Dietary Changes, Acupressure
1) I detoxed my life style (as much as I can):I eat only organic, No GMO foods, no preservative filled foods , no refined sugars, no artificial sweeteners, no harsh chemical cleaning products, no table salt, no nonstick cook pans, no florinated or chlorinated water, I take only organic hemeopathic and herbal medicines and (this is a biggy) I get lots of vitimin D from sunlight.
2) I use self applied acupressure EFT(Emotional Freedom Techniques) and MTT (Meridian Tapping Techniques)every day to clear the stress and anxiety from my mind and body.
I must tell you it has been effective for me and my family as well. I used MTT to ease my baby's teething pain and it worked great. I was so pleased with my results that I taught EFT to everyone who would listen to me.t is quick to learn, easy to apply and works fast.
There are tons of places on the internet where you can learn more about EFT & MTT, the manuals are free. Simply look up MTT & EFT.
LUV D
DMSO
★★★★★
I started taking 1/2 tsp of DMSO every night. It's the fourth day now and most of my stiffness and sore joints have disappeared. I started taking 1 oregano capsule every day, too, plus a capsule of garlic in the afternoon. But I have done those before with no results. The DMSO is amazing. I was getting so stiff I couldn't bend at the knee. My bursistis in my left arm is improving, too.
DMSO
★★★★★
A few months ago someone told me about this site, so I started reading as much as possible in an attempt to figure out what was wrong with me. It seemed that every time I read something that sparked my interest you wrote it. About 3 years ago I became very sick crippled in bed with pain in my hole body. It felt like electrical shocks traveling threw my veins. I also experienced what I will call hot spots mainly in my left arm which I was not able to move with out pain for many months. I went threw test after test to be told all where normal. Finally I was told by an infectious disease doctor that I had undiagnosed lymes and probably had it for many years. I was given antibiotics and began to feel a little better. I have had many tick bites since I love the woods. My primary Doctor told me there was nothing wrong with me and suggested I get psychiatric help but at the same time he sent me to another Doctor and after a 2 minute examination he told me I had Fibromyalga. At that point I lost all faith in medical doctors. I spent many years learning to deal with the pain and just adjusted to the fact that if I was able to function for a day the next 2 days I would be bed ridden. Each day I had to force myself out of bed it was an effort just to get to the bathroom. There is a lot more to my story but I will get to the point. I finally decided to try DMSO and with in 5 days of taking a half of teaspoon I have no pain and the energy of a 3 year old child. I still have the numbness in my left index finger and thumb and tickling up my arm. But to be pain free after all these years is a miracle! If you have time to write back I can give you more details of other doctors findings concerning my spine and hips. I am afraid to continue with the DMSO for I don't know if it will cause other problems. Please write back with your advise.
Thank You!
Dear Sandy: Two things that are effective against pain is DMSO and MSM. It takes about a week to noticeably reduce pain and most effective after 2 weeks and maintaining that dose helps. Magnesium (no calcium) and hyaluronate should deal with other pain. Any additional information is welcomed. Ted
(Canada)
10/11/2014
Been taking DMSO 1/2 tsp in water at night, 5 drops lugols iodine in water in the morning and 1/4 tsp of borax in a liter of water throughout the day. I really noticed my energy level Go up and I could think better....Kind of like the brain fog has lifted. My joints and muscle stiffness has improved. I still have a hard time sleeping comfortably as it has improved just a little.
(Fl)
10/12/2014
Eliminate Tap Water
★★★★☆
Emu Oil, Cherries
★★★★☆
Thanks,
Regards,
Delphie
(Howell, Mi)
05/03/2011
Fluoride Connection
India has been living with the effects of fluorosis for years. We can learn important lessons from them. India has high levels of fluoride in the water and soil, and they have the exact opposite image of fluoride than those in the US. They are currently working to defluorinate their water supply and they are asking US toothpaste companies to leave. They report that "donor" countries have been encouraging fluoridation there. Physicians in India would diagnose fibromyalgia with a different name: a non-skeletal phase of fluorosis, where fluoride affects the soft tissues of the body. Too arrogant to learn from our world friends, we invented our own diagnosis. Patients in India who present to a physician with GI disturbance, muscle pain, headaches, fatigue and cognitive decline are immediately recognized as having fluorosis.
