General Feedback
Here's my best pain reliever (I avoid the drug store kind.) Saving in the freezer all peach pits, placing just one in a plastic bag and hitting it with a hammer, eating the seed inside when I have pain. Dramatic difference for me.
Also guaifenesin (plain expectorant).
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The Merck Manual gives Fibromyalgia etiology as lack of approval from the mother. I've read most fibromyalgiacs strive for approval and thus over-do. You can see how this is related to energy issues. Striving = strife, a sin in the Bible; of course, it doesn't really bring happiness. Add such related questions to your survey to address mind-body links.
You notice how many name stress as a cause in their surveys. Aim to live (and teach the children to live) a competition-free, strife and striving/ambition-free life outside the normal culture of living for commendation (being "cool", better looking, appearing richer, having a more noteworthy job, etc.). Remove yourself from high stress entertainment, unnecessary criticism, importance for importance sake, and "extreme" everything. Let yourself enjoy your own person as you are. Take time to do what _you_ enjoy. Live gently with good common sense routines of mealtime, sleep, work, play, spirituality and rest. When you do _not_ do these things, you are living with fear of not being approved.
Many fibromyalgiacs are addicted to hurry. Hurry makes people feel important. Hurrying gives the "free drugs" (adrenaline) that makes people feel involved in something important.
General Feedback
- Another question that might be useful in trying to pinpoint causes, any vaccines they were given prior to onset/or prior to overseas travel (I noticed that on fellow said his started after a trip to Korea -no military- This could indicate trouble starting from vaccines given prior to the trip. I especially suspect this since I recall reading an article by a female doctor with the VA system who made a darned good case for blaming the lupus-like symptoms of the Gulf Storm veterans on the mercury preservative in the injections they were given before leaving the states. Her theory was based on a study of blood work from many of those veterans after they developed the problem during the time that the VA system was denying that there was a syndrome with a cause.
A funny thing about that I was talking to a coworker at the VA where I worked one night who was one of those Gulf Storm vets about this doctors theory. He also expressed doubt that such a syndrome existed and told me that he was over there in the midst and didn't develop the syndrome. He later told me that he had refused to take the injections and took oral medications instead. I couldn't help laughing when I told him that he was the exception that proved her theory to be plausible.
I also noticed that many symptoms in lupus, fibromyalgia, fluoride/MSG/aspartame toxicity are the same, so I think they are going to all be involved. I remember being told in Family Nurse Practitioner pharmacology course that all antibiotics are toxic- the idea being to give enough poison to kill the causative organism without killing its host (patient).
(USA)
01/01/2008
I appreciate Joyce's suggestions and feedback, even if I don't agree with them. First of all, I don't think there's much evidence to support a conclusion that mercury is a cause of fibromyalgia. I've read theories on that subject, including how it might be able to explain gulf war syndrome, but (at least in my opinion) it is a very weak theory and one usually tossed about either by those that don't know a lot about fibromyalgia, or those that don't really care much about the statistics of fibromyalgia. After all, how does mercury fit with a condition that exploded out of nowhere in the early 1980's? How does it relate to a condition that effects 95% women to only 5% men? And, perhaps mostly notably, why is it almost unheard of for children and newborns (who are known to be particularly sensitive to mercury and other toxins) to develop fibromyalgia? Children would be developing FMS en masse if mercury were really a cause of FMS (assuming mercury based vaccines were a major source of exposure, as has been discussed in the autism debate). Mercury maybe a plausible theory on autism (although not necessarily one I believe in anymore), but not for fibromyalgia.
