
Replied by Lou
(Tyler, Tx)
10/24/2014
Replied by Mama To Many
(Tennessee)
10/25/2014
Replied by
Kennywally (Midwest)
08/17/2015
46 posts
Replied by
Kennywally (Midwest)
08/20/2015
46 posts
ACV and Baking Soda
Posted by Edna (Cobb CA ) on 07/31/2005
★★★★☆
Just started the Apple Cider Vinegar and Baking soda yesterday. Feeling 50% better today from fatigue & pain. Also did the clove oil rub last night. (I am Already taking Vit D, Multi Vitamin, Sea Weed, & Calcium). will let you know how I progress. July 31, 2005 Thank You!
Apple
Posted by Aurora (New Mexico, US) on 12/05/2014
★★★★★
What works immediately to reduce my fibromalygia pain attacks is to eat an apple, fresh or even dried apple slices. The malic acid removes the pain.
Replied by Rosemary
(Essex)
01/26/2023
Replied by kj
(Pacific Northwest, Oregon)
01/26/2023
★★★★★
Apple Cider Vinegar
Posted by Moses (Johannesburg, South Africa) on 05/24/2011
★★★★★
ACV - On The Verge Of Curing My Fibromyalgia!
Talking about alternative medicine, I was a total skeptic. I was diagnosed with Fibromyalgia in 1998. And I've been living with it for the past 13 years. I have been personally convinced that it will NEVER go away, except perhaps through toxic overuse of pain killers like ibuprofen, etc.
Due to the overwhelming amount of anecdotal evidence of ACV used as a remedy on Earth Clinic, I decided to go to my local supermarket and to buy a small bottle of ACV with a very perssimmistic mindset. When I got home, I opened the bottle and it smelled just as the name suggested, pure vinegar and apple juice. The bottle cost a measly $1 and I thought to myself.. "what the heck?".. Could this be what they're raving about ? Vinegar & Apple Cider ??
Anyway I immediately started to take it in ; I used the standard dose of 2 teaspoons in a teacup filled with water. It tasted just like vinegar. I don't find the taste of vinegar "strange" or difficult to swallow at all. To me, it's just an elevated tangy taste like I would expect in mayonnaise. I only took ONE dose a day (once a day 2 teaspoons in a teacup filled with water). In my case I didn't care whether my stomach was empty or not, whether it was early morning or not. In fact I took it when I came back from work, and after taking it I would immediately get back to my normal daily habits (tea, slice of bread, TV, Internet/Facebook, and my usual favorite indulgences). I would drink it as if it's my first cup of tea as I arrive home, then I would immediately follow with a normal cup of tea because I am so so addicted to TEA!!! :)
The past 4 days have been rather surprising! After 13 years of Fibromyalgia daily pain, when I stand up after taking ACV ; when I walk around in the house, I've noticed that there is a ** Feeling Of Something Being Lifted Off My Shoulders **, which is the VERY SPOT where the majority of pain was focused in my case with Fibro!
At first I did Not want to attribute this to ACV, cuz I was suspecting that I might be creating this feeling. I know Fibro to be a very resilient disease. But after this same thing happening 4 days in a row, I became suspicious that the ACV is involved in this :) I think I am on the VERGE of healing my Fibro with this stuff man!! I cannot believe how I feel "AFTER DRINKING IT"!! I cannot believe that it has a DIRECT effect on something in my body. This is so unbelievable for me! Let's see how long I'll keep feeling this way with it. I now believe that my Fibro is probably a case of too many toxins in my system from the time when I was young back in the 90's, taking lots of soda/Coke multiple times a day. I believe that these toxins were NOT about to be moved or to go away anytime soon. And if this ACV trick has any direct effect on these toxins or my underlying persistent excruciating pain of Fibro, then I'm going to increase my dose for the next 3-4 days to see where I am going with this. I hope I will Not awaken the devil within.. But I don't think 3 days of vinegar at 2 or 3 tablespoons-a-day will cause me anything noticeable, let alone "illness". Even the toxins themselve seem to TAKE YEARS to show their presence & symptoms in your body.
I'll keep you posted people.. But right now I am all too excited to see SOMETHING NATURAL that has a direct effect on my Fibro (without it being a prescription drug or pain steriod) after so many years of trying a pile of tricks, methods and advice.