The US not only helped to create the fibromyalgia/chronic fatigue problem here with the fluorination of drugs, we've missed the diagnosis for 50 years.
A noted fluoride toxicologist in India recommends a blood test called SA/GAG that offers a definitive diagnosis. I am trying to see if that is available in the US through some physicians I know.
Most importantly, we can learn from the effective treatments used in India today. Removal of fluoride from the diet, supplementation with calcium, magnesium and vitamin C. This simple treatment appears to be working and their physicians say fluorosis is reversible if caught early. How many of us wish we had known this sooner!
After 50 years of studying what happens when you drink a toxin, it makes more sense to simply keep the toxin out of your body.
(Kenedy, Texas)
09/14/2008
I really appreciate this information. I suffer with Chronic Fatique and will definitely be sharing this info with family and friends that also suffer from it. It is hard to get others to believe that flouride is a dangerous toxin, because it is so drilled into us through commercials and from our dentist that it is necessary for us to use it to prevent cavities. Many have the opinion that if the FDA says it's safe for us, then we should not worry. I stopped using flouride about a year ago, and am wondering after using it for 30 plus years, how long it takes to get the effects of it to go away. I am supplementing with calcium, magnesium and vitamin C and have seen some improvement, but there are days that I have no energy whatsover.
Thank you again for posting this information.
(Austin, Texas)
12/31/2010
I cut out fluoride a long time ago, and I've been taking magnesium, calcium, and vitamin C for years before and after my fibromyalgia diagnosis. I don't think there's a connection for me, unless I just need to detox from the fluoride. I'm confused about this fluoride connection since mostly women have fibromyalgia and everyone drinks tap water with fluoride.
(London, Uk)
03/28/2011
Ellen, from what I've read on this site alone, flouride will stay in the system unless you do something to get rid of it, its not enough to stop the intake. Also, I read there is a link to women taking a lot of flouride based antibiotics for urinary tract infection, which I guess they're more prone to. It's also been suggested that more men than once thought suffer with it as it becomes more widely known and diagnosed. Perhaps its not as straightforward as we'd like, there may be other triggers or factors as well perhaps...?
(Denton, Tx)
04/26/2011
For me, the issue is definitely not with fluoride. I have been detoxing fluoride for months and the only thing that has helped me is anti-viral therapy, which makes sense as my fibromyalgia developed after a bout of the swine flu.
Fibromyalgia is not a new disease. In fact Charles Darwin had fibromyalgia and chronic fatigue syndrome. It was described as what Job had in the bible and there are ancient Greek /Roman accounts of fibromyalgia as well. It was only recently given its most modern name. It did not appear upon the advent of fluoride in municipal water supplies and antibiotics. For some, it could be the cause, but unfortunately there is no magic bullet cause and cure and we all have to figure out what works best for us and what our individual issues are. Mine were viral and metal toxicity issues as well as yeast.
(Melbourne, Australia)
04/27/2011
Ellen, I developed fms, cfs, mcs which has led to osteoperosis, blocked arteries etc etc its a real mess after glandular fever, barvon forest, ross river virus. What have you been doing to kill the virus? Ive done everything on here - garlic, colloidal silver, etc etc and yes, some antibiotics just to ruin my gut some more. Have you heard of Marshalls protocol - is that what you are suggesting?
(Denton, Tx)
05/14/2011
★★★★☆
Robyn, I have been taking a multi-pronged approach of destroying biofilms that pathogens hide in with enzymes, boosting the immune system with IP6 inositol, AHCC, vitamins D, E, A, B's, zinc, E, taking thieves oil internally & applying externally, detoxing metals with sodium thiosulfate & DMSA, etc. I'm not 100% but I think I'm making a slow but sure recovery. I used to be so bad that I thought I was dying and now I can go hiking. I also drink borax as suggested on the site, and ACV baking soda. I'm not sure if the ACV baking soda does anything. (please email me at s. Genteel85(at)gmail.com if you have any questions)
(Melbourne, Australia)
02/07/2012
I can't believe I've been combing this site for 2 years and never looked on this page. I've done all you are recommending except the dmsa. I've had edta IV and orally and every other detox - except ala - have it to take the way Bill recommends but Andy cutler takes it quite differently. Some say it's dangerous. Is anyone of the belief that this is a brain injury? Is anyone using Gupta successfully? It hasn't helped me which makes me think my fms must be something else.