Besides that, to anyone that says that the symptoms of mercury exposure are the same as fibormyalgia, I say....prove it!! Show me what the leading authorities in the world wrote of the symptoms of chronic mercury toxicity prior to the emergence of fibromyalgia. Show me that....explain how the statistics fit the primary source of mercury exposure.....explain what changed in the early 1980's with respect to mercury exposure....explain why children almost never develop FMS....and then, I'll be more than happy to listen. By the way, I believe MSG & aspartame have been linked to Lupus and MS, but not to fibromyalgia. Many of those with FMS, including myself, are very sensitive to those kinds of excitotoxins, but the symptoms are not the same. The symptoms are very much more in-line with MS. I don't think there's any question in my mind that excitotoxins are linked to MS, the only question really is can excitotoxins cause MS without fluoride exposure? I believe Russell Blaylock joined the fluoride community, in part, to answer that very question. A question I don't think we really know the answer to yet. As for adding a question regarding medications taken to the FMS Questionnaire.....I would just ask, what is the point of such a question? We already know based on what we know of fluoride toxicity that there is often a delay between when exposure occurs and when major symptoms begin (as is the case regarding the chronic toxicity of many major toxins). We also know that fluoride is cumulative in nature, so for many people, there may be more than one major source of exposure that triggered the related symptoms. This means that a lot of people won't be able to recognize the point of exposure that caused fibromyalgia. Adding such a specific question only serves to highlight that fact. From what we've seen, respondents to the questionnaire already use the Theories question to give us their thoughts on potential causes, be it, medications or otherwise. I tend to think that's the way to go, but that's just my opinion.
Finally, I think most of those suffering with fibromyalgia would probably find the following statement of Joyce's a little offensive..."I wonder if the tremors & brain fog they complain of might be helped by taking a good stress tab with meal time and bedtime." The problem isn't that it's wrong, is just that it sounds like what someone who doesn't really understand fibromyalgia might say. The brain fog associated with FMS is often described in it's most severe forms as if the person is developing dementia, or Alzheimer's. Can you imagine telling someone with dementia that they should just take a stress tab? And what of all the other symptoms?
I don't agree with you. For one thing, in the 70's children started having more vaccinations. It started getting ridiculous then. Then, they started putting all the children on Paxil or Prozac. Remember that? Well, Mercury is a toxic deadly substance. Why in the world would anyone want that in their body? I suffered with fibromyalgia. Omega 3 in the form of Evening Primrose and Thunder God Root helped me tremendously out of it!
(Austin, Tx)
12/31/2010
In 1816 Dr. William Balfour, surgeon at the University of Edinburgh, gave the first full description of fibromyalgia. Can you prove that fibromyalgia emerged in the 1980's? It was in 1976 that it was given its name. Unfortunately, medical science moves so slowly that many diseases that have existed for ages are given names and recognized in the 20th century, especially when previously it was considered to be psychosomatic, which slowed down the progress of its study. If you could prove these statistics, I would be ever so happy, as I would know the cause of my suffering, but I think you should provide more data or tell us where you got yours. I've been avoiding fluoride for years and still have fibromyalgia. Thanks for your research.
(Regina, Sk)
12/31/2010
Ellen:
Have you looked into the possibility that exposure to mold and its neurotoxins sometime in your past may be the root cause?
Did you ever work in a old musty damp workplace?
Or a friend's house perhaps?
Most buildings built or renovated going back to the 1970's energy crisis were basically sealed, leading to SBS Sick Building Syndrome which has been traced by experts to not just noxious outgassing of manmade materials, but to acres of molds living in the duct systems. In a skyscraper, there's an unbelievable square footage for it to cling to, and that doesn't even count damp dark corners in the rooms, etc. Fibromyalgia has so many 'signatures' that it is commonly misdiagnosed by the medicos as CFS (another vaguely defined illness), SBS, psychosomatic, or whatever. There is a world expert in all this in the USA, and he as an active medical practice around this. He is Dr. Ritchie Shoemaker in Maryland. He has several websites, each very thorough, and now has another new book SURVIVING MOLD just out with his research updated from 2005. He has an entire medical treatment protocol based on removing the circulating neurotoxins which some people cannot break down and eliminate, even after exposure to the molds is eliminated. Check it out please!
(Torrance, Ca)
01/01/2011
Use Turmeric with 20% black pepper (850 mg veggie capsules) for fibromyalgia. Turmeric is a natural pain killer and a natural anti-inflammatory. The black pepper aids in the absorption of the turmeric and other nutrients into the body. My sister's best friend has fybromyalgia and has taken prescription medications for years. She tried Turmeric with black pepper and felt the best in years. Her doctor took her off her fibromyalfia prescription medication.