I am hoping to see radically interesting things going forward with ACV!
Replied by
Kimmi (Park City, Ks)
06/14/2011
12 posts
Replied by Eunita
(New Zealand)
02/01/2012
Replied by Timothy
(Cork)
04/07/2012
Replied by Sijai
(Wichita Falls, Tx, United States Of America)
05/28/2012
Replied by Gypsywoman
(Tempe, Az)
11/28/2012
★★★★★
Replied by Lori
(Oregon)
07/20/2015
Replied by Sajjad
(Uttar Pradesh)
09/26/2015
Replied by Sajjad
(Lucknow, India)
10/17/2015
★★★★☆
Replied by Lynn
(California)
03/13/2021
carmel
(essex)
12/02/2021
Replied by Shelisa
(Nevada)
01/15/2023
Madelyn
(Idaho)
01/16/2023
Apple Cider Vinegar
Posted by Tina (Manchester, UK) on 07/05/2008
★★★★★
hi, just wanted to say thank you so much for a this wonderful site. i suffered very badly with cfs and fibromyalgia, basically stopped having a life and suffering with pain that was unbearable. i started using acv/borax/bs/cayen p/ [apple cider vinegar/borax/baking soda/cayenne pepper] and drank a glass every day. after 3 months the pains stopped, if i was in a lot of pain i would take 2 tbs of acv straight and within half an hour the pain would go. please do not drink tap water,check the internet for what is in water from taps, no wonder people are ill. the most important thing for me was, when the drs said their is no cure and it will get worse. thats the biggest lie i have heard.i decided not to believe them and KNEW I COULD GET BETTER. i do not suffer from cfs/fibro anymore, and it happened so quikly after suffering with it for 8 yrs. all i can say is stay positive and seek and you shall find. xxx
ps. i took all the advise on earthclinc, cutting out all the things they have mentioned and taking all the stuff they have mentioned.
Replied by Lara
(San Diego, Ca)
04/12/2011
Replied by Mattie
(Douglasville, Ga)
03/14/2012
Replied by Saf
(Colombo, Western Province. Sri Lanka)
05/25/2013
Apple Cider Vinegar
Posted by Sherrine (Valrico, Florida)
★★★★☆
I started taking two teaspoons of ACV three times a day only six days ago. I am taking it to ease the pain of fibromyalgia and my pain is getting less and less! I plan on continuing it but am having a hard time drinking it.
Replied by Jim
(Madison, Wi)
12/26/2009
Replied by Triciarr
(Tecumseh, Ontario)
01/07/2010
Replied by Natural4ever
(Hudson, Fl)
09/30/2010
Replied by
Jillery (Rawlly, Nc)
07/26/2018
86 posts
Apple Cider Vinegar
Posted by Linda (UK)
★★★★☆
I have fibromyalgia, and had just started using cider vinegar on raw salad just to flavour it without knowing the benefits. Last week I i did not use it and the fatigue and pain were quite chronic. Twice this week I used it again and my energy levels rose. I am unsure if this is the cider vinegar as I am also taking supplements, but the coincidence is there already. Only more time will tell but I would recommend other sufferers try.
Replied by Jean
(Northland, New Zealand)
10/02/2014
Apple Cider Vinegar and Magnesium
Posted by Bill (San Fernando, Luzon, Philippines) on 12/21/2010
★★★★★
Here is some research which confirms the positive effects of using malate (ACV) and magnesium to help cure Fibromyalgia (FM) and is yet more confirmation as to how alkalizing with ACV and baking soda (forming malates) plus taking Magnesium (as Mag Chloride or Mag Citrate or Mag Gluconate) can help FM.