Gaba
★★★★★
In June 2012, I realize now that even if I do not take Gaba every day my pain does not come back anymore.
Also I am taking a full spectrum Vitamins with Iron, vitamin D, Calcium with C.
I take ___ protein [supplements] with BCAA's (for Lunch 3 times a week), Taurine 500 mg and Magnesium everyday in the evening with a snack, Melatonin 4 mg before I go to bed
I drink a tomato juice with 3 tsp of Apple cider vinegar 3 to 4 time a week....
I have a very healthy diet a lot of green smoothies (avocado spinach, Mango or green apple... and Protein powder but not to much fruits too much sugar...
I feel great today and I think that 2 years of Gaba cure me from all that pain..... I do exercise one hour every day...
if someone else took very high dose of Gaba please share your experience I would like to know.
GAPS Diet
★★★★★
I slowly developed some of the symptoms of fibromyalgia (IBS, dermatitis, allodynia, aneamia, low immunity, PMS and irregular, painful menses, etc. ) throughout my childhood until I became very ill at the age of 16, also developing chronic muscular and joint pain, extreme fatigue, brain fog, weakness and a host of other symptoms. I now believe the onset was gradual due to a slowly worsening condition of my gut, partially thanks to the frequent use of antibiotics (as I was often very sick as a child) without probiotics (my parents gave me Yakult to drink for probiotics, unaware of the fact that I was lactose-intolerant and never drank the stuff because it made me feel sick).
Over the next 2 years, I slowly began figuring out which treatments help me to manage the condition: occupational therapy, physiotherapy, not eating foods I was intolerant to, using the right skincare products, gentle exercise and mindfulness meditation. I highly recommend all these treatments. I experimented with fluoride toothpaste and fluoride-free toothpaste for a few months and decided that fluoride definitely brought on intense flare-ups. I now use organic toothpaste, which is expensive but worth it. A cheaper alternative is one of the Sensodyne toothpastes - the one which uses strontium chloride instead of fluoride. I noticed no negative effects from using that. I grew up drinking rain water but whenever I drink tap water I have to filter it or it makes me sick. As far as skincare products go, I recommend MooGoo or ecopure.
BUT in the last couple months, I have discovered the most helpful remedy yet: the Leaky Gut Cure Program by Karen Brimeyer. She proposes that leaky gut can cause fibromyalgia, and that by following her program leaky gut can be healed. (This is a similar theory and treatment to GAPS, but it is a lot cheaper to buy Karen's program than to follow the GAPS program. )The program involves eating certain foods, avoiding certain foods, reducing toxins in your household products and clothing, and following healthy lifestyle practices, such as observing appropriate sleep hygiene and many other things. It also involves supporting your adrenal glands, ridding your body of pathogens and healing the lining of the gut through supplementation. I had read and tried many other similar programs in naturopath books, which only seemed to make me sicker. But this program makes me feel better, not worse, and I can assure you that it is perfectly nutritionally balanced. My pain has decreased (I no longer take pain medications), I can think more clearly, I am sleeping much more soundly and feel refreshed when I awake (rather than stiff, sore and exhausted), I have been feeling a lot more energetic and people are saying that I look really well. And I tell them that it is because I feel really well! I have never felt so alive in all my life!
I cannot give exact details of the program here due to copyright issues, but I will tell you that Karen Brimeyer's program is surprisingly cheap and can be found at www.leakygutcure.com. Anyone with fibromyalgia, chronic fatigue or IBS should google GAPS to see if they think that they suffer from it - and if they think it likely that they do, they should try the leaky gut cure for at least a week. Even if it can not cure everyone with FMS, I am sure that it can help many people with it - so it is definitely worth a try!
I now feel confident that I am healthy enough to continue with my university degree and work a part-time job too!
I hope that at least one person reads my post, tries the leaky gut cure and becomes healthy and energetic!
(Canada)
12/17/2014
★☆☆☆☆
WARNING!
I checked out this Karen Brimeyers program, and it is a scam from what I can tell. The person writing it doesn't even use proper grammar!