(Austin, Tx)
01/01/2011
Tom, thank you for your advice! I used to live in a very moldy house in a rainy area, and I felt very sick at the time. I'm not sure if that's when my problems started, but it might be. Al is right, turmeric helps! I make a warm ayurvedic drink with lactose free milk (if you can tolerate that), rice milk, turmeric, ground black pepper, honey, and cinnamon. It helps. Hypnotherapy combined with reiki (in the same session) has helped me deal with the pain a LOT and is very powerful. It can address the root of pain if there is an emotional component as well. The fluoride theory is intriguing and convincing but I'm not entirely convinced, since there seem to be holes in that logic, for instance, fibro was around way before fluoridation of tap water and cipro. Furthermore, is it really mostly women who take cipro? Everyone drinks tap water, too.. So why is it 95% of women who have fibro?
(Montgomery, Tx, Usa)
01/04/2011
I have given 3 of my clients an Egdar Cayce Health evaluation for the treatment of Fybromalgia and they all benefited from it. It is $50 and you can print it off your computer and send it the the A. R. E. Here is the link to the evaluation: http://www.edgarcayce.org/are/spa/pdf/evaluation.pdf
You can search the internet for the A. R. E. And Edgar Cayce.
(Montgomery, Tx, Usa)
01/04/2011
(EUSSR)
12/14/2022
Indeed, "muscular rheumatism" was recognized in the late nineteenth century, probably called muscle aches, fibromyalgia, or morning stiffness nowadays. They were thought to be related to gout and rheumatism of the joints, and, incidentally, also to skin diseases such as dandruff, pityriasis, psoriasis, eczema, and lichen (more info: Henry Granger Piffard).
In Phillips's Materia Medica: Inorganic Substances, it says on page 100 of the third edition (1904):
"In muscular rheumatism [the iodides] are useful, especially in those cases where the pains are made worse by warmth, as in bed at night."
→ Sounds like morning stiffness / fibromyalgia.
(Melbourne , Melbourne)
01/09/2011
Interestingly as someone said Fibromyalgia used to be called Muscular Rheumatism. I found this information where it says that it is helped by Magnesium and the best way to get it into the body is by bathing in Epson Salts.
http://www.iodine4health.com/special/nutrients/magnesium/epsom_salt_magnesium.htm
(Cincinnati, Ohio)
01/18/2011
The more I question the fluoride connection, the less sense it makes. Perhaps there is a link for some, but the evidence is not strong in my opinion. I've known about fluoride for years and steered clear of it. I've done detoxes for fluoride. It hasn't done anything for my fibromyalgia. In fact, I started avoiding it aggressively long before I even got fibromyalgia.
The main thing that has helped me more than anything is attacking the biofilms that bacteria and candida form in the body. There is so much medical literature out there linking hidden infections to many chronic and poorly understood diseases, like MS, fibromyalgia, CFS, etc. I study biofilms in a biophysics research lab and after some point even bleach can't kill them. Antibiotics and antifungals can't do anything to permanently rid the body of an infection if the bacteria have formed a biofilm, and biofilms also allow bacteria and yeasts to evade detection by the body's immune system. One day I will put the time to write a detailed article, but until then, research it. There's a lot out there. I use EDTA, enzymes (serrapeptase, nattokinase, protease etc. ), Betaine HCl HCl (that's lowercase L) Activator, and some antimicrobials like garlic, neem, etc. I am currently having a die off reaction. Once I see more results and write a coherent article I will post it.
(North York, On, Canada)
01/20/2011
General Feedback
Extracted from Nexus Magazine, Volume 8, Number 5 (August-September 2001) PO Box 30, Mapleton Qld 4560 Australia. [email protected] Telephone: +61 (0)7 5442 9280; Fax: +61 (0)7 5442 9381 From our web page at: www.nexusmagazine.com Researched by a Canadian and now being used in Gulf War Syndrome legal cases in the USA after government documentation "disappeared". Full references with the article.