Here are the summary and abstract conclusions from the research:
"Primary fibromyalgia (FM) is a common clinical condition affecting mainly middle-aged women. Of the etiologies previously proposed, chronic hypoxia seems the one best supported by recent biochemical and histological findings. We postulate that FM symptoms are predominantly caused by enhanced gluconeogenesis with breakdown of muscle proteins, resulting from a deficiency of oxygen and other substances needed for ATP synthesis. We present data supporting a critical role for magnesium and malate in ATP production under aerobic and hypoxic conditions; and indirect evidence for magnesium and malate deficiency in FM. After treating 15 FM patients for an average of 8 weeks with an oral dosage form with dosages of 1200-2400 mg of malate and 300-600 mg of magnesium, the tender point index (TPI) scores (x±) were 19-6±2-1 prior to treatment and 8±1.1 and 6-5±074. Respectively, after an average of 4 and 8 weeks on the magnesium malate combination (p < 0.001). Subjective improvement of myalgia occurred within 48 h of supplementation. In six FM patients, following 8 weeks of treatment, the mean TPI was 6.8 ±0.75. After 2 weeks on placebo tablets, the TPI values increased to a mean ± SE of 21.5 ±1-4(p < 0.001). Again, subjective worsening of muscle pain occurs within 48 h of placebo administration. A double-blind placebo control trial is currently underway."
Source:http://informahealthcare.com/doi/abs/10.3109/13590849208997961
So, just taking two tablespoons of ACV with 1/2 tsp sodium bicarbonate in half a glass of water three times a day with split doses of between 300-600 mg magnesium per day is actually very beneficial against Fibromyalgia.
Replied by Youanna
(Romania)
11/14/2023
★★★★★
Artificial Sweetener Link
Posted by Shannon (Blue Water Bay, Fl) on 01/11/2010
My research is preliminary though I have experienced a reduction in all over body pain. I was beginning to think that I might have this new silly mutant desease that is now being titled Fibromyalgia. I am a daily reader of this site and was one day reading of aspartame poisioning. I was shocked that my beloved coffeemate creamer contained this new lab created sweetener stuff. I quit adding it to my coffee two weeks ago. Within a day/day and a half my all over body pain had quit.
I checked out this page today and was surprised to see so much pointing to flouride poisioning. I was sure I would see something about these artificial sweeteners causing what is now being diagnosed as Fibromyalgia.
I read of airmen being poisioned in the gulf war of aspartame. What I read was it was linked to pallets of diet sodas shipped to the desert. Being in the desert these cans were exposed to heat. Aspartame and its related biproducts are known to become toxic both in consumption and exposure to heat. Unknowingly they were consumed and that is what made these veterans sick.
http://www.dorway.com/guilford.html
http://www.mercola.com/article/aspartame/gulf_war.htm
Check your diet! The FDA has approved this stuff for use in our food products. OMG!!! We (consumers) are the guinea pigs. Do some research of your own. You don't have to look very hard either.
I generally eat fairly healthy though I love my junk food/fast food as much as the next. I do not like this diet stuff and even turn down sugar free items as I don't like the taste of those artificial sweeteners. I was surprised to find it in my coffee creamer and stopped it immediately. As stated, my pain has been gone for two weeks so far.
Replied by Shannon
(Blue Water Bay, Fl)
01/19/2010
Replied by Rhanna
(Colorado Springs, Co)
03/29/2011
Replied by Alison
(Manchester, Uk)
04/15/2012
Replied by Dawn
(Kennewick, Wa)
06/17/2012
Replied by Grateful
(Thank You For Earth Clinic, Usa)
06/17/2012
Replied by Carly
(Seattle, Wa - Usa)
06/18/2012
Replied by Katy
(Waynesboro, Va)
10/30/2015
Replied by Bodulica
(Barrie, Canada)
10/29/2020
beverly
(Texas)
03/07/2022
Michael
(Texas)
04/30/2022
★★★★★
Avoid Raw Fish
1 User Review
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100% |
Posted by Janet (Pasadena, Ca) on 11/18/2009
Jason Uttley's theory about fluoride poisoning causing fibromyalgia really resonates with me. I don't have fibromyalgia per say, but every so often I get a strange sensitivity, burning sensation on the tops of my legs, sometimes on my upper arms. I haven't been able to figure out what triggers this fibro pain except on two occasions. One of those occasions was today. I had seared tuna (raw sushi) on salad for lunch at a restaurant today and an hour later, I had (still have) burning on my left thigh. The other occasion was after I got a deep tissue massage. Both tops of my legs were so sensitive that if I brushed them ever so slightly the pain would be so intense I would scream. The effects lasted over 24 hours. I know raw tuna has mercury, but I don't know about fluoride. Anyone have ideas? I am going to start detoxing with Ted's borax remedy because it seems like one of the best things to remove heavy metals, fluoride and mercury. I thought I would mention this in case it solves part of the fibro mystery for someone.