General Feedback
My massage therapist suggested I drink alkaline water so what I've read here seems to jive with that and now it all makes more sense. I'm concerned about trying the ACV because I have barrett's esophagus and am supposed to avoid acids... Then I read to add baking soda to change it from an acid to a salt... you all should be chemists.
This site is very interesting. I'm glad I ran across it while doing research for my stepmom who was just diagnosed with lung cancer.
Thanks for all the great info!
General Feedback
I could go on forever but I'll stop now. God bless all of us. I hope this is it because I can't bear to think of any more, especially children going through life with all this pain and sadness. Thank you for earthclinic. Thank God for compassionate human beings.
(Somewhere, USA)
10/07/2012
(Oakville, Canada)
10/07/2012
Hi Mary Margaret, sorry about your condition. Have you ever tried Tamarind Juice and Wheat Grass Juice. Tamarind Juice will remove the flouride poison and wheat grass juice will produce pure blood and this pure blood will rejuvenate the tissues and organs. replenish your bones. You have nothing to loose, just a simple Tamarind Juice at least to remove the poison.
Wheat grass juice is tough to make as we are heading to winter. But you can buy from dynamic greens, their quality is good. I used their wheat grass juice and it is nice.
Here are the foods and conditions to avoid strictly.
- No Flouridated Toothpaste
- No Flouridated Bottled Water
- No Microwave Cooking
- If possible you can change your place for 1 month where toxicated surroundings are less.
Here is my tamarind juice recipe link: https://www.earthclinic.com/cures/fluoride2.html#TAMARIND
You can continuously take it for 4 weeks daily then give a gap of 1 week and again continue for 2 weeks or So. There after weekly 3 times. Be informed, don't take more than 2 glass tamarind juice daily and don't take continuously for 2 months. I take Once in a week, to remove flouride poison as my city water is flouridated.
Try it, this may do wonders. Who knows sometimes a lifelond Chronic Disease can be cure by a Dollar value of food. Nature has its invincible power.
Good Luck
General Feedback
Hi EC,
I was looking at some of the results of your older questionnaires and you had included a question about long-standing viruses. It seems to be missing from current questionnaire.
I have autoimmune, sjogrens, Raynauds and arthristis issues which are worsening. I am also battling shingles and herpes. Many of the older questionaire replies mentioned shingles, epstein Barr, Mono etc. which I think could be a leading cause. Please correct your current questionnaire to include the virus question, or ask about chickenpox and herpes. I think it could be useful info. Thanks, Dot (Sydney)
EC: Thanks for the suggestion, Dot. Can't remember the exact reason why, but we removed that particular question from the fibro questionnaire a couple of years ago. I agree with you, however, and have asked the programmer to add it back into the form.
Deirdre
(Loveland, Oh)
10/31/2011
I was diagnosed with fibro 11 yrs ago, after a year and a half journey thru the medical system (4 doctors later) before I received a final diagnosis. I tried everything and researched the subject extensively when able.
This last year, I have been occassionally researching high dose vit D3 therapy. After moving from NM to OH recently, the change in climates affected me so adversely, I decided to try D3.
In looking back at my medical history, I suffered from SADS growing up and felt I was a good candidate for such therapy, if there was anything to it.
I have to say, having tried everything available on the market over the years, high dose D3 has had a remarkable improvement for me in numerous ways.
1. Better quality and uninterupted sleep cycles.
2. Dramatic reduction in pain
3. Energy is improving
4. Cognitive skills are improving.
(This has only been 2 weeks therapy for me)
I just started ACV and am working on upping my magnesium intake, since many people with fibro report improvement with mag. I will be trying magnesium chloride and mag lactate (for muscle cramps) since my research shows they are the most absorbable forms.
I am taking 70, 000 IUs of D3, 3x's a week, mind you I do this without doctor supervision, however don't let my disillusionment with the medical profession disuade anyone from seeking physicians that are knowledgable in high dose D3 therapy. The research I have read recommends 50, 000 IUs to as much as a 100, 000. 50, 000 IUs had no affect on me. Timing schedules also varied but seems to be consistant in terms of longation of a 6 month time frame due to the fact that D3 can be toxic to some in high doses and some people cannot tolerate high dose D3 either due to gastro intestinal discomfort or diaharrea.