General Feedback
Get Tested for H. Pylori
★★★★★
A few months ago, I listened to Dr Amy Yasko talk on a stomach bug called Helicobacter Pylori. She went into the hidden symptoms, namely shut down Liver detox and Thyroid so for the first time in all my research, I considered this talk. I had no other symptoms but I went to get tested. My Doctor refused, saying I had no symptoms and it wasn't necessary. Eventually, after a lot of persistence she agreed to do the test to rule it out. Two days later I was called back in. My Doctor was quite upset and extremely apologetic. My levels of Urease were so high, it implied I had had this bug since childhood, which would be true as it is inclined to make one Anaemic and I had suffered that at age 9 and had to have injections. I am 55 now and this bug is classified as a class 1 carcinogen. I managed to reduce some of it with Mastic Gum but eventually had to have the Triple Therapy. The eradication left me with terrible discomfort in the gut but the Fibro symptoms changed.
During this time, I learnt about Inclined Bed Therapy and I raised the top end of my bed 6 inches. All the chronic inflammation I'd had moved down to the gut, hips and legs and I got a flare up of Fibro there which took me 2 weeks to recognize as I was so used to having it in my upper body and I never got it there. I managed to clear it by adding a Chinese Herbal called Thunder God Vine which is a powerful anti-inflammatory. I started this because it showed it killed 60 Cancerous cell lines and I was worried about Gastric Cancer from the Pylori. The next thing I knew, all inflammation in my body went down, my weight dropped to my ideal weight, and no matter what I ate, stayed there. Between the Inclined Bed Therapy (inclinedbedtherapy.com) and the Thunder God Vine, and getting rid of the H.Pylori, I am doing so much better. The Electro Hypersensitivity (EHS) changed too. I used to have to move at least 50 metres away from mobile phones to stop feeling them. Now it takes so much longer for those frequencies to cause inflammation, I get bad headaches from them rather than body inflammation but it all stops when I move out of range, and that never happened before. The Thunder God Vine (TGV) is also a powerful anti-viral and works strongly against Epstein Barr Virus and Herpes, both of which I have. It also works against Lyme Disease and all Autoimmune disorders. TGV is an immunosuppressant so is capable of recalibrating an overactive immune system. My brother in law is trying it now for MS as he's just lost the use of his legs.
Anyway I wanted to write this post and encourage anyone who suffers from Fibromyalgia to get tested for H.Pylori, even if you have no symptoms. If you've ever had Glandular Fever or have EBV antibodies in your blood works, try the Thunder God Vine. Its the only thing ever found to actually cure EBV and this virus is much worse than most would expect. It has 6 stages but only shows up in bloods in stage 2. It releases spirochetes just like Lyme does and it shuts down Thyroid and Liver function, just as the H.Pylori does.
I strongly suggest anyone with Fibromyalgia use the Inclined Bed Therapy. If you check out the website, you'll see its curing people of absolutely everything because it allows the Liver to continue detoxing 24 hours a day.
(Camden, South Carolina)
07/22/2016
(Somewhere, Europe)
07/22/2016
Teresa do you mean the Thunder God Vine? I got mine from an Ebay provider and bought the powder but I have to measure it daily so the capsules may be more convenient.
As for the Inclined Bed Therapy, I used 2 bricks under each leg at the top end of the bed.
Yes, reducing inflammation has really helped the pain subside significantly.