Replied by Lou
(Tyler, Tx)
10/24/2014
Replied by Janis
(Boston)
01/28/2015
Baking Soda
Posted by WindingDown (CA) on 01/16/2022
★★★★★
I had gout in 2005 lasted 6 weeks before I went to the Dr. he said it was gout. Wrote me a script. NOT MUCH was on the internet back then about home remedies. On a DEEP DIVE I saw someone charging for a cure. I kept searching and found it FREE!
Backing soda and water. YES!! FOR ME in 3 days of twice a day, 1 level teaspoon in water morning and late afternoon fixed 6 weeks of horrible pain in 3 days!!
Another time few years ago pre KETO way of life I was suffering from horrible Fibro pain, worse EVER! Finally went to the Dr she said its my new normal. I said NO WAY, I will surely die!! SO going home defeated, I remembered the gout pain years before. I realize after searching you can get gout everywhere. SO I tried my home remedy. THIS TIME it took a little over a week of 2 a day baking soda and water. IT WORKED THANK GOD!!
I then started Keto way of life, I don't care what anyone says, for me gout is from lots of carbs, like starches and sugars and grains. Since being KETO I do fall off the wagon sometimes but over all my body fibro and CFS issues are WAY BETTER FOR ME! GODSPEED everyone.
Biofilms and Nano Bacteria Connection
Posted by Pr (Houston, Texas) on 10/12/2012
I am female who has been suffering with fibromyalgia and chronic fatigue for 15 years and have tried every remedy in the book, plus some. I would have success with some remedies short term but never long lasting. I have recently been doing an intense research on biofilms and nano bacteria which has helped me understand why I had not had a full recovery. Not to mention the relapses or excruciating.
Any body with any chronic disease should research this information as I think this is what is needed at this time. I have read some postings on EC in regards to biofilm and nano bacteria however it has been hard to put it all together.
I am posting 3 links I have found most helpful. Two of them are protocols for biofilms and nano bacteria and the other is how vitamin D will actually make the disease worse (a must read). Vitamin D seems to relieve symptoms at first because it acts a secosteroid so a person has short term relieve. In the long run it actually makes the disease worse. The article explains in detail how it does and provides research, references and studies.
This has not been an easy journey for those of us who have suffered with years of chronic pain and conditions but I am hopeful with this information. One thing for sure I have learned the hard way, watch what you eat. There is no short cut or way around avoiding proper diet. Remember to stay optimutist has all things are possible with God or what name you call your creator.
http://bacteriality.com/about-the-mp/
http://www.herbsforlyme.com/category-s/225.htm
http://mpkb.org/home/pathogenesis/vitamind
Replied by beverly
(Texas)
03/07/2022
Borax
Posted by Acrane (Ms) on 05/09/2017
★★★★☆BETTER BUT WITH SIDE EFFECTS
I have just recently started taking Borax for what has been diagnosed as fibromyalgia. I started taking concentrate of 1 tsp to liter of water and then take 1 tsp 3 x per day of that concentrate. (I have gradually increased to 12 tsps of concentrate each day since I am pretty sick, seizures, brain swelling, etc.) I have started taking 400 mg of magnesium and Tums (1000 calcium and 200 mg of magnesium) daily.. I am also taking a liquid multivitamin, mineral and amino acid supplement which keeps me from getting anemic. It has a 95% absorption rate which helps when you get older, etc.
I have bad thigh muscle pain, occasional calf pain and sometimes pain in the muscles around my shoulder. Pain medication does not help, Lyrica does no good. Pain rub Voltaren does help some.
Since starting the larger amount of Borax I have severe pain in legs and shoulder. One day I woke up in the morning and had NO pain for about the first 30 minutes after awakening. It freaked me out. I couldn't believe it!
I have gone back to a smaller dosage of Borax Concentrate and worked back up to 6 tsp a day. Pain is not as bad. I think I was having the Herxheimer reaction. (large die off). For the first time in years I have a little hope.