I would be interested to know if anyone else has tried D3 and what results they have had.
(Feltham, Middlesex)
02/18/2012
Why do people keep posting remedies on here without giving product information, doses and quantities? Like one chap mentions acetyl l-carnitine with alpha lipoic acid??? Great so what are the doses, what product etc etc. Without these vital details it is completely pointless information.
(Cambridge, Ma)
02/18/2012
I could not agree more!
I love this site and visit it every day, but am (very) often left frustrated with the non-specific information provided by many posters.
As you pointed out, it does none of us any good for people to post about something (or a combination of 'somethings') that helped them when they don't also include what amounts they took, how often they took it, etc.
It would be great if EC could create spaces for this info on the feedback form. Perhaps underneath the subject line, they could include "Quantity Taken (i. E. 2 tsp. )", "How Often? (i. E. Once per day, 3x per day?)
It would be *so* helpful.
(Melbourne, Australia)
02/18/2012
I don't think you are taking the site for what it is.. Just normal people try to help others with remedies. Even if dosages were given in all cases that would not necessarily help you. For instance you know nothing about the person posting the remedy - what they weigh, what their lifestyle is, what else they are taking that may act in synergy with something else. You just have to take in the information and work it around yourself if you want to, as best you can.
Most supplements recommended have the dosage recommended on the bottle so take that dosage first.
All in all you have to research, research, research.
(Cambridge, Ma)
02/18/2012
Debbie - I absolutely do understand that this site is about people helping others. Actually, it was IN that realm that I made the suggestion of including pertinent information to posts, rather than things like, "Coconut oil helped me lose weight" or "Banana peel got rid of my plantar's wart. " That doesn't "help" anyone without more information.
I wasn't referring to supplements where the dosages are on the labeling. That's a no-brainer.
I was referring to things like the examples I gave above, where how much coconut oil and how often it was taken would be very helpful for readers, or how often the banana peel was used in treating the plantar's wart, etc. That very pertinent info would at least give readers a place to start.
(Zug, Switzerland)
02/19/2012
I agree with Kelly. If the person advising a protocol, natural beauty product or whatever gives as much information as possible about what worked for them it stops us from coming back over and over again for details and it helps us as a starting point! I agree with Debbie that we are all different but following what says on the bottle of the supplements more often than not helps no one as the dosages are usually completely wrong! And often, if we are talking about own concotions we won't have any idea about what to do! Maybe I am also guilty of not being specific enough, I don't know but I will sure pay more attention to that! Things like how many times a day, with water or without, with the meals or without, how much of each ingredient, anything that might help other mimic whatever we did!
(Brisbane, Qld, Australia)
02/19/2012
Yes. If you are posting post the specifics please.
(Perth, Western Australia, Australia)
02/20/2012
(Washington)
02/14/2022
General Feedback
(Denver, Colorado)
10/20/2010
Dear Veronica, My heart goes out to you after reading your post and I can only imagine the battle your fighting. Please don't give up. Scour this web site and implement the health tips as much as possible, and also, know that just as God gave us a wealth of natural cures, He also wants to see you healed. He is good all the time. Seek him like you seek the cures for your afflictions and both will be found. I am praying for your healing.
(Nashville, Tn)
12/12/2010
This is for Roni in Weslaco, TX. Try following a GLUTEN-FREE, CASEIN-FREE diet. I know it sounds impossible, but there are many good food substitutions out there. I'm still working on trying to go casein-free (I'm a dairy food junkie). I was diagnosed in 2000 with type 2 diabetes, and in March 2008 with Systemic Lupus and Rheumatoid Arthritis. In Sept 2008 I gradually came off Plaquenil, Methotrexate, and Prednisone (I'm NOT making any suggestions here regarding meds... Just telling what I did that personally worked for me).
In April of 2009 I began a gluten free diet (I weighed around 260 at the time). At my heaviest, about five years ago, I weighed 313 lbs. Right now, I have stayed around 165 lbs for about a year by sticking to a gluten free diet, walking, and doing some resistance training. Supposedly, a casein free diet can cure rheumatoid arthritis (from what I've read online). Here is one link I found interesting: http://www.notmilk.com/forum/798.html Returned to the rheumatologist a few months ago and my joints are none the worse than they were two years ago(I think the gluten free diet is to thank for that). Good luck to you, Roni.