(Sydney)
01/07/2017
Ginger
★★★★★
(Lehigh Acres, Florida)
12/07/2023
While I have been struggling to calm my symptoms, I went on an anti inflammatory diet. They say it takes time. Figuring out the right diet that works is hard. During my researching but read up on eating raw ginger in one of my many searches and tried it and within 10 minutes I am pain free enough to do my stretches and walk to help function to start my day.i am new to Frybromya I am not new to pain. I injured my back and for years I was part of the opioid epidemic. Started on vicodin 5's. It wasn't long before they had me taking fentanyl patches on a high dose telling me there was no way I could get off of them and be able to function in life without them. It took years to find a dr that was willing to help me get off of them. I used to work out 3 hours a day before I got hurt and was told I had to stop for them to help me. When I was finally off the opioids I felt better without them. It took a little time for my body and mind to adjust without them but finally My body didn'tcrave it to where I was always hurting. I learned that there was a lot of pain caused by my body needing more causing the higher doses.. I had many days where I wish I had a few pills to get me through my bad days but I worked through it with a lot of ibprophen. I wish I did my research then and was aware of ginger and changes in diet and exercise.. I am still fighting everyday with different changes to try and calm the Frybromya. Some days I just want to sleep through the day but I get up and keep fighting to figure out what will work for me long term. I couldn't imagine how people felt before fibromyalgia became an actual diagnosis. As we now struggle with figuring out why each individual is have this chaos each day through mind body and soul. The mental strain is sometimes harder then fighting off the pain. I am thankful for all the people that share their stories and how they approach their symptoms and what has helped. It makes a big difference for others 😀
Glutathione
★★★★☆
Here what I do to be detoxed at the most. I take daily the Glutathione capsules. I have a friend having Fibromyalgia and feels so good with it
Guiafenesin
(Melbourne, Australia)
05/04/2011
I dont believe in the guia theory but I did take it. I am in severe pain, I hate taking morphine but I have to. I used to take the guia - for me it did cut the pain back a couple of notches. But cant have any salicylates or it wont work. My liver is so bad I want to take milk thistle which has of course, salicylates so the guia wont work. So many other good salicylates that can help with our conditions eg. I have very bad adrenals so want to take licorice root, more salicylates. So whilst the guia helped with the pain I wont get help with the other. They say you have to take it forever.
(Atlanta, Usa)
09/17/2011
★★★★☆
Because I also have bronchitis/asthma, I was taking Guiafenesin and noticed a reduction in pain. I didn't know about any theories but was greatful to not have to deal with the Fibromyalgia while sick. Once the lungs cleared up and I quit taking Guiafenesin, the pain was back quadrupled. There must be something to it. I was taking Mucinex which has a higher dose of Guiafenesin in it. The terrible side effects of HEAVY perspiration and high blood pressure prohibits my taking Savella which offered pain relief but is not worth risking a stroke.
(Sedalia, Missouri)
03/26/2012
Am new to this site, just beginning to process the many good pieces of advice. Do want to comment that if you have astham/chronic bronchitis with fibro, please have your Vit D3 level checked. D3 defiecency is a common problem in modern society and it is improtant in immune system support. When fibro became debilitating for me, the only abnormal lab value the dr found was D3. Since starting the supplements, I have only had 1 episode of respiratory infection versus very frequent respiratory infections and 3 daily asthma meds, which I am completely off of now! Check into it- it is helpful for many!
Infrared Sauna
(Denver, Colorado)
10/01/2013
Julieh: Please, I beg of you, do not spend your money on man made gizmos, gadgets, and thingamajigs. Trust in God's Goodies. Far infrared cures everybody of everything. Water from volcanoes and mountain springs emit far. Raw organic produce emits far. Ferments emit the most far. Cooked conventionally grown food does not emit far. This is why everybody is sick and suffering. Far infrared machines do not cure anybody of anything because they do not have any nutrients. Raw organic produce and ferments have both nutrients and emit far.
(Akron,oh)
10/02/2013
Not dangerous unless you are very heat sensitive. It is a dry sauna. You must drink a lot of water before, during, after.
It's well thought of as a detox method. However, expensive to do at a doctor's office! ($70/session) If your holistic dr or naturopath is supervising, you're safe enough.
Do you know the causes behind the fibro? Did it start from a certain incident, creep up slowly, manifest after major family troubles?
Maybe other detox methods would be cheaper? Epsom and dead sea salt soaks... Skin brushing... See how you react to these, before something more dramatic. Do you know how your body reacts to a detox session - sick after it, or energized?
My dr suggested this as alternative to colonics, given my own issues.
(Fl, Usa)
10/03/2013
Fibromyalgia is a microbe infection. Treatment should be done from that perspective. It is disinformation when they say it is due to "over active nerves".
(Charlotte, Nc)
10/04/2013
To Prioris ...
About that Fibromyalgia and microbe connection; I have read the same thing a couple of times. Maybe a specialty virus like polio or ALS? Or is the mirobe a geeneral system wide infection that weakens the immune system either overloading antibodies or reducing their effectiveness? Would love to have more info on that Fibro-Microbe connect if you find anything.
Iodine
★★★★★
I recently read the articles on iodine use for mammary fibrocystic disease and decided to treat us all with 12.5 mg iodine/iodate (50:50). The results after two weeks have been very promising. All three report increased energy and better sleep.
The MCS patient lowered reaction on exposure to voc, mold and carpet, absence of morning nausea.
The CFS patient: less depression, better hearing and better appetite, no headaches.
The FMS patient: less pain in major sites (cervical, thoracic and lumber spine), arm-wrist, better cognition, better tolerance to aerobic exercise, fewer migraine headaches. I will follow this up for six months and report again.
(Orlando, Fl, Orange)
10/13/2010
Sounds like all of you should be checked for food allergies, both IgE (immediate reaction) and IgG (delayed reaction/hidden).
Blood testing should give you a starting point. If positive, eliminate the offending foods (entirely) for 7 days. Both types of allergies were causing my fibromyalgia symptoms and chronic fatigue, as well as an array of other symptoms. When I follow a strict diet, my symptoms are gone. On a rotation diet, my symptoms are very, very minimal. The top allergens are: wheat, soy, milk, egg, corn and nuts
Juicing
They run a website which offers free programs and support for a juicing diet. Some of you might be able to help yourself by following it: http://www.juiceupyourlife.com/support
Kinesiology
★★★★★
L-Lysine
A week ago I started on the L-Lysine for a virus and I notice that I felt a lot better 5 minutes later. Now that's too quick of a reaction even for lysine on virus. There had to be something else going on and that's when I started doing some research. So I just kept on taking the lysine 3 or 4 times a day. So far my hip pains have gone away and the rest has diminished some. The hip pain was what would wake me up at night and because I had trouble getting back to sleep, I really didn't need that. So now I sleep through. There are other symptoms relieved but I am going to hold off on reporting them until I see more improvement.
Hello, I am very interested in whatever you find out about Lysine. It is one of my favorite meds to recommend to people and family. I have used it several times myself for colds and flu and have had excellent succes. I belive I stayed out of the Hospital because of Lysine. Please continue keeping us updated. Merryanne in Central FL
(Ventura, Ca, United States)
04/05/2011
Merryanne the L-Lysine maybe more of a training of the gut to brain axis but then again it might be a cure. I wish that EC would have put this post with remedies. If you have the IBS symptoms you will surely have to treat for candida because it will be there. I also think you cannot ignore EDTA for heavy metals and then of course look above at the post on fluorosis. So if you have done your reading and are taking mag citrate for awhile then consider the L-Lysine if you would like an immediate relief for some of your symptoms then go ahead and start on the L-Lysine now. I am still getting slow improvement on the muscle pain but mentally I feel better and the sex life is better. L-lysine has an anxiolytic action on the serotonin receptors so it helps with the anxiety. I add the L-Glutamine with it to help with the gut and make your first dose first thing in the morning. Both should be powders and you can find them on ebay. I would love to hear from you with your response. I think that one important aspect of Earth Clinic is the responses.
(Barrie, Ontario)
03/25/2021
According to this scientist, fibromyalgia is caused by the herpes virus infecting the vagus nerve! If this is true, then L-Lysine should work.
Linseed Oil, Tyrosine, Echinacea
★★★★★
(Lansing, Michigan)
05/08/2008
My family used to see a physician's assictant rather than a 'regular' doctor. She was very much into herbs and vitamins, and would tell us how to make things like our own echinacea tincture. She also told us that if we took echinacea on a daily basis, it would stop working for us after awhile. She said ten days on, ten days off was a good way to go.
(San Francisco, CA)
12/12/2008
Liquid Chlorophyll
★★★★☆
I've missed a few days of my chlorophyll and consequently had 2 extremely painful nights of sleep. I've suspected for some time that artificial sweetners were poisonous as they made me extremely achy and lethargic, to the point where I could not safely drive my car. My sister has granulated carcinoma and it also become extremely painful when she eats or drinks anything with artificial sugars.
With FMS it's become apparent that the most important thing for me to feel healthy and pain free is really limit my sugar intake. Artificial or not. My daily servings of fruits is about all my body can handle.