(Hailey, Id, Usa)
12/13/2010
I have to say to look at the oil pulling. I also was in agony a couple weeks ago from sugar, flour and yeast, but I quit that and immediately the pains stopped. In what I read of oil pulling, however, I would love to share that you might find some help in there. I prefer the sesame oil and look forward to it each day, sometimes twice a day. I can go for 15 minutes now, working up to that from 10 for the past 11 days.
(Lakeland, Fl Usa)
02/07/2011
Coumadin is rat poison.
"According to the Institute of Traditional Medicine website, warfarin has been used as a rodenticide since shortly after World War II. Karl Paul Link at the Wisconsin Alumni Research Foundation (WARF), associated with the University of Wisconsin, discovered coumarin, a substance that prevents blood from clotting, which is the basis for both the thinner marketed under the name Coumadin and warfarin. "
Read more: Rat Poison & Coumadin | eHow.com http://www.ehow.com/about_6524045_rat-poison-coumadin.html#ixzz1DIiF1sgH
Coumadin almost killed my father. He now hemoradges easily and his heart is enlarged. After he was on it a couple of months, he felt sick all the time and bled easily. He asked his doctor about the percentaged and discovered he had a greater chance of hemorrhaging to death on Coumadin then of dying of a stroke without it, so he removed himself. About the same time, he began to produce huge amounts of red blood cells which made his blood very thick. His heart then enlarged because of the thick blood, and he had to have blood removed two or three times a month. I associate the enlarged heart to imbalances created in the bone marrow by the coumadin, but as I said, I am no doctor and there is no proof to substantiate this assumption.
That was about 12 years ago. My father continues to have a gammet of health problems, but he has taken fish oil to thin his blood for a number of years. I take 1000 mg 2 times a day to keep my blood pressure and colestorol down. I am almost 60 and obese, but the doctors are always amazed at my blood reports.
General Feedback
Helpful news from my doctors office yesterday. I was given info on a retrovirus XMRV showing up in the blood work of those who suffer from CFS and Fibromyalgia. (see link below) The article did not state Fibromyalgia but many who have Fibromyaglia have CFS. My doctor told me in approx. 2 months the blood test should be ready for use. This can be helpful for many who has tried everything with limiting results.
I have a request for help from our posting gurus to help with natural remedies for muting virus. I know BHT has been mention as one. But how much and how often, and are there other remedies?
General Feedback
from the right breast. At the time I was working an office job 8-5 and packing/cleaning a home in the evenings. I took 2 or 3 days break from the packing after the procedure then back to work. I began to have lower back pain radiating into my legs and attributed it to the increased physical activity and not resting enough. Over the next 5 months I was involved in moving my belongings from the Midwest to Florida and working on the house in Florida, it was very physically demanding. I had surgery for a complete tear in my right rotator cuff, a year later surgery for carpal tunnel in right hand. About 3 months after the rotator surgery I began to experience flu-like pain all over my body and was prescribed a well known medicine for arthritis. It helped but had to be increased eventually. Within a few months the carpal tunnel surfaced and I was prescribed a drug that is most commonly prescribed for Fibromyalgia. The commercials for this drug got my attention, as they address other symptoms I've experienced. It could be a coincidence but the symptoms seemed to start after I had the lump procedure and worsened after the rotator surgery. If I miss taking the arthritis med it's like I have the flu, actually worse, the slightest touch of my skin is excruciating. I want to wean from the second drug because I think it's causing weight gain. I received a lumbar injection yesterday and the Dr. wants me to continue that drug for an undetermined time.
The profiles from the Fibromyalgia questionnaire got my attention with the question about recent surgery. Does there seem to be a connection between surgery and onset of Fibromyalgia? Also I was in the military for eight years, 2 overseas and I can't donate blood due to possible exposure to mad cow disease. I'm 49, I've always been strong and healthy, the last 3 years have taken their toll physically and mentally. I'm a fighter and beginning to feel like a hypochondriac, any advice you can give is welcome.
EC: Fldrifter is referring to our questionnaire on this page: https://www.earthclinic.com/cures/fibromyalgia_studies.html
(Tyler, Tx)
10/24/2014
General Feedback
